AfME staffing and structure

In a business framework though having the company increase it's income as above is a great success for a CEO as this is what matters. And indeed in order to effect change and do things that need doing money is needed. The problem as we know is in the allocation of those funds. For a charity the amount of money raised is only the beginning and there are other metrics of success.

This is where AfME fail. Their agenda is always one of the high profile endeavour in order to capture more funding (the self-perpetuation). Advocacy must be tempered with realisation of how money comes to them. It's not a new theme by any means.

I expect that people with ME could well accept less professional standards and more competence at real concrete helping of a community in distress.

 

I think that its Great they’ve increasd the money but am not sure this has anything much to do with SC being great who began around 2012!?. I’m not a member so don’t have inside knowledge but from what I see, they’ve started to specifically ask their members now for funds for biomedical research, which they weren’t into before or in the early years of SC, probably more due to realisation, unlike their past interests alternative therapies and behaviour intervention it actually was where the money was needed. Their members responded very generously at xmas, like £100 000 in a few days , far more than MEA used to get , probably because they were now being given a channel for what was bleeding obviously needed. I actually think to put it crudely their membership could probably if more inspired and asked finance more.


Also i think that the profile raising of unrest and #MEAction, plus the similarities of name, might have inspired all those thousands out there quite passive to actually get more involved. Without seeing a breakdown of why funds raised from subsistence its hard to say, or they could have just had a couple of large legacies. You’re still looking at a fraction of other charities , a 1/28th of MS society, 1/7th of motor neurone at 2003 figures.

 

this will nearly cover it
https://twitter.com/user/status/1105762209085513728