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What is an engaging, informative, short, accurate description for ME/CFS?

Discussion in 'General Advocacy Discussions' started by RoseE, Dec 21, 2020.

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  1. EzzieD

    EzzieD Senior Member (Voting Rights)

    Messages:
    532
    Location:
    UK
    LOL, love this!! :rofl: (I am, well was, before illness, a classic car enthusiast, so can relate!)

    Yes, life-changing will most likely have not the desired effect. Life-destroying, more accurate.

    This, 100%. The way I explain it to others is 'flu-like': "Imagine the worst flu you ever had, one that forced you to go to bed and stay there, feeling really rough and horrible and sick and weird all over. Now multiply it 1000 times. That's ME!" They usually at least sort of get the idea, and are equally usually shocked that it's not just 'tiredness' as the popular press and a certain group of UK psychiatrists and their chums would have one believe.
     
    Ravn, RoseE, Mij and 1 other person like this.
  2. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    8,204
    I've tried various expressions, but they're all opened to interpretation. It's truly incredible how friends and family want to hear what they want to hear- that you're getting better.
     
    Ravn, Snow Leopard, shak8 and 6 others like this.
  3. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    4,440
    Location:
    Cornwall, UK
    Yes - I get so tired of Xmas cards saying "hope you're well."

    No I am bl**dy not!
     
    Ravn, Snow Leopard, RoseE and 5 others like this.
  4. Trish

    Trish Moderator Staff Member

    Messages:
    51,871
    Location:
    UK
    I was thinking that as I wrote it. It makes me feel ill all the time. I understand that's not true for everyone. Hmm.
     

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