harms

It's the 2-year anniversary of this open access paper of mine, so I'm giving it a plug in a few places. It could be useful if there is any suggestion that somebody should be coerced into doing graded activity or exercise programmes; also to counter claims that the PACE Trial showed graded...

A very familiar story. https://quillette.com/2019/02/23/motivated-reasoning-is-disfiguring-social-science/

https://fiddaman.blogspot.com/2019/02/q-with-carmine-pariante.html

Saw Keith Geraghty share this on Twitter. Paywalled at https://www.bmj.com/content/356/bmj.j396

This thread is intended for collecting evidence of harms from GET and other therapies that involve increasing activity and/or exercise. Particularly useful would be any research demonstrating either that GET has directly caused harm, or that research on GET that claims no harm has not properly...

Free full text: http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx

The Canadian Broadcasting Corporation, (CBC) has recently aired two programs on medical devices, and has compiled a website on many medical devices, including their side effects. According to the CBC, adverse effects from medical devices are poorly tracked/reported, and Health Canada is...

https://www.bbc.co.uk/news/health-46318445 Now wouldn't it be nice if all those involved in this investigation looked at unsafe psychological interventions?? I won't hold my breath.

We have all been very abused and persecuted by governments, the medical establishment, the insurance industry and others. We, like other unjustly mistreated communities deserve redress. This will never make us whole, but will go some way in that process. People's lives, their family's lives...

I was surprised to find this article posted on the ME/CFS Australia (SA) Inc site: http://www.sacfs.asn.au/ Sep 18, 2018 by Ernie Schramayr Hamilton Spectator " Exercise leads to a release of “feel good” hormones that makes most people feel energized, clear headed, invigorated. ............"...

https://www.propublica.org/article/dr-death-christopher-duntsch-a-surgeon-so-bad-it-was-criminal

Just wanted to list the different ways the GET/CBT model harms people with ME, directly or indirectly: Psychological - as Dr Klimas said - paraphrased: They came to the doctor with ME. They left with PTSD. Physical - contraindicated treatments Social - perpetuating stigma Financial - not...

A long harrowing read. However complaint report gives hope for better care in future. Well said Christine Fenton. http://meadvocatesireland.blogspot.com/2018/09/complaint-report-offers-hope-for-those.html

This post and subsequent posts have been copied and/or moved from this thread: David Tuller: Trial By Error: The Cochrane Controversy ..... The downside of GET is that there is also abundant evidence of it doing immense measurable harm. That is something we need to focus on more. People with a...

Probably a minority interest. I think the biggest concern with CBT for ME/CFS is the graded activity component. However, potentially other aspects may cause problems. Adverse effects from nonpharmacological therapies have not been studied as closely as adverse effects from pharmacological...

I’m watching this now and wow, the amount of life-altering devastation these poor women and men have suffered due to being implanted with inadequately tested medical devices gone wrong reminds me, in a way, to what we’ve gone through with ME/CFS. Check out “The Bleeding Edge” on Netflix...

Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament

I decided to make a new thread from this post in the UK House of Lords/ House of Commons Questions thread. The Countess Of Mar asked the following question: Lord O'Shaughnessy answered...

This thread has been started as a place where reports from PACE trial participants can be recorded. Edit - the scope of the thread has since been widened to all CBT and GET trials.

https://www.tandfonline.com/doi/abs/10.1080/09638288.2018.1481149?journalCode=idre20