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General Advocacy Discussions

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  1. Simone

    ME/CFS and permanency

    Simone, Mar 4, 2019
    Replies:
    17
    Views:
    689
    Andy
    Mar 7, 2019
  2. Andy

    What info/stats could be useful in interesting people/organisations into ME research?

    Andy, Mar 2, 2019
    Replies:
    5
    Views:
    414
    JoanNI
    Mar 5, 2019
  3. Andy

    What accomodations would PwME need for us to be able to be involved in research?

    Andy, Mar 2, 2019
    Replies:
    7
    Views:
    278
    WillowJ
    Mar 3, 2019
  4. Obermann

    Twitter activity of Professor Blanchflower

    Obermann, Feb 11, 2019 ... 2 3
    Replies:
    52
    Views:
    3,465
    chrisb
    Feb 25, 2019
  5. Cinders66

    MRC, Holgate and CFS without PEM, thoughts on his MRC 2014 CMRC conference write up& MRC highlight notice

    Cinders66, Feb 22, 2019
    Replies:
    5
    Views:
    435
    Snowdrop
    Feb 23, 2019
  6. Andy

    IAFME, Forward ME and the roles and relationships of ME organisations

    Andy, Jan 31, 2019
    Replies:
    13
    Views:
    420
    MEMarge
    Feb 19, 2019
  7. Andy

    #MEAction: Amy Carlson – an Ally to the ME Community

    Andy, Feb 19, 2019
    Replies:
    1
    Views:
    385
    Snowdrop
    Feb 19, 2019
  8. Hutan

    Sources of online information for medical professionals

    Hutan, Jan 28, 2019 ... 2
    Replies:
    21
    Views:
    789
    Metabolically challenged
    Feb 16, 2019
  9. Sly Saint

    Steve Topple - to stop writing for the Canary

    Sly Saint, Feb 11, 2019
    Replies:
    1
    Views:
    357
    Andy
    Feb 11, 2019
  10. Sly Saint

    Academy of Medical Sciences - UK

    Sly Saint, Feb 8, 2019
    Replies:
    2
    Views:
    327
    Jonathan Edwards
    Feb 8, 2019
  11. Suffolkres

    'Benchmarking' exercise by our local NHS

    Suffolkres, Feb 5, 2019
    Replies:
    7
    Views:
    242
    Suffolkres
    Feb 5, 2019
  12. Yessica

    BMJ - Citizens’ juries can bring public voices on overdiagnosis into policy making

    Yessica, Feb 4, 2019
    Replies:
    6
    Views:
    384
    Yessica
    Feb 5, 2019
  13. Andy

    Proud Accessible Activism: The ME Debate Virtual Demonstration

    Andy, Feb 3, 2019
    Replies:
    19
    Views:
    765
    Adrian
    Feb 4, 2019
  14. obeat

    Education, education, education

    obeat, Dec 30, 2018
    Replies:
    2
    Views:
    282
    pteropus
    Jan 30, 2019
  15. Michiel Tack

    Discussion on the NICE procedure: what to expect next?

    Michiel Tack, Nov 27, 2018 ... 2
    Replies:
    30
    Views:
    1,323
    Jonathan Edwards
    Jan 27, 2019
  16. Suffolkres

    Healthwatch England - Resource for Campaign Assistance

    Suffolkres, Jan 16, 2019
    Replies:
    12
    Views:
    323
    NelliePledge
    Jan 17, 2019
  17. Andy

    Naomi Whittingham: The Power of Listening

    Andy, Dec 11, 2018
    Replies:
    10
    Views:
    677
    Liessa
    Jan 17, 2019
  18. Suffolkres

    Complaint about process of NICE review of ME/CFS Guidelines

    Suffolkres, Jan 13, 2019
    Replies:
    1
    Views:
    308
    Suffolkres
    Jan 14, 2019
  19. Andy

    Video: Carol Head: "ME As A Worldwide Civil Rights Issue"

    Andy, Dec 29, 2018
    Replies:
    4
    Views:
    455
    DokaGirl
    Dec 29, 2018
  20. Andy

    Patient: "The latest thinking on chronic fatigue syndrome"

    Andy, Dec 21, 2018 ... 2
    Replies:
    37
    Views:
    1,633
    Esther12
    Dec 24, 2018
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