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Possibility of ME or PVFS after COVID-19, Long Covid

Discussion in 'Epidemics (including Covid-19)' started by Hip, Jan 21, 2020.

  1. voner

    voner Established Member (Voting Rights)

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    I was listening to TWIV #645 and about 3:45 into the podcast Vincent Racaniello says that he recently spoke with Ian Lipkin (who had Covid back in the March timeframe) and asked him if he had any lingering symptoms and Dr. Lipkin said that "I am always exhausted“.
     
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  2. rvallee

    rvallee Senior Member (Voting Rights)

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    All too familiar. This could all have been avoided, had it not been happening for decades with the same outcomes.


    Coronavirus ‘long-haulers’ are losing their jobs, say patients

    https://www.thetimes.co.uk/edition/...-are-losing-their-jobs-say-patients-zxlpv2fpf

    That weird suggestion would imply that many people have undiagnosed conditions. Which, presenting like this, would explicitly not be diagnosed as they would be in the MUS/BPS/FND void of doom. Either that or medicine makes A LOT of mistakes, which is ironically true.
    There's totally an app for that. No services. Just an app. Because maybe it's something else. Maybe it's the wind. Maybe you're just a type A personality. Maybe you think too much. Maybe you don't think at all. Maybe this. Maybe that. Ghosts. Demons. COSMIC RAYS. Just go away, OK?

    It's a common trope in sci-fi to make androids sort of crash by making them think about an unsolvable paradigm. Clearly, humans crash on those, too. All you need is ideology and the brain turns to pudding.
     
  3. chrisb

    chrisb Senior Member (Voting Rights)

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    Perhaps failure to test was a strategic decision.
     
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  4. Dolphin

    Dolphin Senior Member (Voting Rights)

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    This was just posted to a UK-based list I’m on. I haven’t watched the programmer myself
    —-
    Channel 4 news programme this evening emphasised exercise being good for people recovering from Covid-19. Much of the film shown is from the national velodrome of Wales in Newport.

    For coronavirus patients who have been treated in hospital, being discharged is often not the end of their ordeal.

    Especially for the thousands of people who have been critically ill and ventilated, many of them needing extensive rehabilitation.

    At the national velodrome of Wales in Newport, a new service has been launched to help people through their physical and psychological recovery.

    It is also enabling survivors to share their experiences with others going through the same process.

    https://www.channel4.com/news/new-service-launched-in-newport-to-help-covid-patients-recover

    More of this report here -
     
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  5. Wonko

    Wonko Senior Member (Voting Rights)

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    What could possibly go wrong....
     
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  6. alex3619

    alex3619 Senior Member (Voting Rights)

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    ... if only there were some other illness with a long list of all the things that go wrong, both in patients and the medical system ...
     
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  7. Dolphin

    Dolphin Senior Member (Voting Rights)

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  8. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

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    And yet another 'covid long-hauler' with classic ME symptoms:

     
    Last edited: Jul 28, 2020
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  9. Sean

    Sean Senior Member (Voting Rights)

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    Anna H, Robert 1973, Sid and 20 others like this.
  10. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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  11. Kalliope

    Kalliope Senior Member (Voting Rights)

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  12. Kalliope

    Kalliope Senior Member (Voting Rights)

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    World Neurology - The Official Newsletter Of The World Federation Of Neurology - has an article by Avindra Nath and B. Jeanne Billioux titled: Long-Haul COVID.

    Many of these symptoms overlap with those of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The cause of ME/CFS remains unknown despite decades of research of the syndrome. Many of these patients similarly report a viral infection as a trigger, but since they come to our attention months and years after symptom onset, it is impossible to know what may have triggered the symptoms.

    Long-Haul COVID thus represents as excellent opportunity to study the pathophysiology of ME/CFS that may have broader implications.


    Article begins at page 1 and continues at page 3:
    https://wfneurology.org/private/downloads/dmOeL3cfAVtVLhXhvm1Rnw/wn_jun_jul_20.pdf
     
  13. Trish

    Trish Moderator Staff Member

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  14. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    A large German newspaper dedicates page 3 to a personal story about a friend with ME. Potential association of Covid 19 sequelae with ME only marginally mentioned in the text, but prominently in the caption:

    First it was a scratchy throat. Soon Nora could barely stand up, could barely speak. There's no cure. But with Corona, maybe more cases soon.

    Google translate:
    Chronic fatigue syndrome: How an illness made my friend disappear



    Code:
    https://twitter.com/Tagesspiegel/status/1287972901023625218
    https://www.tagesspiegel.de/gesells...ine-freundin-verschwinden-liess/26042084.html

    Edited to fix Twitter link.
     
    Last edited: Jul 28, 2020
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  15. Leila

    Leila Senior Member (Voting Rights)

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    It's a great article, and finally with a good picture (not some tired yuppie in front of a laptop.
     
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  16. rvallee

    rvallee Senior Member (Voting Rights)

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    I think it's this one but not much meat to it:

    "The key is to take these patients seriously". Indeed it should be. Unfortunately, medicine is designed for the opposite and to give up at the first hint of adversity.

    [​IMG]
     
    Last edited: Jul 28, 2020
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  17. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Yes, I think you're right, but I wonder if there might be more?
     
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  18. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Yeah, I wonder too. There are no quotes from Garner or Hornig in it.
     
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  19. Cheshire

    Cheshire Moderator Staff Member

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    Trial By Error: Disinformation About Treatments for Post-Covid Syndrome by @dave30th


    https://www.virology.ws/2020/07/28/trial-by-error-disinformation-about-post-covid-syndrome/
     
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  20. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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