Dakota15
Senior Member (Voting Rights)
https://www.npr.org/2021/11/29/1058...nic-fatigue-syndrome-may-offer-a-guiding-star
NPR: "For patients with long COVID, chronic fatigue syndrome may offer a guiding star"
Some excerpts:
"The deep fatigue Fisseha experiences is one of the most frequently reported long-term effects of COVID-19. It's known as "post-exertional malaise," a worsening of symptoms such as pain or fatigue after physical or mental exertion."
Alison Sbrana knows better than most people what that "if" means."
"She has myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It's a disease with a lot of symptoms that overlap with long COVID."
"There is this presumption that perhaps it's just depression or anxiety, or perhaps it's the pandemic or the state of the world, but people know when there's something wrong with them," says Jaime Seltzer, director of scientific and medical outreach at #MEAction, which advocates for people with ME/CFS.
She says there are lessons doctors and researchers can learn from people like herself.
"People with chronic complex disease have been living with this for decades. Researchers have been studying this for decades," Seltzer says. "We definitely need to make use of the path that we've beaten down over time and start basing our hypotheses off of what we've seen in these diseases with other labels."
NPR: "For patients with long COVID, chronic fatigue syndrome may offer a guiding star"
Some excerpts:
"The deep fatigue Fisseha experiences is one of the most frequently reported long-term effects of COVID-19. It's known as "post-exertional malaise," a worsening of symptoms such as pain or fatigue after physical or mental exertion."
Alison Sbrana knows better than most people what that "if" means."
"She has myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It's a disease with a lot of symptoms that overlap with long COVID."
"There is this presumption that perhaps it's just depression or anxiety, or perhaps it's the pandemic or the state of the world, but people know when there's something wrong with them," says Jaime Seltzer, director of scientific and medical outreach at #MEAction, which advocates for people with ME/CFS.
She says there are lessons doctors and researchers can learn from people like herself.
"People with chronic complex disease have been living with this for decades. Researchers have been studying this for decades," Seltzer says. "We definitely need to make use of the path that we've beaten down over time and start basing our hypotheses off of what we've seen in these diseases with other labels."
