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UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

Discussion in 'General ME/CFS news' started by Sasha, Jun 6, 2018.

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Page 5 of 22
  1. chrisb

    chrisb Senior Member (Voting Rights)

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    4,602
    That must be what accounts for Sharpe's recent change of tone. It must have been slowly dawning upon him that he may not have heard the last of that.....
     
    chrisb, Jun 21, 2018
    #81
    MEMarge, Woolie, Barry and 10 others like this.
  2. LightHurtsME

    LightHurtsME Senior Member (Voting Rights)

    Messages:
    122
    Location:
    UK
    Exactly. And a quotable quote for ME sufferers to demonstrate how we and our supporters are treated by some.
     
    LightHurtsME, Jun 21, 2018
    #82
    MEMarge, MeSci, Woolie and 14 others like this.
  3. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    5,255
    A speaker saying that eminent scientists are questioning the PACE trial.
     
    Hoopoe, Jun 21, 2018
    #83
    MEMarge, MeSci, Woolie and 17 others like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,277
    Location:
    UK West Midlands
    yes in many organisations it would be gross misconduct and a sackable offence for bringing the organisation into disrepute
     
    NelliePledge, Jun 21, 2018
    #84
    MEMarge, arewenearlythereyet, EzzieD and 9 others like this.
  5. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,277
    Location:
    UK West Midlands
    Ed Davey going on GET and why is it still recommended
     
    NelliePledge, Jun 21, 2018
    #85
    MEMarge, MeSci, Woolie and 11 others like this.
  6. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    Thanks. Recognised the face, couldn't name!
     
    AR68, Jun 21, 2018
    #86
    MEMarge, Inara, Invisible Woman and 3 others like this.
  7. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
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    Location:
    UK West Midlands
    Ed Davey saying people will take Govt to court for GET causing worsening of illness
     
    Last edited: Jun 21, 2018
    NelliePledge, Jun 21, 2018
    #87
    MEMarge, MeSci, Woolie and 17 others like this.
  8. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,277
    Location:
    UK West Midlands
    Anyone know which Minister is the one in the hotseat today?
     
    NelliePledge, Jun 21, 2018
    #88
    Barry, Inara, Invisible Woman and 2 others like this.
  9. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    Twitter should be fun tonight.
     
    AR68, Jun 21, 2018
    #89
    MEMarge, Woolie, andypants and 7 others like this.
  10. NelliePledge

    NelliePledge Moderator Staff Member

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    13,277
    Location:
    UK West Midlands
    IIME have got their Norwich MP championing them
     
    NelliePledge, Jun 21, 2018
    #90
    MEMarge, arewenearlythereyet, BurnA and 6 others like this.
  11. large donner

    large donner Guest

    Messages:
    1,214
    MPs are there to represent the public and their constituents who bring issues to them which they then take into parliament. They are not there to prop up the establishment.

    The man is such a fool!
     
    large donner, Jun 21, 2018
    #91
    MEMarge, Woolie, arewenearlythereyet and 17 others like this.
  12. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    Absolutely needs to happen.
     
    AR68, Jun 21, 2018
    #92
    MeSci, Woolie, mango and 10 others like this.
  13. Londinium

    Londinium Senior Member (Voting Rights)

    Messages:
    270
    Ed Davey's story of a constituent being told 'all ME patients are crazy... except you' ties in exactly with an experience I had. A GP told me 'no, you're properly ill with something you got from India. Not like all those women who just won't get out of bed.'
     
    Londinium, Jun 21, 2018
    #93
    MEMarge, MeSci, Woolie and 25 others like this.
  14. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,277
    Location:
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    loving the 4 folks in Millions Missing Tshirts by the way :thumbup:
     
    NelliePledge, Jun 21, 2018
    #94
    MEMarge, MeSci, Woolie and 18 others like this.
  15. Keela Too

    Keela Too Senior Member (Voting Rights)

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    1,304
    Location:
    Sally Burch - Northern Ireland
    This is going well. I was expecting some resistance from other view points, but they don't seem to be starting yet??
     
    Keela Too, Jun 21, 2018
    #95
    MEMarge, arewenearlythereyet, Hutan and 11 others like this.
  16. Trish

    Trish Moderator Staff Member

    Messages:
    52,310
    Location:
    UK
    Dorset ME support group being spoken about by a local MP.
    Telling 2 constituents stories.
    Child constituent talked about mood and anxiety.
     
    Trish, Jun 21, 2018
    #96
    Barry, andypants, Inara and 4 others like this.
  17. Trish

    Trish Moderator Staff Member

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    52,310
    Location:
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    Charles Shepherd's MP talking now.
    Medical education needed.
     
    Trish, Jun 21, 2018
    #97
    Woolie, Barry, arewenearlythereyet and 9 others like this.
  18. Sarah

    Sarah Senior Member (Voting Rights)

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    1,494
    I think it is Dr. Eliana Lacerda of the CureME team to Dr. Shepherd's right.
     
    Sarah, Jun 21, 2018
    #98
    Indigophoton, Inara, MSEsperanza and 4 others like this.
  19. Trish

    Trish Moderator Staff Member

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    52,310
    Location:
    UK
    Good speaker now quoting US and WHO reports and demolishing 'yuppie flu' nonsense. Says sufferers haven't had a voice and it is MP's responsibility to give them a voice.
     
    Trish, Jun 21, 2018
    #99
    MEMarge, MeSci, Woolie and 19 others like this.
  20. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Location:
    betwixt and between
    MSEsperanza, Jun 21, 2018
    #100
    Invisible Woman and Andy like this.
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