sorry I’m on my phone and can’t cut and paste the info from Facebook
Rough summary this is a place where people with can anonymously post their stories of poor treatment or neglect by health service due to predudice and belief ME Is psychosomatic. Clare Geradas worst nightmare.
A short piece by a firm of personal injury solicitors presumably seeing the possibility of legal action where patients have been harmed:
https://www.blbchronicpain.co.uk/news/scandal-pace-trial-cfs/
The Dutch organisation ME/CVS Vereniging has translated into English a recount from an ME-patient about a stay in a Dutch rehabilitation centre 15 years ago. The patient is still struggling with consequences of that horrible stay.
I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)
I wasn't sure where to post this. I thought it might be useful to have a thread regarding other psychological/psychiatric theories and treatments which turned out to be harmful. Some of these were fairly common until recently.
These might be useful examples of how a profession can go wildly...
Free full text:
http://www.openaccessjournals.com/articles/studies-and-surveys-implicate-potential-iatrogenic-harm-of-cognitive-behavioral-therapy-and-graded-exercise-therapy-for-myalgic-en-12190.html
https://twitter.com/_NathalieWright/status/928658062684106754
She says stories can be anonymised where necessary.
Nathalie Wright has ME herself:
http://www.meassociation.org.uk/2015/11/nathalie-wright-talks-about-the-misery-of-living-with-me-huddersfield-examiner-26-november-2015/
"When therapy causes harm" (2008)
Somebody drew my attention yesterday to this article from 2008. Doesn't discuss ME/CFS so not important but I found it of general interest
Labour calls for immediate end to use of vaginal mesh implants
https://www.theguardian.com/society/2017/oct/18/labour-calls-for-immediate-end-to-use-of-vaginal-mesh-implants
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