News about Long Covid including its relationship to ME/CFS 2020 to 2021

Also not sure if this is the best place either for this link, but I liked this piece by Dr Shepherd on the issues around comparisons between long haul Covid and ME

https://meassociation.org.uk/2020/07/update-post-covid-fatigue-post-long-covid-syndromes-and-me-cfs/

 

The Wall Street Journal:
Suffering From Covid for Month - and Battling Murky Test Results Too

The article is paywalled, but seems Mady Hornig and Paul Garner were interviewed
https://twitter.com/user/status/1287901795189170186

 

World Neurology - The Official Newsletter Of The World Federation Of Neurology - has an article by Avindra Nath and B. Jeanne Billioux titled: Long-Haul COVID.

Many of these symptoms overlap with those of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The cause of ME/CFS remains unknown despite decades of research of the syndrome. Many of these patients similarly report a viral infection as a trigger, but since they come to our attention months and years after symptom onset, it is impossible to know what may have triggered the symptoms.

Long-Haul COVID thus represents as excellent opportunity to study the pathophysiology of ME/CFS that may have broader implications.

Article begins at page 1 and continues at page 3:
https://wfneurology.org/private/downloads/dmOeL3cfAVtVLhXhvm1Rnw/wn_jun_jul_20.pdf

 

A large German newspaper dedicates page 3 to a personal story about a friend with ME. Potential association of Covid 19 sequelae with ME only marginally mentioned in the text, but prominently in the caption:

First it was a scratchy throat. Soon Nora could barely stand up, could barely speak. There's no cure. But with Corona, maybe more cases soon.

Google translate:
Chronic fatigue syndrome: How an illness made my friend disappear

https://twitter.com/user/status/1287972901023625218

Code:

https://twitter.com/Tagesspiegel/status/1287972901023625218

https://www.tagesspiegel.de/gesells...ine-freundin-verschwinden-liess/26042084.html

Edited to fix Twitter link.

 

It's a great article, and finally with a good picture (not some tired yuppie in front of a laptop.

 

I think it's this one but not much meat to it:

"The key is to take these patients seriously". Indeed it should be. Unfortunately, medicine is designed for the opposite and to give up at the first hint of adversity.

 

Yes, I think you're right, but I wonder if there might be more?

 

Yeah, I wonder too. There are no quotes from Garner or Hornig in it.

 

@dave30th re when the TC interview was done, it must have been quite early on as her hair is ginger.

But by the time she did this other one in july
https://www.s4me.info/threads/cogni...20-goldstein-chalder.15251/page-4#post-273682
she is completely grey.

(Date & time: Monday July 13th, 1pm – 1.30pm

Title: “From OCD to FND”: the multiple facets of Cognitive Behavioural Therapy)
https://maudsleylearning.com/archived-webinars/

 

https://twitter.com/user/status/1288187543800946688

 

Excellent!

 

https://www.jobs.nhs.uk/xi/vacancy/916084835

via:
https://twitter.com/user/status/1288225209053589504

 

Thanks for posting this @Dolphin. I wasn’t aware so have queried with our committee to ask if others knew the community service was advertising.

Dismayed to see one of the options was for a mental health nurse, along with OT or Physio.

FYI applications closed last week, link in tweet didn’t work, but yours did.

Priscilla
OMEGA chair

 

Unfortunately I can't access this in my area
https://twitter.com/user/status/1288127675618324482

https://www.ktva.com/story/42405970...covered-from-coronavirus-feel-lasting-effects

 

https://blogs.bmj.com/bmj/2020/07/28/nisreen-a-alwan-what-exactly-is-mild-covid-19/

https://twitter.com/user/status/1288371749374119937

 

I was wondering if I can sneak back into the system by calling myself a long haul EBV