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solve mecfs initiative

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  1. Sly Saint
    Thread

    2021 US ICD-10-CM change proposal: addition of code for ME/CFS

    Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic...
    Thread by: Sly Saint, Aug 24, 2021, 9 replies, in forum: Disease coding
  2. Andy
    Thread

    A letter from the NIH ME/CFS Collaborative Research Center consortium Community Advisory Committee to Francis Collins, Apr 2021

    "Dear Dr. Collins, We are a Community Advisory Committee established with the support of the NIH to advise the ME/CFS Collaborative Research...
    Thread by: Andy, Apr 19, 2021, 2 replies, in forum: Epidemics (including Covid-19)
  3. Andy
    Thread

    Video: ME/CFS Alert, Episode 124: Interview with Oved Amitay, CEO of the Solve ME/CFS Initiative

    In this episode Oved Amitay, who is the new CEO of the Solve ME/CFS Initiative and a pharmacologist by training, talks about the organization's...
    Thread by: Andy, Mar 22, 2021, 1 replies, in forum: General ME/CFS News
  4. Andy
    Thread

    USA: News from Solve ME

    The Solve Newsletter thread has been merged with this thread. Spring 2018 Contents: Page 2 - SMCI This Quarter: A Summary of Our Work Page 5 -...
    Thread by: Andy, May 18, 2018, 49 replies, in forum: News from Organisations
  5. Andy
    Thread

    News from The Long COVID Alliance (set up by SOLVE)

    Solve M.E. Spearheads “Long COVID Alliance” to Accelerate Post-Infectious Research From a Solve email. Today, Solve M.E. warmly welcomes 50 new...
    Thread by: Andy, Feb 25, 2021, 23 replies, in forum: News from Organisations
  6. Andy
    Thread

    Solve ME/CFS Initiative: Ramsay Grant Program 2021, applications open Feb 22nd to April 30th 2021

    Through the Ramsay Program, Solve M.E. invests in research studies in ME/CFS or long-COVID with a particular emphasis on engaging young...
    Thread by: Andy, Feb 22, 2021, 2 replies, in forum: General ME/CFS News
  7. Andy
    Thread

    10 ME/CFS Organizations Join Solve M.E.’s Letter to Congress Recommending Priorities for Federal COVID-19 Relief Package

    From an email from Solve. Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with...
    Thread by: Andy, Feb 5, 2021, 3 replies, in forum: Advocacy Projects and Campaigns
  8. ahimsa
    Thread

    Solve M.E. Presents: Legislative Cafe Chat on Thursday, Jan. 21

    I found the following announcement at the bottom of this page -...
    Thread by: ahimsa, Jan 16, 2021, 2 replies, in forum: General Advocacy Discussions
  9. Andy
    Thread

    Solve ME/CFS Initiative: FINDING RESOURCES AND CREATING OPPORTUNITY: 2020 ME/CFS FEDERAL ADVOCACY REPORT

    After an eight-month politically-charged rollercoaster, Congress ended 2020 by passing a $900 billion COVID-relief package and a $1.4 trillion...
    Thread by: Andy, Jan 15, 2021, 0 replies, in forum: Advocacy Projects and Campaigns
  10. Andy
    Thread

    Webinar: Solve ME: COVID Long Haulers and the ME/CFS Community: Joining Forces for Progress, Thurs, Dec 10th, 2020, 10 am PT / 1 pm ET / 6pm GMT

    The term “long haulers” refers to the growing number of people who contracted COVID-19 and continue to suffer from symptoms past the anticipated...
    Thread by: Andy, Nov 28, 2020, 1 replies, in forum: Advocacy Projects and Campaigns
  11. Andy
    Thread

    Video: Solve ME/CFS Initiative: Fireside Zoom Chat with Citizen Scientist, Marian Lemle & ME/CFS Researcher, Bindu Paul MSc, PhD.

    Join Citizen Scientist, Marian Lemle & ME/CFS Researcher, Bindu Paul MSc, PhD., Fireside Zoom Chat for a discussion about how Community Leaders...
    Thread by: Andy, Oct 31, 2020, 1 replies, in forum: General Advocacy Discussions
  12. Andy
    Thread

    Solve ME/CFS: The 5th Annual ME/CFS Advocacy Week April 18-24, 2021

    From an email from Solve. >>>>> The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. To...
    Thread by: Andy, Oct 28, 2020, 8 replies, in forum: Advocacy Projects and Campaigns
  13. ahimsa
    Thread

    Solve ME/CFS: $547,000 Awarded from Defense Department for ME/CFS Research

    Solve ME/CFS tweeted this today:https://twitter.com/PlzSolveCFS/status/1319407326621827078[MEDIA] I wanted a bit more info so I searched their...
    Thread by: ahimsa, Oct 23, 2020, 7 replies, in forum: General ME/CFS News
  14. Emily Taylor
    Thread

    Announcing Congressional Women’s Caucus Briefing about ME/CFS

    [IMG] Solve M.E. Co-Sponsors Bipartisan Women’s Caucus Briefing with Two-time Emmy-nominated TV Host, Jedediah Bila Solve M.E. is proud to...
    Thread by: Emily Taylor, Aug 11, 2020, 0 replies, in forum: General ME/CFS News
  15. Andy
    Thread

    Solve M.E. webinar: You + M.E.: A Registry for the Whole ME/CFS Community, July 30th, 2020

    The You + M.E. Registry and Biobank is a collection of patient-reported data and biosamples (e.g. blood) from people living with myalgic...
    Thread by: Andy, Jul 25, 2020, 0 replies, in forum: General ME/CFS News
  16. ahimsa
    Thread

    USA: Rep. Jamie Raskin introduces legislation to address potential rise in ME/CFS from COVID-19 pandemic

    Raskin Introduces Legislation to Address America’s Hidden Health Crisis CDC labels chronic fatigue syndrome “America’s hidden health crisis” as...
    Thread by: ahimsa, Jun 4, 2020, 14 replies, in forum: General ME/CFS News
  17. Emily Taylor
    Thread

    Solve M.E. Announces Oved Amitay as President and CEO

    [IMG] [IMG] Solve M.E. Announces Oved Amitay as President and Chief Executive Officer Dear Emily, With your support, Solve M.E. has taken...
    Thread by: Emily Taylor, May 21, 2020, 0 replies, in forum: General ME/CFS News
  18. Emily Taylor
    Thread

    ME/CFS Advocacy Day is TODAY!

    [IMG] Today is ME/CFS Advocacy Day! Not participating in meetings? If you have a few minutes throughout the day, you can still support and...
    Thread by: Emily Taylor, Apr 21, 2020, 1 replies, in forum: Advocacy Action Alerts
  19. Andy
    Thread

    Solve M.E. partners with University of California to issue an ME/CFS-specific funding announcement

    Solve M.E. is partnering with the University of California, Los Angeles (UCLA) Iris Cantor Women’s Health Center to issue an ME/CFS-specific...
    Thread by: Andy, Mar 31, 2020, 1 replies, in forum: BioMedical ME/CFS News
  20. Andy
    Thread

    Check out the Solve M.E. 2020 ME/CFS Advocacy Week D.C. schedule!

    From a Solve email. It’s finally here – our 2020 ME/CFS Advocacy Week D.C. schedule! Once again, we’ll be bringing the national ME/CFS community...
    Thread by: Andy, Feb 8, 2020, 1 replies, in forum: Advocacy Projects and Campaigns
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