education

Scheibenbogen et al Abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe chronic illness and patients with ME/CFS are often medically underserved in Germany and other countries. One contributing factor is health professionals’ lack of knowledge about epidemiology...

Source: University of Bristol Date: December 6, 2022 URL: https://research-information.bris.ac.uk/en/studentTheses/a-narrative-inquiry-into-the-school-experiences-of-teenagers-livi https://research-information.bris.ac.uk/ws/portalfiles/portal/349168131/Final_Copy_2022_12_06_Lewis_M_L_DEdPsy.pdf...

Blog post from Galen Warden about how family and friends can support ME patients. Includes links to research and medical descriptions of ME. https://www.galenwarden.com/post/for-family-and-friends

Support Experiences of Children and Youth with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Epilepsy in New Zealand Schools: A Parental Perspective A thesis presented in partial fulfilment of the requirements for the degree of Master of Science with an Endorsement in Health...

ETA: it appears this site may be a scam It starts off reasonably OK but....... It seems as though a lot of the information comes from the NHS site rather than the NICE guideline; note the link to NICE doesn't go to the new ME/CFS guideline just the NICE home page...

Stat Pearls describes itself as The Largest Library of Medical Education in the World. https://www.statpearls.com/home/index https://www.statpearls.com/ArticleLibrary/viewarticle/21640

Hello, Thank you for being so welcoming on this forum. My name is Mariana, I'm currently doing a professional doctorate in Educational Psychology at the University of Bristol (School of Policy Studies), and I am researching the school experiences of teenagers with ME/CFS for my thesis. A...

Released: 12/21/2021 A Fresh Look at Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Diagnosis and Management of a Multisystem Illness This activity is intended for primary care physicians, nurses, nurse practitioners, and other healthcare providers (HCPs) involved in the diagnosis and...

https://oxford.universitypressscholarship.com/view/10.1093/oso/9780198801740.001.0001/isbn-9780198801740 contains this Post-Infection Syndrome Sherine Thomas DOI:10.1093/oso/9780198801740.003.0051...

https://www.actionforme.org.uk/research-and-campaigns/our-research-work/research-you-can-get-involved-with/ Dr Charlotte Davies webinar on her research on youtube The retrospective experiences of young adults who had Chronic Fatigue Syndrome (takes a few minutes to get going) (she says at...

Abstract Objectives To explore factors perceived as positive or negative among young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in relation to school and everyday life. Design A qualitative study with semistructured individual interviews performed at the local...

Introduction: Chronic fatigue syndrome (CFS/ME) is a disabling disease severely impacting school attendance, education, and social life in young students. Uncertainties surrounding CFS/ME etiology may impact the interpretation of CFS/ME in schools. Thus, school personnel need information from...

2 of their interviewees have/had CFS...

Abstract Background and Objectives: There is some evidence that knowledge and understanding of ME among doctors is limited. Consequently, an audit study was carried out on a group of hospital doctors attending a training event to establish how much they knew about ME and their attitudes towards...

2018 Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018 Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals NI - Regional review of Neurology services 2019 Hope 4 ME & Fibro Northern Ireland event (Wed 4th September 2019)...

Faith Newton Abstract Children with ME/CFS who are severely ill are bedbound and homebound, and oftentimes also wheelchair-dependent. Very seriously affected children are often too sick for doctor’s office visits, let alone school attendance. The most recent data estimate that 2–5% of children...

Preprint " Abstract Background and objectives: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS is a common complex multi-system disease with a significant impact on the quality of life of patients and their families, yet the majority of ME/CFS patients go unrecognised or undiagnosed...

For people who have no idea what ME is like, (for example most doctors and healthcare workers) how would you express it briefly? You could use: words/phrases, maybe a word cloud. quotes or facts drawings/pictures The space is small and rectangular. All ideas and links are welcome. You do...

An occupational therapist has contacted the Irish ME/CFS Association looking for CPD courses for her and her colleagues in the hospital on Long Covid or ME/CFS. Suggestions welcomed here, by private message or by email (tomkindlon@irishmecfs.org) from other countries. One we'll mention is...

Full title: “it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME) https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-020-02461-7 ETA link to article