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General Advocacy Discussions

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  1. Andy

    What accomodations would PwME need for us to be able to be involved in research?

    Andy, Mar 2, 2019
    Replies:
    7
    Views:
    1,312
    WillowJ
    Mar 3, 2019
  2. Andy

    What info/stats could be useful in interesting people/organisations into ME research?

    Andy, Mar 2, 2019
    Replies:
    5
    Views:
    1,346
    JoanNI
    Mar 5, 2019
  3. Yessica

    #TwoFacesofME - Twitter

    Yessica, Mar 10, 2019
    Replies:
    0
    Views:
    1,465
    Yessica
    Mar 10, 2019
  4. Emily Taylor

    ME/CFS Advocacy Week Online Training Part 1: Best Practices for a Successful Advocacy Meeting

    Emily Taylor, Mar 14, 2019
    Replies:
    0
    Views:
    1,353
    Emily Taylor
    Mar 14, 2019
  5. Barry

    AfME staffing and structure

    Barry, Mar 9, 2019 ... 2
    Replies:
    22
    Views:
    3,203
    Sly Saint
    Mar 15, 2019
  6. Hip

    Are Wessely, Sharpe & Co psychologically manipulating gullible journalists into writing articles that present them in a good light?

    Hip, Mar 19, 2019 ... 2
    Replies:
    23
    Views:
    4,450
    Hip
    Mar 20, 2019
  7. Andy

    MEAction: Our Community will Not Suffer Stigma and Distortion

    Andy, Mar 23, 2019
    Replies:
    18
    Views:
    2,718
    JaimeS
    Mar 25, 2019
  8. MeSci

    Email Dr Mark Porter about ME/CFS

    MeSci, Mar 20, 2019
    Replies:
    3
    Views:
    1,820
    MeSci
    Mar 26, 2019
  9. Robert 1973

    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    Robert 1973, Mar 25, 2019
    Replies:
    16
    Views:
    3,292
    Suffolkres
    Mar 27, 2019
  10. Andy

    Using the forum as a blog

    Andy, Apr 8, 2019
    Replies:
    3
    Views:
    1,407
    Andy
    Apr 8, 2019
  11. Andy

    Mind Brain Pain: EU advocacy guide for national neurology advocates

    Andy, Apr 12, 2019
    Replies:
    2
    Views:
    1,064
    Wonko
    Apr 12, 2019
  12. daftasabrush

    The actual views of "ME activists" are...

    daftasabrush, Mar 27, 2019
    Replies:
    11
    Views:
    1,840
    daftasabrush
    Apr 16, 2019
  13. Estherbot

    ACT UP documentary, United in Anger, 2012

    Estherbot, Apr 17, 2019
    Replies:
    10
    Views:
    2,199
    Snowdrop
    Apr 19, 2019
  14. Graham

    medical professionals, psychologists, and researchers

    Graham, Apr 18, 2019 ... 2
    Replies:
    32
    Views:
    3,707
    Keebird
    Apr 22, 2019
  15. Obermann

    Two pieces of PACE satire on Twitter

    Obermann, Apr 24, 2019
    Replies:
    4
    Views:
    1,614
    Dechi
    Apr 26, 2019
  16. Amy101

    Merryn Crofts - our last family statement

    Amy101, Aug 25, 2018 ... 2
    Replies:
    20
    Views:
    4,279
    NelliePledge
    May 5, 2019
  17. Cinders66

    UK: Should ME awareness week and advocacy focus more on the need for research funding?

    Cinders66, May 19, 2019
    Replies:
    6
    Views:
    1,363
    Cinders66
    May 22, 2019
  18. Sly Saint

    Journalist looking to speak to people with ME/CFS for an article

    Sly Saint, May 16, 2019
    Replies:
    8
    Views:
    1,849
    Barry
    May 30, 2019
  19. Cheshire

    Carol Head to leave her position as SMCI CEO

    Cheshire, Mar 15, 2019
    Replies:
    9
    Views:
    2,548
    arewenearlythereyet
    Jun 6, 2019
  20. rvallee

    Disrupting Disbelief, project from Bateman Horne Center

    rvallee, Jun 6, 2019
    Replies:
    1
    Views:
    2,063
    Denise
    Jun 6, 2019
Showing threads 41 to 60 of 213

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