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METRIC (UK) Royal College of GPs' online course on ME/CFS

Discussion in 'Resources for Health Professionals' started by Tom Kindlon, Jan 25, 2019.

  1. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Attached Files:

  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    anniekim, Hutan, Barry and 3 others like this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    Thanks a lot for that pdf file. I forgot what format I was looking at previously, but I remember it being a pain and kept having different bits become inaccessible.
     
    ladycatlover, MEMarge and Tom Kindlon like this.
  4. andypants

    andypants Senior Member (Voting Rights)

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    I think @Simbindi also mentioned planning to go through the material and try to report back :)
     
    Esther12, Andy, Amw66 and 1 other person like this.
  5. Lucibee

    Lucibee Senior Member (Voting Rights)

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    I'll have a look at it tomorrow. My last proper job was editing online CPD modules for Doctors.net.

    Maybe we can come up with something better?
     
    ladycatlover, Barry, JaimeS and 13 others like this.
  6. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Could be an interesting project for the spring.
     
  7. Amw66

    Amw66 Senior Member (Voting Rights)

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    Skim read. Awful.
     
  8. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Yes, we can do better than that. A lot better.
     
  9. Trish

    Trish Moderator Staff Member

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    Great idea. But would they be willing to change it?
     
  10. Lucibee

    Lucibee Senior Member (Voting Rights)

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    The main problem we'll have is that they will require it to reflect current NICE guidance, but apart from that...
     
  11. anniekim

    anniekim Senior Member (Voting Rights)

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    Awful, truly awful. PACE and FINE cited as evidence for GET and CBT. @dave30th, have you seen this dreadful online course content for UK GPs ?

    @EspeMor, @Action for M.E., I notice that Minister Steve Brine in the June debate referred to this terrible online course. I feel it would have been really helpful in the Parliamentary briefing MEaction wrote last week to have cited this course as evidence of the inaccurate training doctors are getting on ME. It would have shown clearly the false bps model is still being used in NHS and would have not allowed the Minster to feel he has responded to the comments by MPs of the lack of accurate educational training for ME by saying there is a GP training online course.
     
  12. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Oh there's no chance of that I suspect. We just set up a free rogue version that gets things right and get members to recommend it to their GPs.

    We might be able to get Luis Nacul to contribute - then nobody can say it is not authoritative.
     
  13. Hutan

    Hutan Moderator Staff Member

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    Location:
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    Yes, please do make a good online course, one aligned with what the NICE Guidelines should be, rather than what they are.

    There's a need for this around the world, it's something that could make a big difference to the availability of informed doctors and community nurses.

    @RoseE @Caramel_Cat
     
  14. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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    908
    My two pennies worth.

    Suggestion : There needs to be two documents, one for GP's and one for specialists.

    There is no way a GP can navigate the complexity of ME and co-existing conditions without knowledge. The specialists job is to rule out other diseases, look for treatable co-existing or overlapping conditions, provide treatment recommendations.

    Referring to the recent Charles Lapp paper the list of treatable overlapping conditions in table 1 is pretty long. A GP cannot navigate this. Just think of the amount of people that could get help!
    https://www.frontiersin.org/articles/10.3389/fped.2018.00415/full

    In the beginning specialists could meet regularly to compare findings. Specialists would be able to document their findings and refine the process.

    Perhaps I'm dreaming again..........................
     
  15. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Carol = Carol Monaghan
     
  16. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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    Dr. Emma Reinhold wrote the EDS toolkit for the RCGP's and I highly recommend folks read it with a thought on how can we do the same thing for ME!
    Things like this are really important as they can be very easily shown to your GP.

    https://www.rcgp.org.uk/eds

    I particularly like that it has a section on "emerging major associations" which details MCAS and POTS from an EDS perspective.
    Here is an excerpt from the POTS section.
     
  17. EspeMor

    EspeMor Established Member (Voting Rights)

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    Hello!

    Noted. I am not sure Brine's response would have been any different if we have added that. Agreed it would have been useful, but all MPs and the minister had plenty of resources to answer and highlight this (including our briefing and many others that were sent by various charities!).

    Rest assured, we will be doing our VERY BEST to keep lobbying on behalf of people with ME and the community!

    Espe
     
  18. obeat

    obeat Senior Member (Voting Rights)

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    This is something we must tackle.
     
  19. Hutan

    Hutan Moderator Staff Member

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    The thread has been moved to the Advocacy Projects and Campaigns subforum, so that it can be found easily.
     
    MEMarge, Trish, Lisa108 and 2 others like this.
  20. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I note that the METRIC course is dated 2012. So maybe not surprising it is so bad.

    Edit:But reviewed Feb 2015
     
    Last edited: Jan 26, 2019

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