USA: JAX ME/CFS Center and Derya Unutmaz news

https://jaxmecfs.com/2018/06/27/me-cfs-physician-spotlight-morris-papernik-m-d/

 

Needs a link

 

https://jaxmecfs.com/2018/07/12/advocate-spotlight-charmian-proskauer/

 

https://www.jax.org/news-and-insights/2019/march/interview-with-courtney-gunter-about-mecfs-outreach

 

About 30 mins long.

Really good discussion. Wise. Seems to summarise the history of ME. Felt quite emotional but that may have been me today.

 

Interesting discussion with Dr. Gurwitt.

I've enjoyed watching the two videos with Ron Tompkins interviewing patients (this one and the one with Rivka). His empathy towards ME/CFS patients is very touching.

 

"We previously posted that the JAX ME/CFS CRC project was temporarily put on hold during the beginning of 2020 due to COVID. In August of 2020, we started receiving samples again from subjects in our ME/CFS and healthy control cohorts, and our clinical partners at the Bateman Horne Center have now finished collecting samples from time points 1 and 2, and are working on the last set, the time point 3 samples. To date, we have over 450 blood and stool samples that have been collected across the 3 time points, and will likely have close to 500 samples once we’re done collecting time point 3. In early March 2021, we began our flow cytometry experiments on all of the blood samples we have received to look for differences in the immune cells between people with ME/CFS and healthy controls. We run all time points from the same subject in one experiment so that they can be easily compared to each other. We hope to run all the blood samples through flow cytometry in the next year or so, and analyze all of the data so that we can see the functional differences between healthy controls and people with ME/CFS.

Another exciting development at our Center is that we have very recently received NIH and Institutional Review Board (IRB) approval to begin an additional collaboration with the Bateman Horne Center to collect samples from a new cohort of patients who previously had COVID-19, and have since been experiencing ME/CFS-like symptoms, or “long-COVID.”
....."

https://jaxmecfs.com/2021/04/27/an-update-from-the-jax-me-cfs-center/

 

MECFSnet Webinar: The Jackson Laboratory

"In the latest webinar in the series, Derya Unutmaz, PhD, the Principal Investigator and Director for the JAX Center for ME/CFS, and the team at JAX discuss their latest findings."
https://jaxmecfs.com/2022/04/14/mecfsnet-webinar-the-jackson-laboratory/

Direct link to webinar.

Code:

https://youtu.be/AohsUrO0WYw

https://www.youtube.com/watch?v=AohsUrO0WYw