I'm posting this in case there are Cdn advocates here who are not aware of this group and who might find connecting with this group of possible use for ME advocacy:
https://www.cma.ca/En/Pages/patient-voice.aspx
The CMA Patient Voice is our patient liaison group and is made up of 14...
The Canadian Broadcasting Corporation, (CBC) has recently aired two programs on medical devices, and has compiled a website on many medical devices, including their side effects.
According to the CBC, adverse effects from medical devices are poorly tracked/reported, and Health Canada is...
For those interested, Action CIND is hosting a free seminar with Dr Alain Moreau, an ME researcher from Ste-Justine Hospital, in Quebec, Canada. Dr Moreau is also working with OMF...
"Date
January 24, 2019
Time
11:30am - 2:00pm
Location
Fairmont Waterfront, 900 Canada Pl, Vancouver BC
Illuminations is our much-anticipated signature luncheon focusing on the work of the Women’s Health Research Institute.
The luncheon offers members of the community the opportunity to join us...
I recently wrote the health minister of Canada (August 8), copying my provincial and federal MPs, as well as the provincial health minister of Quebec about our situation. I wrote and received a reply in French and don't have the energy to translate it in full along with my letter, but I attached...
Source: Canadian Family Physician
Vol 64, #6, pp 413-415
Date: June 2018
URL: http://www.cfp.ca/content/64/6/413
Report: Time for Leadership: Recognizing and Improving Care for those with ME/CFS, FM and ES/MCS...
Hey folks,
I was chatting with a long time Canadian advocate and she recalled seeing a document online in about 2005 that referred to a 2000 (or 2001) tri-nation meeting on ME.
Any one aware of such a meeting, or have any documents to confirm?
cheers,
Scott
In Chicago Evening Post:
"TORONTO, ON, CANADA – 06-05-2018 (Press Release Jet) — Like many people, Faith always assumed if she fell ill she would be covered by her group benefits insurance company if there ever came a time when she wasn’t able to work. Unfortunately for this 40 year old from...
LIVE ACTION SATURDAY!
Prime Minister Trudeau Apologizes to Canadians with ME.
Okay, not quite yet -but wouldn't that be great?
Prime Minister Justin Trudeau needs to see Canadians with ME on Millions Missing Day on May 12th if we want to move meaningfully toward equitable health care and...
Now Is the Time for PM Trudeau
to Wake up to This National Disgrace!
We Need the Voice of All to Help Amplify This Message
We need this video to be seen and shared widely by those with ME & those without.
Tag Canadian media and reporters on social media. Post to their pages. Send a link via...
"Date/Time: June 16, 2018 @ 7:30 pm
Location: Marpole United Church (1296 West 67th Ave. Vancouver)
Join the award-winning singers of Opera Mariposa and the Mariposa Theatre Wing for a gala concert in support of the ME/FM Society of BC! In Mariposa's sixth annual benefit show...
"Fibromyalgia/CFS patients fighting for awareness of career-ending illness
For years medical profession has questioned if fibromyalgia or chronic fatigue syndrome are real
Peter Dawe says fibromyalgia and chronic fatigue syndrome — diseases that can cause debilitating exhaustion, joint and...
In Canada, news articles that include even a crumb of information about ME are few and far between. So, I was encouraged to find the following:
http://lastwordonhockey.com/2018/01/22/montreal-canadiens-carey-price-dealt-with-chronic-fatigue/
Yes, it's a stretch . . . the story talks about how...
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