We think of an attack as a ‘big bang’, but the symptoms can build over hours or days – and even doctors can misinterpret them
https://www.theguardian.com/society/2019/sep/22/would-you-recognise-a-gradual-onset-heart-attack
I meant to post this sooner, but as usual Life Happened! ;) Not ME/CFS...
write up on AfME website:
https://www.actionforme.org.uk/news/bella-magazine-please-believe-me/
includes link to scan of article:
https://www.actionforme.org.uk/uploads/images/2019/09/bella-please-believe-me.pdf
still saying CBT is perfectly acceptable
hmm
Clare Ogden AfME
double hmm
https://www.washingtonpost.com/health/medical-mysteries/nearly-100-doctors-have-tried-to-diagnose-this-mans-devastating-illness--without-success/2019/09/20/0cb0e8c6-aeef-11e9-a0c9-6d2d7818f3da_story.html
I thought this was interesting - who knows maybe his illness has some link to ME?
Chronic Fatigue Syndrome: Progress Towards Diagnosis And Treatment, Finally?
Article is written by Henry I. Miller, physician and Senior Fellow at the Pacific Research Institute. He has also been a Research Fellow at the National Institutes of Health and the founding director of the Office of...
Modernising the Royal Society of Medicine: We Speak to its President-Elect
September 13, 2019
full article here
https://www.medscape.com/viewarticle/918344?src=130919_expert_kirby_onc&faf=1
full article here
https://www.booktrust.org.uk/news-and-features/features/2019/september/canaries-in-the-coalmine-why-marcus-sedgwick-is-writing-about-chronic-fatigue-and-illnesses-we-all-need-to-understand-better/
Title :The Corruption of Evidence Based Medicine — Killing for Profit
Author : Dr Jason Fung
Article Date : 10th April 2018 - 10 minute read
Link :
https://medium.com/@drjasonfung/the-corruption-of-evidence-based-medicine-killing-for-profit-41f2812b8704
Article continues at above link...
Thousands of Studies Begin to Paint New Picture of Chronic Fatigue
“Many doctors still don't know that there are over 9,000 studies in the published scientific literature that show that there is something wrong in the body,” Komaroff lamented. “They order their usual tests, the usual tests...
article here
https://www.cornwalllive.com/news/cornwall-news/woman-trapped-inside-home-describes-3286934
(not sure why she is having to crowd fund for this(?) there is the Motability scheme)
https://www.motability.co.uk/about-the-scheme/personal-independence-payment/
Article on the New Yorker Website about Incline Village and Ampligen.
https://www.newyorker.com/culture/personal-history/a-town-for-people-with-chronic-fatigue
The New York Times: Why Doctors Still Offer Treatments That May Not Help by Austin Frakt
Even when we learn something doesn’t make us better, it’s hard to get the system to stop doing it. It takes years or even decades to reverse medical convention. Some practitioners cling to weak evidence of...
This article in The Times 'Untouchable "Diva Doctors" ...'
https://www.thetimes.co.uk/article/untouchable-diva-doctors-bully-staff-and-put-patients-at-risk-xgk8kc6nt
Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason.
although they do say it's not just 'tiredness' they do seem to focus on it!
at least they didn't ask Michael Sharpe for his opinion..
full article here...
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