Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

Adam pwme said:
Thread on Trudies presentation with a 2 min Twitter video



I also did a 5 min highlights video



@dave30th will you be writing an article? I think it might be important given Health Education maybe the biggest provider in England, I think.
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At what point does such behaviour become criminal. I tried looking at the UK clinical psychologists professional body website but could not find anything on professional standards (https://acpuk.org.uk/ )
 
Adam pwme said:
Thread on Trudies presentation with a 2 min Twitter video



I also did a 5 min highlights video



@dave30th will you be writing an article? I think it might be important given Health Education maybe the biggest provider in England, I think.
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"Trudie Chalder (PACE trial) is training health professionals on Long Covid. Describes Post Exertional Malaise as "Health anxiety" and an "Extreme behavioural response" states "Exercise is clearly not damaging" and recommends "Increasing exercise""

This is the exact sort of thing we should be filing for future reference in the event of any legal action down the line. And to retain any screenshots etc. of anything relevant in case it gets pulled down. Amazing!
 
Adam pwme said:
Thread on Trudies presentation with a 2 min Twitter video



I also did a 5 min highlights video



@dave30th will you be writing an article? I think it might be important given Health Education maybe the biggest provider in England, I think.
Click to expand...


I just thought I'd add that, when doing a video with excerpts like this on social media it could be worth adding a link to the full talk so everyone can see that for themselves? Any editing will change things a bit but additionally linking to the original video makes it more difficult for anyone to complain about that.
 
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Mithriel said:
So someone gets worse with your treatment but that is not any reason to rethink your treatment since it must be the patient that is at fault because you are right and no amount of evidence will change your mind.
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strategist said:
"not being able to" is not the problem, at least for me. It's the symptom exacerbation that occurs and it isn't improved with training.

If we could increase activities this easily we wouldn't need any treatment because we could return to a normal life just by doing more. ;)

Somehow Chalder has managed the astonishing feat of completely misunderstanding patients for decades. How is this even possible?
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Mithriel said:
Yes, it is not just that their treatments don't work, they have absolutely no idea of what they are trying to treat.
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It appears that they simply cannott hear any concept that would reveal their ideas to not be backed up by fact. It is inconceivable to them that they are wrong, that they even can be wrong, it's not even possible in their world, so any information that would suggest that they are, simply will not go in. It cannot be absorbed, it does not exist. Their minds are made of steel, covered with teflon.

To interpret being confined to bed for a fortnight as a 'behavioural' response is just flabbergasting, and at the same time insultingly predictable. It's spectacularly obtuse.

When someone says 'cant get out of bed' why can she not understand the word cant, it's plain english, it doesnt mean 'didnt want to' or 'was too scared to', or 'thought i shouldnt because of a weird idea i picked up because of 'reasons''.... it means CANT... C A N T .....

ie you try to stand up & collapse on floor, no matter how hard you want to, how much you believe you can, or how hard you try. Body will not support you & you collapse, then you crawl to the toilet, a few ft at a time.
- thats what i mean when i say 'cant' anyway.

It's not behavioural.

The frustration is so hard to bear.
 
Ariel said:
Where is the pushback from so-called long covid advocates?
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In my opinion, that's an unfair comment. We are just over a year into the existence of Long Covid as an entity, so I think the amount of advocacy that LC patients are doing already is impressive. The fact that Chalder's rubbish isn't high on their radar is unsurprising, given all that is new that they are having to deal with.
 
Andy said:
In my opinion, that's an unfair comment. We are just over a year into the existence of Long Covid as an entity, so I think the amount of advocacy that LC patients are doing already is impressive. The fact that Chalder's rubbish isn't high on their radar is unsurprising, given all that is new that they are having to deal with.
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You are right. I was just quite upset. Sorry! :/
 
Andy said:
In my opinion, that's an unfair comment. We are just over a year into the existence of Long Covid as an entity, so I think the amount of advocacy that LC patients are doing already is impressive. The fact that Chalder's rubbish isn't high on their radar is unsurprising, given all that is new that they are having to deal with.
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I agree. There is a massive learning curve, which is all the steeper in the early days.
 
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