adolescents

  1. D

    "My experience of chronic fatigue syndrome" anonymous 16 year old

    A young person who thinks there are effective treatments for cfs. https://bmjpaedsopen.bmj.com/content/5/1/e001165
  2. Hutan

    Needs and Experiences of Children and Adolescents with Pediatric Multiple Sclerosis and Their Caregivers: A Systematic Review, 2021, Ghai et al

    Abstract In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS) and their caregivers. The literature search was conducted across 10 academic databases, adhering to PRISMA-P guidelines. Quality appraisal was...
    • Hutan
    • Thread
    • 2021 adolescents alternative diagnosis children fatigue multiple sclerosis paper patient experience young people
    • Replies: 3
    • Forum: Neurological diseases
  3. Sly Saint

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    Now published, see https://www.s4me.info/threads/qualitative-study-of-the-acceptability-and-feasibility-of-acceptance-and-commitment-therapy-for-adolescents-with-cfs-2021-crawley-et-al.20297/page-2#post-382771 preprint Is it time to ACT? A qualitative study of the acceptability and feasibility...
  4. Andy

    Anticipation of and response to exercise in adolescents with CFS: An experimental study, 2021, Loades, Chalder et al

    "Highlights • Adolescents with CFS, asthma and healthy controls undertook an exercise task. • Those with CFS took longer to complete a laboratory-based exercise task than controls. • They (and their parents) expected to perform worse. • They were more anxious pre-task and rated their performance...
  5. Andy

    Exploring anhedonia in adolescents with Chronic Fatigue Syndrome (CFS): A mixed-methods study, 2021, Smith, Crawley, Loades et al

    Abstract Background: Chronic Fatigue Syndrome (CFS/ME) may get in the way of enjoying activities. A substantial minority of adolescents with CFS/ME are depressed. Anhedonia is a core symptom of depression. Anhedonia in adolescents with CFS/ME has not been previously investigated. Method: One...
  6. Andy

    Mental health screening in adolescents with CFS/ME, Loades, Crawley et al, 2021

    Open access, https://link.springer.com/article/10.1007/s00787-021-01734-5
  7. Dolphin

    Adolescents and their parents’ experiences of internet delivered home treatment for chronic fatigue syndrome/me (fitnet-NHS trial),2020, Parslow et al

    https://adc.bmj.com/content/105/Suppl_1/A56.1
  8. Andy

    Review: How has cognitive behaviour therapy been adapted for adolescents with comorbid depression and chronic illness? A scoping review, 2020, Loades

    Open access, https://acamh.onlinelibrary.wiley.com/doi/10.1111/camh.12421
  9. Andy

    Pain in adolescent chronic fatigue following Epstein-Barr virus infection, 2020, Wyller et al

    Paywall, http://dx.doi.org/10.1515/sjpain-2020-0031 Sci hub, unable to access paper at time of posting.
  10. Andy

    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    Full title: Recruiting Adolescents With Chronic Fatigue Syndrome/Myalgic Encephalomyelitis to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial Open access, https://www.jmir.org/2020/8/e17768/
  11. Andy

    Health Care Use and Costs of Children, Adolescents, and Young Adults With Somatic Symptom and Related Disorders, 2020, Saunders et al

    Open access, https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2768569
  12. Sly Saint

    Sleep problems in adolescents with CFS: A case-control study nested within a prospective clinical cohort : Loades, Rimes and Chalder, May 2020

    https://journals.sagepub.com/doi/abs/10.1177/1359104520918364 ETA on sci-hub https://sci-hub.se/https://doi.org/10.1177/1359104520918364
  13. Dolphin

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Free full text: https://bmjpaedsopen.bmj.com/content/4/1/e000620.abstract
  14. Dolphin

    Self-Management of Chronic Fatigue Syndrome in Adolescents, 2020, Katherine Rowe et al

    Free full text: https://www.intechopen.com/online-first/self-management-of-chronic-fatigue-syndrome-in-adolescents
  15. Dolphin

    Assessing Functioning in adolescents with Chronic Fatigue Syndrome: Psychometric properties and Factor Structure of SSAS & SF36 PF, 2020, Loades

    Free full text: https://purehost.bath.ac.uk/ws/portalfiles/portal/203914742/SLAM_Paper_7_SSAS_SF36_Psychometric_Properties_BCP_R2_Complete.pdf
  16. Sly Saint

    Health-related quality of life in adolescents with CFS/ME, a cross-sectional population based Norwegian study-Simila,Halsteinli,Helland et al Feb 2020

    https://www.researchsquare.com/article/2cbbe49c-bacd-499d-9b58-711c37b05aea/v1
  17. Kalliope

    ClinicalTrials.Gov: Rehabilitation of Adolescents Living With Chronic Fatigue (2019 Protocol for 2021 trial completion)

    Abstract Previous studies have shown that health‐related quality of life (HRQoL) in adolescents living with chronic fatigue syndrome (CFS/ME) is low if compared with healthy adolescents and adolescents living with other chronic diseases. Effective strategies to improve HRQoL in this group are...
  18. Sly Saint

    CAN LINGUISTIC ANALYSIS BE USED TO IDENTIFY WHETHER ADOLESCENTS WITH A CHRONIC ILLNESS ARE DEPRESSED? - Jones, Loades, Crawley et al Dec 15 2019

    https://onlinelibrary.wiley.com/doi/abs/10.1002/cpp.2417?af=R eta: full paper now available https://sci-hub.tw/10.1002/cpp.2417
  19. Sly Saint

    Body mass in adolescents with chronic pain: observational study - Gauntlett-Gilbert, Bhat,Clinch 2019

    https://adc.bmj.com/content/early/2019/11/28/archdischild-2019-317843?rss=1
  20. Sly Saint

    Depressive symptoms at age 9–13 and chronic disabling fatigue at age 16: A longitudinal study -Aug 2019 Collin,Loades, Crawley et al

    Journal of Adolescence Volume 75, August 2019, Pages 123-129 https://www.sciencedirect.com/science/article/pii/S0140197119301289 again using this proxy CDF (chronic disabling fatigue). Is this now a formal diagnosis? Or are they maybe, finally, realising that CDF does not equate to ME or CFS...
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