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News about Long Covid including its relationship to ME/CFS 2020 to 2021

Discussion in 'Long Covid news' started by Hip, Jan 21, 2020.

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  1. Sean

    Sean Moderator Staff Member

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    Sean, Jul 28, 2020
    #901
    Anna H, Robert 1973, Sid and 20 others like this.
  2. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    Peter Trewhitt, Jul 28, 2020
    #902
    MEMarge, alktipping, ScottTriGuy and 9 others like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Kalliope, Jul 28, 2020
    #903
    MEMarge, Snow Leopard, ScottTriGuy and 8 others like this.
  4. Kalliope

    Kalliope Senior Member (Voting Rights)

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    World Neurology - The Official Newsletter Of The World Federation Of Neurology - has an article by Avindra Nath and B. Jeanne Billioux titled: Long-Haul COVID.

    Many of these symptoms overlap with those of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The cause of ME/CFS remains unknown despite decades of research of the syndrome. Many of these patients similarly report a viral infection as a trigger, but since they come to our attention months and years after symptom onset, it is impossible to know what may have triggered the symptoms.

    Long-Haul COVID thus represents as excellent opportunity to study the pathophysiology of ME/CFS that may have broader implications.

    Article begins at page 1 and continues at page 3:
    https://wfneurology.org/private/downloads/dmOeL3cfAVtVLhXhvm1Rnw/wn_jun_jul_20.pdf
     
    Kalliope, Jul 28, 2020
    #904
    MEMarge, Michelle, ScottTriGuy and 11 others like this.
  5. Trish

    Trish Moderator Staff Member

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    Trish, Jul 28, 2020
    #905
    MEMarge, alktipping, Hutan and 4 others like this.
  6. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    A large German newspaper dedicates page 3 to a personal story about a friend with ME. Potential association of Covid 19 sequelae with ME only marginally mentioned in the text, but prominently in the caption:

    First it was a scratchy throat. Soon Nora could barely stand up, could barely speak. There's no cure. But with Corona, maybe more cases soon.

    Google translate:
    Chronic fatigue syndrome: How an illness made my friend disappear

    https://twitter.com/user/status/1287972901023625218


    Code:
    https://twitter.com/Tagesspiegel/status/1287972901023625218
    https://www.tagesspiegel.de/gesells...ine-freundin-verschwinden-liess/26042084.html

    Edited to fix Twitter link.
     
    Last edited: Jul 28, 2020
    MSEsperanza, Jul 28, 2020
    #906
    Joh, Anna H, Sid and 20 others like this.
  7. Leila

    Leila Senior Member (Voting Rights)

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    It's a great article, and finally with a good picture (not some tired yuppie in front of a laptop.
     
    Leila, Jul 28, 2020
    #907
    Joh, Hutan, MSEsperanza and 6 others like this.
  8. rvallee

    rvallee Senior Member (Voting Rights)

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    Last edited: Jul 28, 2020
    rvallee, Jul 28, 2020
    #908
    Sid, Snow Leopard, alktipping and 7 others like this.
  9. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Yes, I think you're right, but I wonder if there might be more?
     
    Kalliope, Jul 28, 2020
    #909
    Kitty and Dolphin like this.
  10. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Yeah, I wonder too. There are no quotes from Garner or Hornig in it.
     
    Dolphin, Jul 28, 2020
    #910
    MEMarge, Kitty and Kalliope like this.
  11. Cheshire

    Cheshire Moderator Staff Member

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    Trial By Error: Disinformation About Treatments for Post-Covid Syndrome by @dave30th


    https://www.virology.ws/2020/07/28/trial-by-error-disinformation-about-post-covid-syndrome/
     
    Cheshire, Jul 28, 2020
    #911
    Anna H, Sid, MEMarge and 19 others like this.
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Jul 28, 2020
    #912
    MEMarge, alktipping, Invisible Woman and 2 others like this.
  13. Andy

    Andy Committee Member

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    Andy, Jul 28, 2020
    #913
    ahimsa, MEMarge, Esther12 and 11 others like this.
  14. rvallee

    rvallee Senior Member (Voting Rights)

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    rvallee, Jul 28, 2020
    #914
    MEMarge, Hutan, Kitty and 2 others like this.
  15. Dolphin

    Dolphin Senior Member (Voting Rights)

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    https://www.jobs.nhs.uk/xi/vacancy/916084835


    via:
    https://twitter.com/user/status/1288225209053589504
     
    Dolphin, Jul 29, 2020
    #915
    Simbindi, MEMarge, Michelle and 5 others like this.
  16. 2kidswithME

    2kidswithME Established Member (Voting Rights)

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    Thanks for posting this @Dolphin. I wasn’t aware so have queried with our committee to ask if others knew the community service was advertising.

    Dismayed to see one of the options was for a mental health nurse, along with OT or Physio.

    FYI applications closed last week, link in tweet didn’t work, but yours did.

    Priscilla
    OMEGA chair
     
    2kidswithME, Jul 29, 2020
    #916
    Simbindi, MEMarge, Amw66 and 5 others like this.
  17. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Jul 29, 2020
    #917
    sebaaa, MEMarge, Kitty and 2 others like this.
  18. Trish

    Trish Moderator Staff Member

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    Trish, Jul 29, 2020
    #918
    alktipping, Hutan, Kitty and 3 others like this.
  19. Andy

    Andy Committee Member

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    https://blogs.bmj.com/bmj/2020/07/28/nisreen-a-alwan-what-exactly-is-mild-covid-19/

    https://twitter.com/user/status/1288371749374119937
     
    Andy, Jul 29, 2020
    #919
    Simbindi, Anna H, sebaaa and 14 others like this.
  20. wastwater

    wastwater Senior Member (Voting Rights)

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    347
    I was wondering if I can sneak back into the system by calling myself a long haul EBV
     
    wastwater, Jul 29, 2020
    #920
    Joh, Simbindi, Anna H and 17 others like this.
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