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CPD Online College : What is ME?: scam

Discussion in 'General ME/CFS news' started by Sly Saint, Jun 24, 2022.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    ETA: it appears this site may be a scam

    It starts off reasonably OK but.......

    It seems as though a lot of the information comes from the NHS site rather than the NICE guideline; note the link to NICE doesn't go to the new ME/CFS guideline just the NICE home page.

    https://cpdonline.co.uk/knowledge-base/care/what-is-me/
     
    Last edited: Jun 26, 2022
    Sly Saint, Jun 24, 2022
    #1
    Barry, Simbindi, DigitalDrifter and 2 others like this.
  2. Trish

    Trish Moderator Staff Member

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    Such misinformation. Oh dear. If only PEM was a bit of 'extreme tiredness'
     
    Trish, Jun 24, 2022
    #2
    Snow Leopard, Barry, Simbindi and 9 others like this.
  3. Lou B Lou

    Lou B Lou Senior Member (Voting Rights)

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    The word "tiredness" must be removed from training and articles on ME. The NHS page on ME has a hell of a lot to answer for calling ME "tiredness", asserting that 'some people' improve with treatment, then listing CBT as 'Specialised treatment'!.

    I have brought the NHS pages to the attention of both of the charities and someone said they would bring it to Forward ME's attention. But the Tiredness word and 'CBT-as-treatment' is still out there misinforming everyone.


    The study referred to ('A genetic study in 2008 revealed that there were seven subtypes of ME') is this, Dr Jonathan Kerr's study. But it uses the Centers for Disease Control and Prevention diagnostic criteria (Fukuda).

    No one else has run with the '7 subtypes of ME' (just as well) and I don't think it was ever repeated as a study.

    https://pubmed.ncbi.nlm.nih.gov/18462164/
     
    Last edited: Jun 26, 2022
    Lou B Lou, Jun 24, 2022
    #3
    Simbindi, JemPD, Lilas and 8 others like this.
  4. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

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    I'm all for subtyping ME (See this thread about LTSE), but I don't see depression or anxiety as part of ME.

    In my experience this is highly disingenuous, they know that promoting behavioural treatments will lead to a society that treats ME patients as if their disease is psychological. It's all part of the gaslighting in my opinion.

    https://doctorswith.me/poor-knowledge-of-me-cfs-among-doctors-puts-patients-at-risk-of-harm/ - 82% of trainee doctors think ME is psychological.
     
    DigitalDrifter, Jun 25, 2022
    #4
    EzzieD, Wyva, Simbindi and 6 others like this.
  5. rvallee

    rvallee Senior Member (Voting Rights)

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    It's definitely missing the righteous fury subset because although I am about 3% depressed and 0% anxious, I am 199% righteous fury at the raw destruction of millions of lives, and my own, and it's probably a good thing I am as physically capable as a potato because holy crap I'll just stop here.
     
    rvallee, Jun 25, 2022
    #5
    EzzieD, Wyva, Lilas and 7 others like this.
  6. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    This seems to be put out by a commercial organisation linked to Birmingham City Football Club and British Transport Police. Interesting.
     
    Jonathan Edwards, Jun 26, 2022
    #6
    FMMM1, EzzieD, Wonko and 3 others like this.
  7. NelliePledge

    NelliePledge Moderator Staff Member

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    13,276
    Location:
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    Yes they are a company that produces Computer Based Training on a very wide range of topics so their expertise is taking content they are generally given by a client and turning it into a training package staff can work through by themselves anywhere. It would be interesting to know if they have been commissioned to produce ME material or have done it off their own bat as they perceive it is as a training package they will be able to sell to a range of clients. Either way interesting also to know who acted as their subject specialist for the content.
     
    NelliePledge, Jun 26, 2022
    #7
    Lilas, JemPD, Peter Trewhitt and 1 other person like this.
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    this is the author:
    no medical training whatsoever.
     
    Sly Saint, Jun 26, 2022
    #8
    EzzieD, Wyva, Trish and 3 others like this.
  9. ukxmrv

    ukxmrv Senior Member (Voting Rights)

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    ukxmrv, Jun 26, 2022
    #9
    FMMM1, EzzieD, Wonko and 2 others like this.
  10. ukxmrv

    ukxmrv Senior Member (Voting Rights)

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    ukxmrv, Jun 26, 2022
    #10
    FMMM1 and Sly Saint like this.

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