Open Medicine Foundation (OMF)

Discussion in 'News from organisations' started by DokaGirl, Sep 1, 2019.

  1. Hutan

    Hutan Moderator Staff Member

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    Location:
    Aotearoa New Zealand
    Hmm, on the idea that 'co-morbidities are central in ME/CFS'. Of course it depends on what you define as a comorbidity, but asthma was mentioned, and I don't think we have seen good evidence for that being central in ME/CFS. Similarly for depression. I think the doctors mentioned who believe that co-morbidities are central probably don't understand ME/CFS very well.

    I do like Katherine's approach of taking people reporting IBS in the UK Biobank and comparing various biological measures between e.g. people reporting IBS and ME/CFS in the UK Biobank. That does seem like a good way to identify some potentially important differences. But, to me, that approach is the exact opposite of assuming that co-morbidities are central - it's a way of teasing out the noise in the symptoms that people present with.

    The PEM project (predicting PEM from data from wearables and biometric data) sounds good.
     
    Trish, Eleanor, Deanne NZ and 2 others like this.
  2. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    4,756
    In relation to ME/CFS can we always say what is a co-morbidity and what a symptom of the ME/CFS?

    Now I am not working and in control of my diet, I only experience migraines type headaches when in PEM, so do I suffer from migraines as a condition in itself or are my headaches part and parcel with PEM, so a symptom of the ME/CFS itself.
     

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