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  1. John Mac
    Thread

    Action for ME advice pdf for young people

    https://www.actionforme.org.uk/uploads/pdfs/Explaining%20M.E.%20CFS.pdf
    Thread by: John Mac, Jul 1, 2023, 0 replies, in forum: General ME/CFS news
  2. Andy
    Thread

    New Zealand 2023: ME Support's Long Covid online resource

    Copied post Online research launched to help those with Long Covid "A free comprehensive online tool has been released today to help those...
    Thread by: Andy, Apr 4, 2023, 5 replies, in forum: Resources
  3. rvallee
    Thread

    Requests for information/papers/sources/documentation

    I've been seeing many lately and thought a thread could be useful. Either coming from Long Covid advocates or professionals interested in learning...
    Thread by: rvallee, Jun 10, 2021, 22 replies, in forum: Advocacy Projects and Campaigns
  4. RoseE
    Thread

    ME patient organisations and evidence based information for their members

    This post has been copied and following posts copied or moved from this thread: News from Australia Radio programme/podcast Is society getting...
    Thread by: RoseE, Feb 7, 2021, 5 replies, in forum: General Advocacy Discussions
  5. MEMarge
    Thread

    Reality of ME. How would you get this across (briefly) using words or graphics?

    For people who have no idea what ME is like, (for example most doctors and healthcare workers) how would you express it briefly? You could use:...
    Thread by: MEMarge, Feb 4, 2021, 25 replies, in forum: General Advocacy Discussions
  6. RoseE
    Thread

    What is an engaging, informative, short, accurate description for ME/CFS?

    I am searching for a couple of sentences that describe what ME/CFS is, while giving some insight into how it affects the body and daily life. A...
    Thread by: RoseE, Dec 21, 2020, 23 replies, in forum: General Advocacy Discussions
  7. Sly Saint
    Thread

    Well At School: Chronic Fatigue Syndrome, Crawley, Loades et al

    Many thanks to Prof. Esther Crawley, Dr Roxanne Parslow, Dr Maria Loades and Amberly Brigden at the Centre for Academic Child Health, Bristol...
    Thread by: Sly Saint, Jun 3, 2020, 8 replies, in forum: Relationships and coping
  8. Dolphin
    Thread

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ Pacing for...
    Thread by: Dolphin, Jan 23, 2020, 134 replies, in forum: Monitoring and pacing
  9. Andy
    Thread

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    The title pretty much says it all but I'll waffle a bit more. The idea is to provide a document that either provides those things that we have...
    Thread by: Andy, Oct 5, 2019, 59 replies, in forum: Advocacy Projects and Campaigns
  10. Sly Saint
    Thread

    "This is M.E." booklet by Action for ME - Feedback survey

    This post and the four following ones have been split from this thread: Action for M.E. hosts DWP spotlight training [MEDIA]...
    Thread by: Sly Saint, Jan 11, 2019, 20 replies, in forum: Advocacy Projects and Campaigns
  11. Cinders66
    Thread

    AFME provide new self advocacy support material

    [MEDIA]
    Thread by: Cinders66, May 2, 2018, 33 replies, in forum: General Advocacy Discussions
  12. John Mac
    Thread

    New York State: Department of Health info page

    This page is listed as being updated April 2018. Not sure what has been changed but there are some good points in it. What is known is that ME...
    Thread by: John Mac, Apr 16, 2018, 20 replies, in forum: General ME/CFS news
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