K Pressin: new treatment for ME CFS(?) - video Dr Derek Enlander (25 June 2019)

Not a recommendation

https://www.youtube.com/watch?v=__M8fqk6NVE

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this seems a bit irresponsible or am i missing something? (ie promoting a product before it has been officially tested)

eta: see my later post for more info
https://www.s4me.info/threads/k-pre...nlander-25-june-2019.10158/page-2#post-181073

 

There's virtually no web presence for K-Pressin. All I could find was this thread and this trade mark information, which shows it was raised in Feb this year.
https://trademark.trademarkia.com/k-pressin-88296207.html

 

Looks like a bottle of lube.

Another doctor who's found the answer! This time it's the methylation cycle. BRAVO.

 

Why not do a clinical trial. We can't keep having all these 'fringe' doctors trying to sell stuff from their bedrooms.

 

I'm a bit new to this so having dug a bit further there's a bit of history, taken from here. Looks like the latest in a long line of similar 'treatments'. Haven't looked at any of the papers that are referenced.

"Dr. Enlander

Dr. Enlander used Kutapressin for approximately 12 years until Schwarz Pharma ceased producing it. He then originally tried Nexavir on his patients however due to the preservatives within Nexavir, he trialled his patients on Hepapressin. Hepapressin is similar to Nexavir however it is an Argentinean bovine liver extract, as opposed to porcine liver extract. Dr. Enlander recommends that his patients take other substances in tandem with Hepapressin to increase its effectiveness. 67% of his patients have shown an improvement as a consequence of weekly Hepapressin injections in combination with other treatments. Recently, Dr. Enlander commenced a study alongside Dr. De Meirleir that examined alternative ways to administer Nexavir/Hepapressin."

 

https://trademark.trademarkia.com/k-pressin-88296207.html

Looks like they're having some trouble at the patent office:

Gearup.com redirects to an apparently unrelated Thomson Reuters website.

 

As a Brit, the whole way the American system works, with all these doctors and their protocols etc. Just so bizzare! I mean it's good in a sense, because you get doctors trying different things - thinking outside the box, whereas in the UK everything is so standardized and by the book. On the other hand, I feel the chronic illness community just gets taken for a ride.

 

I think this is straight pseudoscience leading to quackery. I agree that it is bizarre that anyone, or any regulatory body, should consider it acceptable for physicians to put out videos like this.

 

Right. The American patients are often on half a dozen medications.

 

Dr Enlander is considered an 'ME expert' in the US (he was Jen Breas doctor and is in Unrest). He has previously said on a number of occasions that he and his team (when he was at Mt Sinai, he now has a private clinic) 'proved' that exercise was bad for pwME but they never published anything on it. So there will be a lot of people who will follow his advice; one of the reasons I was a bit shocked to find this video.
I think he still has connections at Mt Sinai (Terri Wilder of #MEAction works there).

see also:
https://www.s4me.info/threads/mount-sinai-medical-center-ny-and-dr-derek-enlander.2274/

 

All this nutritional supplement treatment stuff was the main reason I moved from the other forum to here. As I said earlier, being a Brit, I had no idea people were spending hundreds of dollars a month on these 'protocols'.

 

Makes it even more worrying that he’s not a fringe doctor and yet promotes this stuff.

 

I did it with Dr Myhill when I hadn’t learnt enough to know better.

 

I did it myself at one point. I think by bringing up Myhill - who I don't have much time for - you have proved my point. She is the perfect example of a 'fringe' doctor; indeed, it is partly this that has got her in trouble with the NHS. Like Dr. Enlander, I'd like to see some proper evidence from Dr Myhill about her protocol (which includes all sorts of testing, supplementation and dietary changes. She has been running her clinic for many, many years now. She's running a small empire between her clinic, testing facility, books, online store, Natural Health Worldwide, etc.

 

We are most likely to feel better if we take supplements that we are deficient in. You won't know which supplement is helping if you take a whole gob of them.

I recall JB took magnesium shots and felt they helped her. I took shots for years (off and on) and it made a huge improvement in my overall energy, and I no longer felt out of breath from walking one block.