News about Long Covid including its relationship to ME/CFS 2020 to 2021

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Mij said:
Just wait until they discover the term PEM.
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Many have! I've even seen it used almost exactly. Many have butted in explaining it, usually people who had mono before. Others have found it elsewhere.

Relapses. Crashes. The same vocabulary. It's frankly remarkable, how natural language comes out organically when it makes sense. Literally none of the BPS framing ever comes up. Obviously. I'm sure the explanations for this would be as entertaining as they would be absurd.
 
Kalliope said:
Uppsala University with article about prof. Jonas Bergquist who is going to investigate samples from Covid-19 patients and believes this may provide important information for research into ME. He also talks a bit about how the pandemic has affected ME patients

- Today, in ME patients, we are already looking for neuroinflammation markers and nerve cell injury markers, so we try to see if these are also found in covid patients' spinal fluid. This could show a connection and provide information about which patients are at risk of long-term and even chronic problems. If so, who are these biomarkers and what other organs are affected at the same time? Can we see patterns in which different infections affecting the nervous system behave similarly? Now we need to follow up and see what it looks like for these particular patients who have ended up in intensive care and who have neurological disorders. How will it go for them when they return home and recover from their infectious disease?

Covid-19 kan ge viktig information till ME-forskningen
google translation: Covid-19 can provide important information to ME research
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OMF has translated the interview into English
Covid-19 and ME News Flash from Uppsala
 
If so many people are experiencing post covid fatigue, wouldn't that be something to bring to the attention of all the involved Corona epidemiologists and virologists right now?

Or are they, by their expertise, only interested in Corona spread/prevention, not its effects on the body?

Because it seems a little like post covid symptoms are now fully up to psychiatrists interpreting/framing them.

We don't hear much publicly from Corona experts or at least "real" doctors on this. Why?
 
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Leila said:
If so many people are experiencing post covid fatigue, wouldn't that be something to bring to the attention of all the involved Corona epidemiologists and virologists right now?

Or are they, by their expertise, only interested in Corona spread/prevention, not its effects on the body?

Because it seems a little like post covid symptoms are now fully up to psychiatrists interpreting/framing them.

We don't hear much publicly from Corona experts or at least "real" doctors on this. Why?
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Most are waiting it out. Which is smart but also dumb without adequate monitoring. The hope is that it will go away on its own, that if you don't look for it it doesn't exist and the problem will resolve itself naturally. Even though history and published literature shows otherwise. Even though it's infantile thinking that happens to be massively immoral given history. Which means the current hostile guidelines effectively guarantee the problem will have the worst possible outcome.

The simple lesson is that being dumb about things leads to terrible outcomes, atrocity in this case. Hoping a problem magically disappears if you don't look at it is absurdly unprofessional and immoral. But the belief system of conversion disorder appears to be the highest principle in medicine, it supersedes everything, exempts from the scientific process, from ethical or even moral concerns, waives all responsibility.

Moving forward it will be necessary to make conversion disorder an explicit signed affirmation with traceable accountability. The # of cases would drop by over 90% almost immediately, because no serious physician would ever make that determination on paper if it lead to accountability that can be traced back. Right now it is implicit, but essentially has force of law. Which will all but guarantee to make the problem grow to its worst possible outcome.
 
Coronavirus: Calls for awareness of long-term effects

A number of people have described debilitating symptoms for weeks or even months after developing Covid-19.

Scientists want to establish if "post-Covid syndrome" should be recognised as an illness in its own right.

They believed this could help diagnose and treat patients who have continued to experience health complications.
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Actual scientists? Or BPS "scientists" / quacks. One of the large studies is happening at KCL, a BPS bastion. I wonder how that will play out in discussions between scientists and "scientists".

https://www.bbc.com/news/uk-england-south-yorkshire-53084368
 
A French politician, suffering from long-term COVID symptoms, is pushing for a law monitoring and supporting long-term COVID-19 illness.

https://www.bfmtv.com/replay-emissi...our-proteger-les-malades_VN-202006110252.html

Can't do a full summary and it's just a video but a few notes:
  • Was told she had PTSD, not impressed with the suggestion
  • Fundamental problem with being able to diagnose, faces a wall with physicians
  • People are angry and frustrated at being told it's psychological (how vexatious!)
  • 10% is beginning to emerge as the consensus finding

It's really like decades of history happening in the span of a few months. It's a common trope that some years have decades of history crammed together but this is literal here.
 
I'm beginning to see more and more accounts of people who thought they had recovered, had a few good days where they thought they were done with, and relapsed. I saw several over the weeks but they are becoming more common. It would be incredibly useful to be able to follow closely, have constant monitoring and testing during the entire phase to see those patterns.

So much fluctuation. Some straight up remain ill. Others have what seems like a recovery only to relapse. I see a lot of talk of waves of symptoms, not necessarily brought about by any exertion but others who find clear exertion triggers.

And so many had a very mild illness, sometimes literally just a mild cough. So much for the whole PTSD "traumatized by a neat-death experience". All the tropes are being dismantled thoroughly. Decades wasted on this nonsense.

Just one example but I'm seeing lots of that:

 
rvallee said:
I wonder how that will play out in discussions between scientists and "scientists".
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Whatever happens among the scientists (with or without quotation marks), the gammon is already out and shouting in the comments section – trying to link it to anything from political correctness, so-called benefit scroungers, and even Brexit. The BBC has closed it for further comments.
 
Found out about this:

https://www.coronerve.com/
The CoroNerve Studies Group is a collaborative initiative to study the neurological features of COVID-19. Together with Our Partners we are coordinating a UK nationwide surveillance programme, and collaborating with international efforts. Click here to Report a Case in one minute, or Contact Us if you or your organisation would like to get involved.
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From this:

How coronavirus can attack the brain
A UK-wide alliance has now been created to monitor such cases: CoroNerve — the National Surveillance Programme for Neurological Complications of Covid-19. It involves both the Association of British Neurologists and the Royal College of Psychiatrists.

CoroNerve has gathered case studies of more than 150 British adults with symptoms that reflect these emerging problems. Almost a third have suffered from mood disorders and confusion. Significant numbers show evidence of damaging brain inflammation.
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https://en.brinkwire.com/health/how-coronavirus-can-attack-the-brain/

Dr Manoj Sivan, an associate clinical professor in physical and rehabilitation medicine at the University of Leeds, is also concerned for the future.

He told Good Health: ‘In our research on the SARS and MERS epidemics, we found patients complaining mainly of breathlessness and fatigue in the first six months post-discharge, and then psychological problems such as anxiety and depression.

‘The neurological problem of chronic fatigue was not much explored in SARS and MERS studies, but we believe it is likely in Covid-19.’
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I don't know where else to post this...

I have Google search alerts for some ME terms. In the last few weeks I've been seeing more and more old articles from PubMed showing up. It rarely happened in the past and likely caused by increased views and attention to those articles.

Not all good since many are BPS stuff but there appears to be growing attention. Not sure if anyone else noticed the same.
 
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