Discussion in 'Advocacy Projects and Campaigns' started by Tom Kindlon, Jan 25, 2019.
I started looking at METRIC and posted some comments here: https://www.s4me.info/threads/uk-21...red-by-carol-monaghan.4468/page-20#post-85584
I think I've got some more notes I intended to write up but never got around to - one of those projects that fell off my 'to do' list. It really did look dire though.
Thanks a lot for that pdf file. I forgot what format I was looking at previously, but I remember it being a pain and kept having different bits become inaccessible.
I think @Simbindi also mentioned planning to go through the material and try to report back
I'll have a look at it tomorrow. My last proper job was editing online CPD modules for Doctors.net.
Maybe we can come up with something better?
Could be an interesting project for the spring.
Skim read. Awful.
Yes, we can do better than that. A lot better.
Great idea. But would they be willing to change it?
The main problem we'll have is that they will require it to reflect current NICE guidance, but apart from that...
Awful, truly awful. PACE and FINE cited as evidence for GET and CBT. @dave30th, have you seen this dreadful online course content for UK GPs ?
@EspeMor, @Action for M.E., I notice that Minister Steve Brine in the June debate referred to this terrible online course. I feel it would have been really helpful in the Parliamentary briefing MEaction wrote last week to have cited this course as evidence of the inaccurate training doctors are getting on ME. It would have shown clearly the false bps model is still being used in NHS and would have not allowed the Minster to feel he has responded to the comments by MPs of the lack of accurate educational training for ME by saying there is a GP training online course.
Oh there's no chance of that I suspect. We just set up a free rogue version that gets things right and get members to recommend it to their GPs.
We might be able to get Luis Nacul to contribute - then nobody can say it is not authoritative.
Yes, please do make a good online course, one aligned with what the NICE Guidelines should be, rather than what they are.
There's a need for this around the world, it's something that could make a big difference to the availability of informed doctors and community nurses.
My two pennies worth.
Suggestion : There needs to be two documents, one for GP's and one for specialists.
There is no way a GP can navigate the complexity of ME and co-existing conditions without knowledge. The specialists job is to rule out other diseases, look for treatable co-existing or overlapping conditions, provide treatment recommendations.
Referring to the recent Charles Lapp paper the list of treatable overlapping conditions in table 1 is pretty long. A GP cannot navigate this. Just think of the amount of people that could get help!
In the beginning specialists could meet regularly to compare findings. Specialists would be able to document their findings and refine the process.
Perhaps I'm dreaming again..........................
Carol = Carol Monaghan
Dr. Emma Reinhold wrote the EDS toolkit for the RCGP's and I highly recommend folks read it with a thought on how can we do the same thing for ME!
Things like this are really important as they can be very easily shown to your GP.
I particularly like that it has a section on "emerging major associations" which details MCAS and POTS from an EDS perspective.
Here is an excerpt from the POTS section.
Noted. I am not sure Brine's response would have been any different if we have added that. Agreed it would have been useful, but all MPs and the minister had plenty of resources to answer and highlight this (including our briefing and many others that were sent by various charities!).
Rest assured, we will be doing our VERY BEST to keep lobbying on behalf of people with ME and the community!
This is something we must tackle.
The thread has been moved to the Advocacy Projects and Campaigns subforum, so that it can be found easily.
I note that the METRIC course is dated 2012. So maybe not surprising it is so bad.
Edit:But reviewed Feb 2015
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