This post has been copied and the following discussion moved from this thread: What we're not being told about ME - UnHerd (Tom Chivers) With reference to ME sufferers turning up and harassing researchers... Really? After 35 years of illness, I count it as a win to get up and in to my garden. After a hospital visit for other issues, the rest of the week is lost. Who are these fit "sufferers" able to travel and kick up a fuss? People without a cogent argument have consistently played the victim card. Sadly, the ME community has too many victims, but its the hangers-on pretending that CBT/PACE is the answer, not the patients who make the most noise. The patient is almost always invisible to the wider world. As for depression, yes we all have rotten moments but the majority of us still hope to be better tomorrow, or the next day. Life with ME and no expectation of freedom is too big a burden to carry every minute, every day.