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Low mood, poor quality of life and high symptom impact in adolescents with chronic fatigue syndrome/myalgic encephalomyelis, 2018, Neale et al

Discussion in 'PsychoSocial ME/CFS Research' started by MeSci, Mar 17, 2018.

  1. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    3,228
    Location:
    Cornwall, UK
    Source: Archives of Disease in Childhood
    Vol 103, Suppl 1, G13
    Date: March 2018
    URL: http://adc.bmj.com/content/103/Suppl_1/A5.3

    Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic encephalomyelitis
    ----------------------------------------------------------
    FK Neale(1), TY Segal(2), DS Hargreaves(3)
    1. Medical School, University College London, London, UK
    2. Paediatric and Adolescent Medicine, University College London Hospitals NHS Foundation Trust, London, UK
    3. Paediatric and Adolescent Medicine, University College London
    Great Ormond Street Institute of Child Health, London, UK

    Abstract

    Background

    Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a condition characterised by persistent fatigue that reduces activity and affects everyday life. It is associated with mood disorders, such as depression and anxiety, and a reduction in quality of life.

    More at link.
     
  2. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    4,713
    Low mood ( again) if the overriding focus was not on fatigue ...it is not the most debilitating symptom. Perhaps then we would get better understanding
     
  3. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    2,389
    Where to begin? It's no more associated with mental health diagnoses than other chronic illnesses, so right from the get-go it's problematic.
     
    MeSci, Hutan, Chris and 2 others like this.
  4. Trish

    Trish Moderator Staff Member

    Messages:
    35,802
    Location:
    UK
    This suggests to me they haven't a clue what ME/CFS is.
     
  5. Allele

    Allele Senior Member (Voting Rights)

    Messages:
    1,047
    It is "associated" with a lot of things, Bub. You try having your career, income, social life, hobbies, stamina, independence, etc all sacrificed to an illness that has no known treatments and is interpreted by random people however they like so that they can blame you--and see how *your* mood is.

    Hrmph. Am grumpy today!
     
  6. Allele

    Allele Senior Member (Voting Rights)

    Messages:
    1,047
    Grr, the more I think about this the angrier I get at the low-hanging fruit of academia! ME/CFS is also "associated" (geepers, what an easy pass!) with severe pain, body wide inflammation, inflammation/atrophy of the dura/brain, chronic infection, immune dysfunction, disabling exhaustion, intractable GI inflammation/dysfunction, migraine, chronic headache, HPA axis dysfunction, dysautonomia, cognitive impairment, motor problems, visual problems, CNS inflammation and dysfunction, mitochondrial disorder, mast cell disorder....and you'd like to talk about "mood"? Thanks so much for your concern and for spending precious research dollars for the furtherance of your own career.
     
  7. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

    Messages:
    1,678
    It's also associated with:
    • drinking water
    • watching TV
    • exposure to sunlight
    • eating apples
    • birthday cake
    • giggling
    • learning the alphabet
    • looking at clocks
    • nose picking
    • picking the scab off your knee even though the adults told you not to
    • the C major chord
    • orbiting the Sun
     
  8. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    4,713
    @Action for M.E.
    This is the kind of study that requires to be addressed. Many children have more than enough to contend with without this narrative continuing.
    As a charity part if your remit is education and representing your members. Perhaps this would be a good starter for 10.
     
    ladycatlover, ballard and Allele like this.
  9. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    9,617
    Location:
    Germany
    When I came down with M.E. as an adult my mood was rather low for a while.

    When I was adolescent I could be moody too, and I didn't have M.E. then.

    I wonder if they controlled for the above?
     
  10. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    4,713
    If this was to be taken seriously at all, there would have to be a group with another chronic illness as a comparator.
     
  11. Hutan

    Hutan Moderator Staff Member

    Messages:
    16,065
    Location:
    New Zealand
    https://www.telegraph.co.uk/news/health/.../One-in-four-teens-now-obese-by-15.html
    Jan 30, 2015 - New study shows 'staggering' rates of obesity among 'millenium generation', with some hope that health messages are getting through to parents of ... The study of more than 370,000 children in England shows that 25 per cent of girls and 24 per cent of boys between the ages of 11 and 15 are now obese.

    I remember E. Crawley did a study that appeared to be working very hard to show that adolescents with ME were likely to be fat. Looks to me as if the ME patients in this study were not fatter than average.
     

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