News about Long Covid including its relationship to ME/CFS 2020 to 2021

Status
Not open for further replies.
World Neurology - The Official Newsletter Of The World Federation Of Neurology - has an article by Avindra Nath and B. Jeanne Billioux titled: Long-Haul COVID.

Many of these symptoms overlap with those of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The cause of ME/CFS remains unknown despite decades of research of the syndrome. Many of these patients similarly report a viral infection as a trigger, but since they come to our attention months and years after symptom onset, it is impossible to know what may have triggered the symptoms.

Long-Haul COVID thus represents as excellent opportunity to study the pathophysiology of ME/CFS that may have broader implications.

Article begins at page 1 and continues at page 3:
https://wfneurology.org/private/downloads/dmOeL3cfAVtVLhXhvm1Rnw/wn_jun_jul_20.pdf
 
A large German newspaper dedicates page 3 to a personal story about a friend with ME. Potential association of Covid 19 sequelae with ME only marginally mentioned in the text, but prominently in the caption:

First it was a scratchy throat. Soon Nora could barely stand up, could barely speak. There's no cure. But with Corona, maybe more cases soon.

Google translate:
Chronic fatigue syndrome: How an illness made my friend disappear



Code: 
https://twitter.com/Tagesspiegel/status/1287972901023625218

https://www.tagesspiegel.de/gesells...ine-freundin-verschwinden-liess/26042084.html

Edited to fix Twitter link.
 
Last edited:
MSEsperanza said:
A large German newspaper dedicates page 3 to a personal story about a friend with ME. Potential association of Covid 19 sequelae with ME only marginally mentioned in the text, but prominently in the caption:

"First it was a scratchy throat. Soon Nora could barely stand up, could barely speak. There's no cure. But with Corona, maybe more cases soon."

https://twitter.com/Tagesspiegel/status/1287972901023625218

Code: 
https://twitter.com/Tagesspiegel/status/1287972901023625218

https://www.tagesspiegel.de/gesells...ine-freundin-verschwinden-liess/26042084.html

Google translate:
https://translate.google.com/translate?sl=auto&tl=en&u=https://www.tagesspiegel.de/gesellschaft/chronisches-erschoepfungssyndrom-wie-eine-krankheit-meine-freundin-verschwinden-liess/26042084.html

(Replace 'girlfriend' with 'friend'.)
Click to expand...

It's a great article, and finally with a good picture (not some tired yuppie in front of a laptop.
 
Kalliope said:
The Wall Street Journal:
Suffering From Covid for Month - and Battling Murky Test Results Too

The article is paywalled, but seems Mady Hornig and Paul Garner were interviewed
Click to expand...

I think it's this one but not much meat to it:

"The key is to take these patients seriously". Indeed it should be. Unfortunately, medicine is designed for the opposite and to give up at the first hint of adversity.

EeBVLtGVAAEe8ow
 
Last edited:
Trial By Error: Disinformation About Treatments for Post-Covid Syndrome by @dave30th

Professor Trudie Chalder is a lead investigator of a series of studies of rehabilitative interventions for so-called “medically unexplained symptoms” that have failed to meet expectations but have nevertheless been promoted as demonstrating treatment success. The piece of crap known as the PACE trial is a prime example. Most famously, Professor Chalder declared at the press conference for the first PACE results, published in 2011 in The Lancet, that more than twice as many people in the cognitive behavior therapy and graded exercise therapy groups “got back to normal” compared to those in the other groups. This statement was false and scientifically indefensible.

Professor Chalder has never publicly acknowledged or apologized for this gross misrepresentation of her study’s findings, at least as far as I have seen. Her assertion was widely disseminated by UK journalists. That is not surprising, since the British press corps has largely served as a stenographic service for the nonsense promoted by Professor Chalder and other leading lights of the biopsychosocial ideological brigades.
Click to expand...


https://www.virology.ws/2020/07/28/trial-by-error-disinformation-about-post-covid-syndrome/
 
https://www.jobs.nhs.uk/xi/vacancy/916084835
CFS/ME Specialist Practitioner
Job Reference: 267-CH2482797
Employer:
Oxford Health NHS Foundation Trust
Department:
Oxfordshire CFS/ME Service
Location:
Witney
Salary:
£31,365 to £37,890 per annum
Click to expand...



We are seeking an autonomous healthcare professional to join this dynamic specialist team at a very interesting time when fatigue management is high on the agenda following the Covid-19 pandemic.

You will be an experienced clinician who has an understanding of CFS/ME or fatigue management approaches and is enthusiastic about working in this specialist area.

The service provides diagnosis, management advice, education and rehabilitation for adults and young people (from age 14) with CFS/ME, both individually and in groups.

It is also currently developing ways to support people who require rehabilitation following covid-19 in relation to fatigue and activity management.
Click to expand...
via:
 
Thanks for posting this @Dolphin. I wasn’t aware so have queried with our committee to ask if others knew the community service was advertising.

Dismayed to see one of the options was for a mental health nurse, along with OT or Physio.

FYI applications closed last week, link in tweet didn’t work, but yours did.

Priscilla
OMEGA chair
 
We still know very little about covid-19, but we do know that we cannot fight what we do not measure

It is the morning after. I went out for a 20 minute slow walk yesterday evening with my little girl who was desperate to see the flowers on the way. My exercise capacity is still terrible, and I knew that by doing that I would pay the price the day after. Indeed, I woke up with the familiar chest heaviness and utter exhaustion which gets worse by sitting at my desk to work.

This has been a pattern since the start of my covid-19 symptoms in the second half of March. Of course, I was never tested because community testing stopped altogether in the UK on the 12 March so I have no proof of my infection other than the accounts of thousands of people who are describing a similar experience of prolonged, fluctuating, and debilitating symptoms lasting for months. We are the unrecorded. The pandemic has been measured in deaths and in hospital admissions. I struggle to find any precise case definition for “mild” covid-19, which is what I supposedly had and still have not fully recovered from.
Click to expand...
https://blogs.bmj.com/bmj/2020/07/28/nisreen-a-alwan-what-exactly-is-mild-covid-19/

 
Status
Not open for further replies.
Back
Top Bottom