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UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

Discussion in 'General ME/CFS news' started by Sasha, Jun 6, 2018.

  1. janice

    janice Senior Member (Voting Rights)

    Messages:
    132
    Location:
    U.K.
    I've contacted my MPs parliamentary secretary to ask if he's going and copied in CM's piece from Politics Today.

    Plus contacted his senior advisor with the above plus estimate of how many constituents could be affected and the economic cost to UK annually. Fingers crossed.
     
  2. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    2,187
    Location:
    UK
    How do you find out who your MPs parliamentary secretary and senior advisor are and their contact details?
     
  3. janice

    janice Senior Member (Voting Rights)

    Messages:
    132
    Location:
    U.K.
    I had a face to face conversation with them earlier in the year to try to raise their awareness about my experiences over the years from NHS and DWP.

    Unfortunately I've heard today that neither are available to attend.
    :banghead:
     
  4. Andy

    Andy Committee Member

    Messages:
    21,956
    Location:
    Hampshire, UK
  5. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
  6. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
  7. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
  8. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
  9. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    5,255
  10. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    In the Jubilee café waiting for the debate upstairs. Managed to get here.
     
    Woolie, Barry, Atle and 25 others like this.
  11. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    Not that I'm following him (!) but Charles Shepherd is a few feet away from me so he's here.
     
    MEMarge, Woolie, Barry and 18 others like this.
  12. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    We're being allowed in at 13:25. We're queuing outside the room.
     
  13. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    I won't write too much during the session (because you'll no doubt be watching it online) but might chip in with observations here and there.
     
    Woolie, MeSci, MarcNotMark and 10 others like this.
  14. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Think I'll be too nervous to watch live, so will wait for the transcript. Really hope it's more of a hammering of PACE (and the failure to respond properly to critics) than an exercise in sympathetic but vague 'awareness raising'.
     
    MEMarge, Woolie, EzzieD and 5 others like this.
  15. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    Monaghan has just entered.
     
    MEMarge, Hutan, EzzieD and 5 others like this.
  16. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
  17. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    Sat down. I'm in a white top. Meeting starts.
     
  18. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    6,684
    Location:
    UK
    Not getting video :(

    ETA - appears to be a chrome issue - IE gives video
     
    Invisible Woman likes this.
  19. Trish

    Trish Moderator Staff Member

    Messages:
    52,324
    Location:
    UK
    I can see on the video Charles Shepherd and @Jonathan Edwards sitting next to each other in the audience.
     
    MEMarge, Woolie, Barry and 16 others like this.
  20. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,279
    Location:
    UK West Midlands
    can see Charles Shepherd and @Jonathan Edwards there in the public seats quite a few folk in the public seats

    a lot of MPs trying to get their points in early
    CM is talking about Merryn now
     
    MEMarge, Woolie, MeSci and 10 others like this.

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