adolescents

Free full text: https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2716981

New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition. Questionnaire based, pre diagnosed Mild/ moderate but not housebound I don't know if any comorbidities (OI, EDS etc) have even been thought about I have not...

Sarah Jenette Knight1,2,3*, Jennifer Politis1,4, Christine Garnham1,4, Adam Scheinberg1,2,3,5 and Michelle Anne Tollit1,2,4,6 1Murdoch Children's Research Institute, Melbourne, VIC, Australia 2The Royal Children's Hospital, Melbourne, VIC, Australia 3Department of Pediatrics, The University of...

This is from Aug. 15th 2018 and as far as I know not shared here already. Not sure if studies on ME patients are included in the review, but thought it was of interest nevertheless. E-Health interventions for anxiety and depression in children and adolescents with long-term physical conditions...

More crap (Note highlighted bit): Source: Utrecht University Date: June 30, 2017 URL: https://dspace.library.uu.nl/bitstream/handle/1874/365826/Berkelbach van der Sprenkel, E.pdf Psychosocial Profiles of Adolescents with Chronic Fatigue Syndrome: Correlations with Fatigue Severity and...

Within many official websites and information leaflets there is a standard soundbite that most adolescents recover within 2 years. From the parents' forums of which i am a member this does not hold true. Most children who have ME seem to have a significant improvement ( but not always...

BMJ Paediatrics open: Systemic exertion intolerance disease diagnostic criteria applied on an adolescent chronic fatigue syndrome cohort: evaluation of subgroup differences and prognostic utility Objective Existing case definitions for chronic fatigue syndrome (CFS) all have disputed validity...

Spotted a link to this study in a tweet by @Tom Kindlon It is a qualitative study from Norway with interviews of seven adolescents with ME. The names of the authors are unfamiliar to me and I didn't get that much from the abstract, so wasn't sure which forum to put this in but decided to go...

Source: Archives of Disease in Childhood Vol 103, Suppl 1, G13 Date: March 2018 URL: http://adc.bmj.com/content/103/Suppl_1/A5.3 Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic...

I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. http://www.bristol.ac.uk/media-library/sites/university/migrated/documents/nonesuch6.pdf (pages 15/16 on pdf, 29/30 in mag) Her mission: "‘The aim of my fellowship is...

http://www.sleep-journal.com/article/S1389-9457(18)30017-0/fulltext?cc=y= Simon M. Collin, Tom Norris, Paul Gringras, Peter S. Blair, Kate Tilling, Esther Crawley Abstract Objective /Background: Sleep abnormalities are characteristic of chronic fatigue syndrome (CFS, also known as ‘ME’), but...

Open access at http://adc.bmj.com/content/early/2018/01/30/archdischild-2017-314138 if you can stomach it. Crawley continues her "chronic disabling fatigue" = ME fiction "Here we use data from the Avon Longitudinal Study of Parents and Children (ALSPAC) to investigate whether levels and...

In recent months, Silicon Valley executives have been speaking out about the purposefully addictive designs of smartphones and social media, which make them hard to put down for anyone, but particularly teenagers. Now, a new report puts numbers to the warnings by tying a sudden and large drop in...

Chronic fatigue syndrome in Chinese middle-school students Abstract (my bolding): The objective of the present study was to determine the prevalence of chronic fatigue syndrome (CFS) and its associated factors in middle-school students in Suzhou, China. From September 2010 to January 2011...

The Norwegian ME Association has interviewed neurologist and paediatrician professor Kristian Sommerfelt about cognitive challenges for children and adolescents with ME. He works at the children's ward at Haukeland university hospital in Bergen, Norway. He has long experience with children and...

Clin Child Psychol Psychiatry. 2017 Oct 1:1359104517736357. doi: 10.1177/1359104517736357. [Epub ahead of print] The presence of co-morbid mental health problems in a cohort of adolescents with chronic fatigue syndrome. Loades ME, Rimes KA, Ali S, Lievesley K, Chalder T. Abstract OBJECTIVE...