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Crowdfund appeal to educate people with a duty of care towards ME patients

Discussion in 'Fundraising' started by John Mac, Sep 5, 2018.

  1. John Mac

    John Mac Senior Member (Voting Rights)

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    https://www.crowdfunder.co.uk/tackling-the-mecfs-issue
     
  2. Trish

    Trish Moderator Staff Member

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    I would need a lot more information about what the money is to be spent on and why this would be a better way of educating doctors than what the existing charities are already doing before donating.

    I commend the intention and effort, but it all seems far too vague.
     
    andypants, Barry, Snowdrop and 10 others like this.
  3. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Perhaps we could invite Sally to join and discuss it with us?

    How does she plan to involve/engage with those who would typically "support" an ME patient.

    What literature will they be using?

    I can see the benefit. Done well, this could make a real difference.
     
    andypants, Barry, Mij and 3 others like this.
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I see the current target is £2000. If only it were that simple.
     
  5. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    http://meadvocatesireland.blogspot.com/2018/09/complaint-report-offers-hope-for-those.html

    I read this a couple of days ago ( have forgotten where but could it be @Keela Too?) and sent it to a family member, and have retrieved it from the email in order to post it here.

    I think it demonstrates the acute needs of severe pwme living alone and the desperate nature of the situation in which many live. Christine Fenton, the ME patient, eventually made a complaint which triggered an investigation which produced recommendations which might be of interest to Sally Callow who is doing the crowdfunder.

    Sharing information seems a good place to start.
     
  6. NelliePledge

    NelliePledge Moderator Staff Member

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    So the funds raised by the existing fundraising campaign went to ME Association. I’m wondering whether Sally is working with MEA on this at least the content stands a chance of being useful and possibly using MEA links to medical organisations as well. It would be good to understand about the content production plans but also what distribution and marketing plans are. Wondering if @Russell Fleming knows anything or can find out?
     
  7. MEMarge

    MEMarge Senior Member (Voting Rights)

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  8. NelliePledge

    NelliePledge Moderator Staff Member

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    Ah ok I must have got the wrong not MEA
     
    Invisible Woman likes this.
  9. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    If I remember correctly there were posts about Foggy Doggy on the MEA facebook page - people.got in touch offering to "host" him and there were updates in his travels. There might have been a write up in ME Essential the MEA member magazine.

    So connections to both IiME & MEA, I think.
     
    andypants, NelliePledge and MEMarge like this.
  10. NelliePledge

    NelliePledge Moderator Staff Member

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    Ok thanks I won’t delete my earlier post then
     
    MEMarge, Binkie4 and Invisible Woman like this.
  11. Keela Too

    Keela Too Senior Member (Voting Rights)

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    From website linked above:

    Team Foggy no longer fundraise for the ME Association but this is what we do. Foggy’s adventures will continue!

    On this page: https://www.mefoggydog.org/about-me/
     
    Invisible Woman likes this.
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    podcast with Sally Callow (not listened to it yet)



    eta: you can comment on it

    I thought the interviewer Laura Elliott (who I think also has ME) was very good.
     
    Last edited: Sep 8, 2018

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