What Doesn't Kill You [Forthcoming Documentary]

[Yann04]

with showing the worst case of ME/CFS in isolation

For what it’s worth. I’ve never seen a video about an ME/CFS case that’s worse than I was at my worst. And a large majority of videos on pwME are on people much healthier than me.

I haven’t been able to speak in 2 years, hear a human voice, I have been wearing extremely heavy duty earmuffs and earplugs for 2 years straight because all sound gives me PEM.

I just want to say that even the people who may seem super severe, are still those that managed to make it in a video, those that had the energy to consent to this. Those who could tolerate it. I promise that leaves many people out. People you’ll never hear about because they never had the capacity to even open S4ME.