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General Advocacy Discussions

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  1. Adam pwme

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    Adam pwme, Sep 11, 2022 ... 2
    Replies:
    25
    Views:
    4,754
    Adam pwme
    May 25, 2023
  2. V.R.T.

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    V.R.T., May 26, 2023
    Replies:
    12
    Views:
    1,691
    Midnattsol
    May 30, 2023
  3. livinglighter

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    livinglighter, Jul 5, 2023
    Replies:
    17
    Views:
    1,892
    livinglighter
    Jul 7, 2023
  4. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    8,326
    AknaMontes
    Jul 11, 2023
  5. Robert 1973

    Advice for freelancers on pitching articles to newspapers, by Frances Ryan, Guardian journalist

    Robert 1973, Jul 17, 2023
    Replies:
    3
    Views:
    1,143
    adambeyoncelowe
    Jul 21, 2023
  6. Phoebe

    My Two Blogs; Puffins and Penguins & Puffs and Pens.

    Phoebe, Aug 11, 2023
    Replies:
    0
    Views:
    1,258
    Phoebe
    Aug 11, 2023
  7. Sly Saint

    The Brain Charity - website content on ME/CFS

    Sly Saint, Jun 17, 2019
    Replies:
    4
    Views:
    2,113
    Ash
    Sep 11, 2023
  8. Dx Revision Watch

    ME Association: iterations of objectives between 2021 and 2023

    Dx Revision Watch, Sep 15, 2023
    Replies:
    15
    Views:
    1,756
    Sean
    Sep 18, 2023
  9. Tom Kindlon

    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Tom Kindlon, Oct 28, 2023
    Replies:
    4
    Views:
    1,325
    Tom Kindlon
    Oct 28, 2023
  10. Hutan

    Responsible ME/CFS journalism - how to report on treatments?

    Hutan, Oct 21, 2023 ... 2
    Replies:
    20
    Views:
    3,214
    Sean
    Oct 30, 2023
  11. bobbler

    Influence and Participation toolkit?

    bobbler, Nov 17, 2023
    Replies:
    4
    Views:
    1,372
    Hutan
    Nov 18, 2023
  12. bobbler

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    bobbler, Mar 11, 2023
    Replies:
    11
    Views:
    2,254
    bobbler
    Nov 20, 2023
  13. adrienne

    FOIA denied CFSAC dissolution 2018/56 responsive records

    adrienne, Jan 5, 2024
    Replies:
    6
    Views:
    1,455
    adrienne
    Jan 7, 2024
  14. FMMM1

    cognitive dissonance - radio 4 program

    FMMM1, Mar 20, 2024
    Replies:
    0
    Views:
    1,018
    FMMM1
    Mar 20, 2024
  15. EndME

    Project ideas for DecodeME data

    EndME, May 17, 2024
    Replies:
    4
    Views:
    1,025
    EndME
    May 17, 2024
  16. Jaybee00

    New MECFS rap song by artist Ren!

    Jaybee00, May 10, 2024
    Replies:
    15
    Views:
    2,075
    Aaron
    May 17, 2024
  17. JellyBabyKid

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    JellyBabyKid, Apr 20, 2024 ... 2
    Replies:
    30
    Views:
    2,557
    Sean
    May 20, 2024
  18. Haveyoutriedyoga

    Communicating the inquiry and new training

    Haveyoutriedyoga, May 22, 2024
    Replies:
    0
    Views:
    872
    Haveyoutriedyoga
    May 22, 2024
  19. bobbler

    Deadline midnight tonight: Review into "Duty of Candour" on gov.uk

    bobbler, May 29, 2024
    Replies:
    2
    Views:
    949
    rvallee
    May 29, 2024
  20. Jaybee00

    Melinda Gates resigns from Gates Foundation

    Jaybee00, May 13, 2024 ... 2
    Replies:
    22
    Views:
    2,769
    Jaybee00
    Jul 28, 2024
Showing threads 181 to 200 of 213

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