Paul Garner and the founder of Body Politics on long haul Covid, mentioning of ME "CFS" several times, recommend pacing
I watched the segment and it was great. Wow, to be able to show this to Wessely and his ilk decades ago, basically their worst nightmare. On the BBC, too. Especially the advice about connecting with others and empowering patients. COVID isn't only making those who have it sweat.
One important point Garner made bears repeating loud and clear: we don't know how to help those people yet, but we do know enough to prevent many from getting worse. My words, not his, but this goes by trashing the entire BPS model and advising proper pacing, rest, sick leave and awareness of those things throughout medicine.
It's impossible to say how long it will take to have reliable beneficial treatments so this is particularly important because current advice is wrong and harmful and people are sick now, are being faced with pressing demands from work, family and obligations now and they are likely making the wrong choices now, making themselves sicker and possibly harder to effectively treat down the line.
The NICE proceedings and the Cochrane review are slated to report within a year. That's far too long and just the UK, elsewhere there isn't much happening yet. Things need to happen now, far and wide.
I'm really curious what Garner will think of the whole Cochrane saga.