Learn About the Millions Missing from ME/CFS – Sundance Award-Winning Film Screening and Panel Discussion
January 15, 2019 5:30 PM - 7:00 PM
Boston
https://www.massbio.org/events/learn-about-the-millions-missing-from-me-cfs-sundance-award-winning-film-screening-and-panel-discussion-3244...
I'm not sure how this will work. I wondered if we could share ideas, initiatives, resources and information for educating doctors, scientists and allied health professionals. Hopefully there will be success stories.
Online Educational Series
A six part educational video series designed to empower patients and their advocates with the tools to communicate with their healthcare providers.
VIDEO 1: Getting the Right Diagnosis 38 minutes
VIDEO 2: Activity Intolerance & Post-Exertional Malaise 40 minutes...
Station: University of Minnesota / SMCI / YouTube
Date: November 13, 2018
WebTV:
Item: Medical education ME/CFS-event at the University of Minnesota
On November 7, SMCI in partnership with the Minnesota ME/CFS Alliance co-sponsored a medical education event at the University of Minnesota...
Source: Solve ME/CFS Initiative
Date: October 18, 2018
Time 19:00-20:00 UTC
URL: https://register.gotowebinar.com/register/3070787936016442371
Back to School Part 2: Individualized Education Plans (IEPs) for students with ME/CFS in Public Schools...
I have not read it yet but the title is certainly meaningful. I'll get to it but wanted to post it.
https://www.nytimes.com/2018/09/10/upshot/its-hard-for-doctors-to-unlearn-things-thats-costly-for-all-of-us.html
I don't think this is necessarily exceptional - I got a 2 in my first Open University degree with ME (might have got a 1/distinction if circumstances hadn't been so dire), and a distinction-grade Masters - both in science.
I took my later exams at home too. It's gone out of the window in the...
Ron Davis said, “I would like to use it as a teaching tool, to have medical students read it and ask them, ‘How many things can you find wrong with this study?’”
(https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/)
This free online course on the Design and Interpretation...
Action for ME have secured funding from Scottish Government to look into and formulate proposals for improving services for those with ME in Scotland.
Part of this is awareness raising- Gail Ross MSP's evening event at Scottish Parliament has helped to create interest and concern.
My interest...
Access to education for children with chronic illnesses-
As you may know my daughter is manly bedbound and cognitive function is not good. It has been hard for everyone to adjust to this as she was an active, very intelligent child.
There is no online educational provision in Scotland, such as...
This looks annoying and worthless: http://bmjopen.bmj.com/content/7/5/e014133
Wow, they've really taken the time to understand this straw-man of why patients are concerned about the promotion of CBT/GET:
I'm mainly posting this because it says:
I'm not sure that this organisation would...
Not directly an ME petition but one certainly very relevant to those children with severe ME.
https://www.change.org/p/secretary-for-education-create-a-virtual-learning-platform-for-children-too-unwell-to-attend-school
ETA: I'm not the creator of the petition, I stumbled across it on social...
I and others thought it might be useful to have a thread where people can post any training courses they come across that are dodgy or have incorrect/old/false information about ME or CFS.
At this stage it is purely for future reference purposes.
Thanks.
If you add any please could you give...
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