In addition to what I posted here (https://www.s4me.info/threads/a-thr...how-you-cope-with-it.25333/page-2#post-421722), I think people who experience LTSE deserve a different diagnosis. I define LTSE as symptom exacerbation lasting months, years, or indefinitely. At the moment everybody is bundled in to one label which causes harmful confusion, it is clearly not working. Most of the medical profession (and the general public) don't think ME is a progressive illness with long term harm from exercise. I propose that we label these patients as having type 2 ME, but I'm wondering if you think a separate diagnosis is warranted.