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Advocacy Projects and Campaigns

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  1. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 9 10 11
    Replies:
    200
    Views:
    11,909
    Andy
    Apr 22, 2024 at 10:26 AM
  2. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    8,745
    Art Vandelay
    Feb 16, 2024
  3. Phoebe

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    Phoebe, May 20, 2022
    Replies:
    0
    Views:
    991
    Phoebe
    May 20, 2022
  4. Andy

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Andy, Oct 11, 2018
    Replies:
    14
    Views:
    1,939
    EspeMor
    Oct 17, 2018
  5. Esther12

    [Time for commenting has passed]Birmingham UK CCG DRAFT Policy for the treatment of Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)

    Esther12, Jul 30, 2018
    Replies:
    3
    Views:
    1,415
    Sly Saint
    Dec 17, 2021
  6. Andy

    [National Institute of Health] Community Advisory Committee – Guidelines for the Design of Clinical Studies in ME/CFS

    Andy, Apr 15, 2022
    Replies:
    3
    Views:
    1,031
    Samuel
    Apr 20, 2022
  7. MaximilianKohler

    Who to contact to get an FMT clinical trial with high quality donors? Poor donor quality is likely what's keeping this from being an available cure

    MaximilianKohler, Apr 6, 2019 ... 2
    Replies:
    37
    Views:
    4,528
    Alvin
    Apr 30, 2019
  8. Sly Saint

    What's in a name? Change to Ramsays?

    Sly Saint, Jan 31, 2018 ... 2 3
    Replies:
    44
    Views:
    6,237
    Sly Saint
    Feb 18, 2021
  9. Sly Saint

    What's going on in Bristol(?)

    Sly Saint, Jan 15, 2018
    Replies:
    12
    Views:
    2,339
    Esther12
    Sep 4, 2018
  10. Dolphin

    What could be done about the Science Media Centre (SMC) in the UK

    Dolphin, Jan 17, 2019
    Replies:
    19
    Views:
    2,683
    Barry
    Jan 18, 2019
  11. Andy

    Webinar: Solve ME: COVID Long Haulers and the ME/CFS Community: Joining Forces for Progress, Thurs, Dec 10th, 2020, 10 am PT / 1 pm ET / 6pm GMT

    Andy, Nov 28, 2020
    Replies:
    1
    Views:
    739
    Andy
    Dec 2, 2020
  12. Andy

    Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022

    Andy, May 10, 2022
    Replies:
    1
    Views:
    785
    Arnie Pye
    May 10, 2022
  13. Andy

    Webinar: Centre for Welfare Reform: Improving Policies for Welfare & Work with Energy Limiting Chronic Illness, 27th April 2021, 11am UK

    Andy, Apr 8, 2021
    Replies:
    6
    Views:
    1,259
    Andy
    May 1, 2021
  14. Andy

    Walk a mile in my shoes: trying on CWTCH's chronic illness symptom suit

    Andy, Dec 10, 2018
    Replies:
    4
    Views:
    1,239
    ladycatlover
    Dec 10, 2018
  15. Andy

    Video: The PACE trial - Part 3: Diagnostic Criteria

    Andy, Aug 30, 2019
    Replies:
    4
    Views:
    1,379
    Andy
    May 10, 2020
  16. Andy

    Video: Stuart Murdoch: ME/CFS update, 27 December 2018

    Andy, Jan 4, 2019
    Replies:
    15
    Views:
    2,008
    wigglethemouse
    Jan 6, 2019
  17. Andy

    Video: Chronic illness and the social model of disability - Leonora Gunn

    Andy, Sep 24, 2020
    Replies:
    18
    Views:
    1,676
    Peter Trewhitt
    Sep 30, 2020
  18. Andy

    Video: "The Black Box: Awaken"

    Andy, Feb 22, 2021
    Replies:
    1
    Views:
    1,041
    Trish
    Feb 22, 2021
  19. Andy

    Video Q&A series from Columbia's Center for Solutions for ME/CFS

    Andy, May 29, 2019
    Replies:
    1
    Views:
    1,919
    Forbin
    May 30, 2019
  20. lycaena

    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    lycaena, May 5, 2020
    Replies:
    19
    Views:
    2,910
    Barry
    May 10, 2020
  21. Invisible Woman

    Using our experience to help deal with isolation

    Invisible Woman, Mar 17, 2020
    Replies:
    7
    Views:
    1,239
    mango
    Mar 18, 2020
  22. ahimsa

    USA: Register now for ME/CFS Advocacy Week and DC Lobby Day 2020

    ahimsa, Jan 17, 2020
    Replies:
    0
    Views:
    950
    ahimsa
    Jan 17, 2020
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