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News about Long Covid including its relationship to ME/CFS 2020 to 2021

Discussion in 'Long Covid news' started by Hip, Jan 21, 2020.

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  1. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Thank you @Robert 1973. :thumbup:

    Great letter! I think you were right to keep it clear & simple. It's such an absurd claim that it makes a great hook to tempt people to look further into it. Especially, now that so many medics are experiencing the patient perspective for themselves.

    Rest up. Hope you recover soon.
     
    Invisible Woman, Aug 5, 2020
    #981
    ladycatlover, Shinygleamy, Sean and 11 others like this.
  2. John Mac

    John Mac Senior Member (Voting Rights)

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    https://www.biospace.com/article/re...hose-suffering-with-chronic-fatigue-syndrome/
     
    John Mac, Aug 5, 2020
    #982
    MeSci, ScottTriGuy and Invisible Woman like this.
  3. rvallee

    rvallee Senior Member (Voting Rights)

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    Brain fog, phantom smells and tinnitus: my experience as a Covid 'long hauler'

    https://www.theguardian.com/comment...tinnitus-my-experience-as-a-covid-long-hauler

    Those were some of my earlier severe symptoms. I lost the ability to read for several weeks, could not make sense of anything. Somehow that was considered "normal", or not of any concern anyway.
    Doctors in TV series when faced with complex cases: we will do everything we can to help you even if it costs us everything.

    Doctors in real life when faced with complex cases: you're fired.
    Decades of controversy over this, with an endless stream of lies and sabotage. Trust the damn patients, our lives literally depend on it, yours don't.
     
    rvallee, Aug 5, 2020
    #983
    ahimsa, MSEsperanza, Snow Leopard and 11 others like this.
  4. Trish

    Trish Moderator Staff Member

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    Trish, Aug 5, 2020
    #984
    ladycatlover, Invisible Woman, MSEsperanza and 7 others like this.
  5. Mij

    Mij Senior Member (Voting Rights)

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    Mij, Aug 5, 2020
    #985
    Invisible Woman, Mithriel, sebaaa and 4 others like this.
  6. Andy

    Andy Committee Member

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    https://www.berkeleywellness.com/he...s-disease/article/and-now-post-covid-syndrome
     
    Andy, Aug 5, 2020
    #986
    Hutan, ladycatlover, hinterland and 16 others like this.
  7. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Aug 5, 2020
    #987
    ladycatlover, hinterland, Mithriel and 17 others like this.
  8. Sean

    Sean Moderator Staff Member

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    "People are then plagued with ongoing exhaustion..."

    Exhaustion is a better word than 'fatigue'.
     
    Sean, Aug 6, 2020
    #988
    NelliePledge, alktipping, EzzieD and 13 others like this.
  9. Andy

    Andy Committee Member

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    Andy, Aug 6, 2020
    #989
    Frankie, alktipping, ukxmrv and 16 others like this.
  10. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Heather Hogan: The Soft Butch That Couldn't (Or: I Got COVID-19 in March and Never Got Better) | Autostraddle

    https://www.autostraddle.com/the-so...i-got-covid-19-in-march-and-never-got-better/
    https://twitter.com/user/status/1291028415072567297


    Code:
    https://twitter.com/theheatherhogan/status/1291028415072567297
    https://twitter.com/user/status/1291075637172736007


    Code:
    https://twitter.com/trishgreenhalgh/status/1291075637172736007
     
    MSEsperanza, Aug 6, 2020
    #990
    Keebird, ahimsa, Michelle and 13 others like this.
  11. Amw66

    Amw66 Senior Member (Voting Rights)

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    Cognitive dissonance is a class act to watch in real time
     
    Amw66, Aug 6, 2020
    #991
    alktipping, lunarainbows, rvallee and 3 others like this.
  12. obeat

    obeat Senior Member (Voting Rights)

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    682
    Does anyone know Prof Trisha Greenhalgh position on ME?

    She's based in Oxford.......
     
    obeat, Aug 6, 2020
    #992
    sebaaa, lunarainbows, Invisible Woman and 1 other person like this.
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Aug 6, 2020
    #993
    alktipping, Invisible Woman, MSEsperanza and 1 other person like this.
  14. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Last edited: Aug 6, 2020
    Tom Kindlon, Aug 6, 2020
    #994
    Kitty, MEMarge, Woolie and 13 others like this.
  15. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    2,203
    Tom Kindlon, Aug 6, 2020
    #995
    MEMarge, alktipping, Invisible Woman and 4 others like this.
  16. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Healthy Women: COVID-19 "Long-Haulers" Are Finally Being Heard

    Unfortunately, if history repeats itself, a number of the patients may end up with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), a devastating chronic neuroimmune disease that disables up to 2.5 million Americans and 17 to 20 million people worldwide — approximately 75% of whom are women.

    "Looking at the history of SARS (severe acute respiratory syndrome) and MERS (Middle East respiratory syndrome), the other coronaviruses, there was a high rate of people who ended up remaining sick for a long time," said Linda Tannenbaum, founder and CEO/president of Open Medicine Foundation.
     
    Kalliope, Aug 6, 2020
    #996
    Kitty, ukxmrv, Michelle and 10 others like this.
  17. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Aug 6, 2020
    #997
    Kitty, MEMarge, alktipping and 5 others like this.
  18. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Aug 6, 2020
    #998
    Mithriel, Kitty, MEMarge and 6 others like this.
  19. rvallee

    rvallee Senior Member (Voting Rights)

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    Shocking that something that's been the norm for decades is happening. Greenhalgh talks a good talk sometimes but is very much part of the problem, siding with the BPS brigade against us when we say the exact same things and seemingly unconcerned with the consequences of systemic illness denial despite having experienced it herself. This medicine-by-exemption thing is really, really bad. All patients are equal but some are more equal than others.
     
    Last edited: Aug 6, 2020
    rvallee, Aug 6, 2020
    #999
    Mithriel, Snow Leopard, Kitty and 7 others like this.
  20. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    see
    https://www.s4me.info/threads/healt...ve-chronic-fatigue-syndrome.6461/#post-278513
     
    Sly Saint, Aug 6, 2020
    #1000
    Kitty, MEMarge, alktipping and 4 others like this.
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