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General Advocacy Discussions

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  1. InitialConditions

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    InitialConditions, Jul 5, 2021 ... 2 3
    Replies:
    57
    Views:
    4,786
    Amw66
    Aug 15, 2021
  2. CRG

    Yet another NHS reform !

    CRG, Jul 14, 2021
    Replies:
    7
    Views:
    1,031
    CRG
    Sep 10, 2021
  3. MittEremltage

    Why use Forget Me Not as a symbol for ME?

    MittEremltage, May 12, 2022 ... 2
    Replies:
    24
    Views:
    2,198
    Wonko
    May 14, 2022
  4. Hoopoe

    Why is The Guardian's coverage on ME/CFS so poor?

    Hoopoe, Jul 27, 2019 ... 2
    Replies:
    21
    Views:
    2,876
    ScottTriGuy
    Jul 29, 2019
  5. Hoopoe

    Why is ME/CFS so neglected?

    Hoopoe, Dec 19, 2019 ... 2
    Replies:
    23
    Views:
    2,610
    wastwater
    Dec 21, 2019
  6. ME/CFS Skeptic

    Why is ME/CFS getting so little research funding?

    ME/CFS Skeptic, Nov 24, 2020 ... 2 3 4
    Replies:
    72
    Views:
    6,049
    chrisb
    Nov 30, 2020
  7. Keela Too

    Why doctors over estimate their skills

    Keela Too, Dec 1, 2021
    Replies:
    6
    Views:
    1,012
    DokaGirl
    Dec 3, 2021
  8. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    52
    Views:
    9,989
    Sly Saint
    Aug 3, 2023
  9. JaimeS

    Who was it that said being in support groups leads to poor outcome?

    JaimeS, Jul 24, 2018 ... 12 13 14
    Replies:
    274
    Views:
    26,908
    Arvo
    Nov 27, 2022
  10. Yessica

    Who makes and writes the CDC guidelines and who updates them?

    Yessica, Jul 10, 2020
    Replies:
    4
    Views:
    904
    Yessica
    Jul 11, 2020
  11. JohnTheJack

    What research do you want to see?

    JohnTheJack, Jul 7, 2018 ... 4 5 6
    Replies:
    107
    Views:
    9,668
    duncan
    Apr 14, 2024 at 11:09 AM
  12. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3
    Replies:
    57
    Views:
    5,888
    bobbler
    Nov 11, 2023
  13. RoseE

    What is an engaging, informative, short, accurate description for ME/CFS?

    RoseE, Dec 21, 2020 ... 2
    Replies:
    23
    Views:
    2,128
    Trish
    Dec 23, 2020
  14. Andy

    What info/stats could be useful in interesting people/organisations into ME research?

    Andy, Mar 2, 2019
    Replies:
    5
    Views:
    1,087
    JoanNI
    Mar 5, 2019
  15. Invisible Woman

    What does having ME mean to you?

    Invisible Woman, Mar 2, 2020
    Replies:
    18
    Views:
    1,671
    alktipping
    Mar 3, 2020
  16. Hutan

    What do we want ME care to look like?

    Hutan, Aug 30, 2018
    Replies:
    18
    Views:
    3,403
    Webdog
    Nov 13, 2018
  17. Andy

    What accomodations would PwME need for us to be able to be involved in research?

    Andy, Mar 2, 2019
    Replies:
    7
    Views:
    1,031
    WillowJ
    Mar 3, 2019
  18. Andy

    WebMD: Even Women Doctors Find Their Symptoms Aren’t Taken Seriously

    Andy, Apr 15, 2022
    Replies:
    4
    Views:
    958
    Arnie Pye
    Apr 16, 2022
  19. Webdog

    WebMD updates "The Scoop on Chronic Fatigue Syndrome"

    Webdog, Jul 2, 2019
    Replies:
    7
    Views:
    1,268
    ME/CFS Skeptic
    Jul 3, 2019
  20. Andy

    Video: Solve ME/CFS Initiative: Fireside Zoom Chat with Citizen Scientist, Marian Lemle & ME/CFS Researcher, Bindu Paul MSc, PhD.

    Andy, Oct 31, 2020
    Replies:
    1
    Views:
    1,245
    Ravn
    Nov 4, 2020
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