We were delighted that Andy from the forum was able to speak to Prof Simon Carding, of the Quadram Institute in Norwich, about his ME/CFS research work, which focuses on the gut and its microbiome.
You can read more about Prof Carding here, https://quadram.ac.uk/people/simon-carding/
And about...
Not a recommendation
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this seems a bit irresponsible or am i missing something? (ie promoting a product before it has been officially tested)
eta: see my later post for more info...
I assume this means that the patient is always to blame if the " brilliant treatment " plan doesn't work.
The quote is from Dr Cameron Sepah,a psychologist in California.
I'm not sure of the context!
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Disability Insurance Attorney Andrew Kantor from Kantor & Kantor, LLP joins us to explain the ins and outs of filing for disability under an ERISA (employer-sponsored) Policy when disabled from ME/CFS.
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Moderator note:
Thread moved from 'General ME/CFS News'.
It’s interesting to listen to the last 2 minutes of this short 9 minute video, so starting at 7 minutes, where one of the doctors, the Chairman I believe, poses a question as if he is a ME patient. The response illustrates the...
The Science for ME forum are delighted that Andy, who works on outreach for us, was able to speak with members of the CureME / UK ME/CFS Biobank team.
The conversation has been split into two halves, part one talks about their research, while part two discusses their biobanking work.
To find...
Just noticed a conversation on twitter and thought it might be interesting for the forum as well
Jon Stewart has just held a passionate speech on the lack of proper health care for 9/11-first responders before a House Committee in Washington.
Here's some of the reactions:
And then this...
ME is the biggest cause of long term sickness absence in schools [1]. 1 in 5 parents face child protection proceedings [2]. ME is not taught in medical schools and 80% of doctors think its psychosomatic [3]. Because healthcare professionals don't understand ME they start blaming the parents. ME...
https://www.facebook.com/CfSforMECFS/posts/572809719911123
Direct link to the video of Dr Fiehn
I've asked if there is any other way to ask questions other than posting them on Facebook, so far I haven't had a reply.
Michael Sharpe breaks his retirement promise on ME/CFS and returns with this monstrosity, a blog for the BMJ (British Medical Journal)
He says ME/CFS is an illness but not a disease...
Mind, Medicine and Morals: A Tale of Two Illnesses...
Prof @Chris Ponting made a cracking seven-minute speech at the Glasgow millions missing event, captured here
It really is worth a listen. He talked about a range of things including progress in science, that ME scientists are listening to legitimate questions and concerns about science and...
The Science for ME forum are delighted to talk to Dr Sadie Whittaker from Solve ME/CFS Initiative about Solve's work, in particular their patient registry, related app and biobank, as well as their Ramsay Award programme, that awards grants to fund much needed research into ME/CFS and which, at...
Have just skimmed through this and will watch in full at a later date. Very telling. Very brazen about all the little slight of hand tricks his posse have used over time.
ME is one of the most misunderstood diseases. 1 in 5 parents face child protection proceedings, patients have been sectioned and abused, NHS treatments make over 50% of patients worse, biomedical research has been pitiful. A global health scandal that has been ignored for over 30 years.
ME has...
https://www.facebook.com/CornellMECFSCenter/posts/1052010814990357
Final slide
https://neuroimmune.cornell.edu/videos/NIH_ME-CFS_April2019_AlexMandarano.mp4
ETA: If you can't get the video to play, check what browser you are using. For some reason, this video won't play in Chrome, but will...
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