1. Guest, the 'News in Brief' for the week beginning 15th February 2021 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Possibility of ME or PVFS after COVID-19, Long Covid

Discussion in 'Epidemics (including Covid-19)' started by Hip, Jan 21, 2020.

  1. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    8,296
    Likes Received:
    48,075
    Thank you @Robert 1973. :thumbup:

    Great letter! I think you were right to keep it clear & simple. It's such an absurd claim that it makes a great hook to tempt people to look further into it. Especially, now that so many medics are experiencing the patient perspective for themselves.

    Rest up. Hope you recover soon.
     
  2. John Mac

    John Mac Senior Member (Voting Rights)

    Messages:
    426
    Likes Received:
    5,148
    https://www.biospace.com/article/re...hose-suffering-with-chronic-fatigue-syndrome/
     
  3. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    5,704
    Likes Received:
    45,717
    Location:
    Canada
    Brain fog, phantom smells and tinnitus: my experience as a Covid 'long hauler'

    https://www.theguardian.com/comment...tinnitus-my-experience-as-a-covid-long-hauler

    Those were some of my earlier severe symptoms. I lost the ability to read for several weeks, could not make sense of anything. Somehow that was considered "normal", or not of any concern anyway.
    Doctors in TV series when faced with complex cases: we will do everything we can to help you even if it costs us everything.

    Doctors in real life when faced with complex cases: you're fired.
    Decades of controversy over this, with an endless stream of lies and sabotage. Trust the damn patients, our lives literally depend on it, yours don't.
     
  4. Trish

    Trish Moderator Staff Member

    Messages:
    30,509
    Likes Received:
    145,374
    Location:
    UK
  5. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    4,203
    Likes Received:
    21,920
  6. Andy

    Andy Committee Member & Outreach

    Messages:
    12,026
    Likes Received:
    86,451
    Location:
    Hampshire, UK
    https://www.berkeleywellness.com/he...s-disease/article/and-now-post-covid-syndrome
     
  7. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    1,499
    Likes Received:
    14,294
  8. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    2,918
    Likes Received:
    24,138
    "People are then plagued with ongoing exhaustion..."

    Exhaustion is a better word than 'fatigue'.
     
  9. Andy

    Andy Committee Member & Outreach

    Messages:
    12,026
    Likes Received:
    86,451
    Location:
    Hampshire, UK
  10. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    1,453
    Likes Received:
    10,436
    Location:
    betwixt and between
    Heather Hogan: The Soft Butch That Couldn't (Or: I Got COVID-19 in March and Never Got Better) | Autostraddle

    https://www.autostraddle.com/the-so...i-got-covid-19-in-march-and-never-got-better/


    Code:
    https://twitter.com/theheatherhogan/status/1291028415072567297


    Code:
    https://twitter.com/trishgreenhalgh/status/1291075637172736007
     
    Keebird, ahimsa, Michelle and 13 others like this.
  11. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    4,275
    Likes Received:
    20,036
    Cognitive dissonance is a class act to watch in real time
     
  12. obeat

    obeat Senior Member (Voting Rights)

    Messages:
    598
    Likes Received:
    4,282
    Does anyone know Prof Trisha Greenhalgh position on ME?

    She's based in Oxford.......
     
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    5,698
    Likes Received:
    46,831
    Location:
    UK
  14. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    1,499
    Likes Received:
    14,294
  15. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    1,499
    Likes Received:
    14,294
  16. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    3,860
    Likes Received:
    39,336
    Location:
    Norway
    Healthy Women: COVID-19 "Long-Haulers" Are Finally Being Heard

    Unfortunately, if history repeats itself, a number of the patients may end up with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), a devastating chronic neuroimmune disease that disables up to 2.5 million Americans and 17 to 20 million people worldwide — approximately 75% of whom are women.

    "Looking at the history of SARS (severe acute respiratory syndrome) and MERS (Middle East respiratory syndrome), the other coronaviruses, there was a high rate of people who ended up remaining sick for a long time," said Linda Tannenbaum, founder and CEO/president of Open Medicine Foundation.
     
    Kitty, ukxmrv, Michelle and 10 others like this.
  17. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    1,499
    Likes Received:
    14,294
  18. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    1,499
    Likes Received:
    14,294


     
    Mithriel, Kitty, MEMarge and 6 others like this.
  19. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    5,704
    Likes Received:
    45,717
    Location:
    Canada
    Shocking that something that's been the norm for decades is happening. Greenhalgh talks a good talk sometimes but is very much part of the problem, siding with the BPS brigade against us when we say the exact same things and seemingly unconcerned with the consequences of systemic illness denial despite having experienced it herself. This medicine-by-exemption thing is really, really bad. All patients are equal but some are more equal than others.
     
    Last edited: Aug 6, 2020
    Mithriel, Snow Leopard, Kitty and 7 others like this.
  20. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    5,698
    Likes Received:
    46,831
    Location:
    UK
    see
    https://www.s4me.info/threads/healt...ve-chronic-fatigue-syndrome.6461/#post-278513
     
    Kitty, MEMarge, alktipping and 4 others like this.

Share This Page