The Independent Medicines and Medical Devices Safety Review into three unsafe medicines/medical products aimed at women has now published its report to the UK government (8 July 2020).
The report, First Do No Harm, calls for:
a new Patient Safety Commissioner to "champion the patient voice"...
The PACE trial evaluated Graded Exercise (GET) Therapy and Cognitive Behavioural Therapy (CBT) as treatments for ME. Exercise as treatment seems counterintuitive when even minimal mental or physical exertion leads to a worsening of symptoms and reduced function [1]. The defining symptom of ME is...
Big article about ME and graded exercise therapy in the Danish news site for research; Videnskab.dk
The Cochrane review is discussed, and author Lillebeth Larun is interviewed. The article mentions the planned going over of her review at Cochrane and apparently she is currently working on...
Just been hearing about this:
https://www.bbc.co.uk/news/uk-england-birmingham-51369881
Can't find the direct quote but apparently the inquiry also said that he should have been suspended while the inquiry was ongoing, not allowed to continue with his malpractice.
relevent for pwME as...
not recommending the book but.......
https://www.scribd.com/book/443434408/Thinking-And-Eating-For-Two-The-Science-of-Using-Systems-1-and-2-Thinking-to-Nourish-Self-and-Symbionts
https://www.psychologytoday.com/intl/blog/digital-world-real-world/201911/does-mobile-phone-radiation-cause-symptoms
eta: just found it interesting how they identify key methodological errors in the research, only to then replace with alternative theories with equally dodgy research evidence.
Corsius et al. (2019). Zorg voor betere behandeling bij ME. Enquête onder ME-patiënten naar hun ervaringen met behandelingen bij ME.
A new patient survey was published two days ago by the Dutch ME/CFS Association (ME/CVS Vereniging). It was conducted online in 2017 and had valid results for...
Half the research spending for ME in a 10 year period in the UK went on the widely discredited £5M PACE trial [1]. The trial is taught in textbooks [2] and universities [3] as an example of how not to conduct a clinical trial. Over 100 experts and 80 charities want an independent review [4] and...
https://drnmblog.wordpress.com/2019/07/18/complaint-to-the-gmc-dr-christian-jessens-dick-head-and-bullshit-abuse-of-a-parent-carer/
Take a look at the Tweets of at Hollysvaccine on Twitter as well.
Abstract
The use of graded exercise therapy and cognitive behavioural therapy for myalgic encephalomyelitis/chronic fatigue syndrome has attracted considerable controversy. This controversy relates not only to the disputed evidence for treatment efficacy but also to widespread reports from...
I saw this article (which is mostly about antidepressants) on the Human Givens Institute and thought it worth sharing as it is written by a psychotherapist...
the problem of lack of recording of harms again a problem
https://www.itv.com/news/anglia/2019-04-02/were-absolutely-appalled-say-mesh-campaigners-over-nice-decision/
(the story is also in various papers)
see also this thread...
https://www.telegraph.co.uk/science/2019/03/22/single-course-antibiotics-may-cause-irreversible-damage-crucial/
The rest is behind a paywall, but, if you register, you can read one or two articles a month for free.
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