Sheffield ME and FM conference 18 Oct, David Tuller: Sheffield - 23/24 Oct 2018

[Sly Saint]

Sheffield ME & Fibromyalgia Group

We are excited to be hosting Dr. David Tuller, DrPH, discussing scientific integrity and clinical trials in myalgic encephalomyelitis.

Join us at The Leopold Hotel, 23rd October, 7pm, for what should be a fascinating evening.
RSVP on the event page.

Dr Tuller has been instrumental in bringing to light bad science and raising awareness amongst a wider audience, and his work to hold the field of ME research to account continues.





Conference on Oct 18th with Dr Charles Shepherd



eta: Wesselys home town

 

[Barry]

eta: Wesselys home town

Better make sure he gets an invite then.

 

[Gecko]

You got there before me @Sly Saint!

There are to be 2 talks by David Tuller, an evening one and then an afternoon one the next day:

RSVP on Eventbrite:

Evening talk on the 23rd, 7pm, Leopold Hotel. Aimed slightly more at health professionals, academics and other interested parties, but open to anyone to come along:
https://www.eventbrite.com/e/scient...with-dr-david-tuller-drph-tickets-50823927736
This event is sponsored by the Centre for Welfare Reform and Healthwatch Sheffield.

Afternoon talk on the 24th, 2pm doors open, 2:30pm David's talk, The Circle, 33 Rockingham Lane. Aimed slightly more at pwme, their friends, family and allies but again anyone is welcome:
https://www.eventbrite.com/e/dr-dav...-on-clinical-trials-in-me-tickets-50711206584

And the Sheffield ME & Fibromyalgia Group Conference on the 18th, 2pm, The Circle, 33 Rockingham Lane, again anyone welcome, no need to RSVP anywhere for this, just turn up. [Edit: with the wonderful Dr Charles Shepherd speaking!]

All events are free.
The group is hoping to livestream all of these through the facebook page and have them accessible to view after.
Feel free to message me if any questions, or need help with transport or something and I'll make sure your message gets to the right person. (or you can email info@sheffieldmegroup.co.uk)

 

[Trish]

eta: Wesselys home town

I think it was his childhood home town. As far as I know he's London based - or at least his job is.

 

[Sly Saint]

I think it was his childhood home town. As far as I know he's London based - or at least his job is.

Who is Simon Wessely?

 

[NelliePledge]

I’m hoping to go to the afternoon one

ETA have had to rethink as I have to travel to an important family get together the following week and need to rest up for that travelling 2 consecutive weeks is beyond current capacity.

 

[Gecko]

Sheffield Healthwatch are promoting Davids talks

https://www.healthwatchsheffield.co...nical-trials-in-myalgic-encephalomyelitis-me/

Edit to add their tweet:

 

[Snowdrop]

I wonder if there is a BPS article already written and waiting in the wings as a non-rebuttal rebuttal?

 

[Gecko]

Conference is today!
Sneak preview of Charles Shepherd's PowerPoint suggests it'll be a great talk.

Livestream should be on this page: https://m.facebook.com/sheffieldmeandfibromyalgiagroup

We'll upload the recording to YouTube afterwards for those who don't have Facebook.

 

[Gecko]

Livestream of Dr Charles Shepherd starting now here: youtube.com/watch?v=gxM3jR… Topics include #research, #MedEd, diagnosis, @NICEGetInvolved guidelines, Politics and a bit about the @MEAssociation. Tune in now! #pwme #Fibromyalgia

Facebook was grumpy so on YouTube.

 

[Gecko]

 

[NelliePledge]

Livestream of Dr Charles Shepherd starting now here: youtube.com/watch?v=gxM3jR… Topics include #research, #MedEd, diagnosis, @NICEGetInvolved guidelines, Politics and a bit about the @MEAssociation. Tune in now! #pwme #Fibromyalgia

Facebook was grumpy so on YouTube.

Thanks for letting us know I automatically assumed it was me being incapable rather than FB should have known better.

 

[Gecko]

Q&A happening now:

 

[Gecko]

In case anyone wants to share on Facebook, it's now uploaded as a native video there too.

 

[Gecko]

David's first talk in Sheffield will be starting at 7pm this evening. I'll post link to livestream here when it does!

 

[Gecko]

Livestream actually on Facebook this time. Hopefully will reach more people that way! Here's the link:

 

[Gecko]

Sorry bit late. Q&A happening now:

 

[Gecko]

Probs can't keep up with questions on here as well as elsewhere, but feel free to come over and ask on the Facebook site. I'll try to check back here a little though.

 

[Esther12]

Thanks - the vid had stopped when I went to look, so I'd assumed I'd missed it. Hope it's all going well. Thanks to all involved.

 

[Gecko]

Q&A just finished. Vids should all be available on Facebook and I'll upload to the group youtube account here when I have a bit on energy! https://www.youtube.com/channel/UC33AO8LkECNjfeZbEl1ICgQ


Plus David is doing his second talk tomorrow at 2:30pm.
Also will be livestreamed on our Facebook page.