Possibility of ME or PVFS after COVID-19, Long Covid

Thank you @Robert 1973.

Great letter! I think you were right to keep it clear & simple. It's such an absurd claim that it makes a great hook to tempt people to look further into it. Especially, now that so many medics are experiencing the patient perspective for themselves.

Rest up. Hope you recover soon.

 

https://www.biospace.com/article/re...hose-suffering-with-chronic-fatigue-syndrome/

 

Brain fog, phantom smells and tinnitus: my experience as a Covid 'long hauler'

https://www.theguardian.com/comment...tinnitus-my-experience-as-a-covid-long-hauler

Those were some of my earlier severe symptoms. I lost the ability to read for several weeks, could not make sense of anything. Somehow that was considered "normal", or not of any concern anyway.

Doctors in TV series when faced with complex cases: we will do everything we can to help you even if it costs us everything.

Doctors in real life when faced with complex cases: you're fired.

Decades of controversy over this, with an endless stream of lies and sabotage. Trust the damn patients, our lives literally depend on it, yours don't.

 

I filled out their survey. Lots of questions about 'fatigue' and what supplements I took and whether they helped me. I might win a prize for my participation!

https://btlscience.typeform.com/to/XnVlAbmJ

 

https://www.berkeleywellness.com/he...s-disease/article/and-now-post-covid-syndrome

 

"People are then plagued with ongoing exhaustion..."

Exhaustion is a better word than 'fatigue'.

 

Heather Hogan: The Soft Butch That Couldn't (Or: I Got COVID-19 in March and Never Got Better) | Autostraddle

https://www.autostraddle.com/the-so...i-got-covid-19-in-march-and-never-got-better/

Code:

https://twitter.com/theheatherhogan/status/1291028415072567297

Code:

https://twitter.com/trishgreenhalgh/status/1291075637172736007

 

Cognitive dissonance is a class act to watch in real time

 

Does anyone know Prof Trisha Greenhalgh position on ME?

She's based in Oxford.......

 

see
https://www.s4me.info/threads/bps-attempts-at-psychologizing-longcovid.16013/page-2#post-275489

 

https://www.usnews.com/news/healthi...vivors-show-signs-of-chronic-fatigue-syndrome

 

http://charlestownbridge.com/2020/08/05/letters-to-the-editor-78/

 

Healthy Women: COVID-19 "Long-Haulers" Are Finally Being Heard

Unfortunately, if history repeats itself, a number of the patients may end up with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), a devastating chronic neuroimmune disease that disables up to 2.5 million Americans and 17 to 20 million people worldwide — approximately 75% of whom are women.

"Looking at the history of SARS (severe acute respiratory syndrome) and MERS (Middle East respiratory syndrome), the other coronaviruses, there was a high rate of people who ended up remaining sick for a long time," said Linda Tannenbaum, founder and CEO/president of Open Medicine Foundation.

 

She has just included me in this tweet:
https://twitter.com/JTSglobalhealth/status/1291376658285580292
https://twitter.com/ISARIC1/status/1291283225030033408

 

Shocking that something that's been the norm for decades is happening. Greenhalgh talks a good talk sometimes but is very much part of the problem, siding with the BPS brigade against us when we say the exact same things and seemingly unconcerned with the consequences of systemic illness denial despite having experienced it herself. This medicine-by-exemption thing is really, really bad. All patients are equal but some are more equal than others.

 

see
https://www.s4me.info/threads/healt...ve-chronic-fatigue-syndrome.6461/#post-278513