Mount Sinai Medical Center NY (and Dr Derek Enlander)

I came across a number of interesting Youtube videos which featured Dr Derek Enlander (who I had not heard of). One of the good guys and very anti-PACE.
This was one of them from 2013

https://www.youtube.com/watch?v=FF4xyxdsUEo

This is excerpted from the Mount Sinai Medical Center ME CFS Symposium November 2013

In it he talks about a study they were doing on PEM, (around 24 minutes in) to disprove PACE, or the use of exercise as a therapy for ME/CFS.

What happened to this study. I can't find it? Also in another interview with him another doctor mentions a similar study that was done in Barcelona around that time(?)

Also, according to other vids and me-pedia "He is a clinical instructor at The Icahn School of Medicine at Mount Sinai, and, also, leads the CFS Center at Mount Sinai Hospital in New York City."

BUT
I looked on the school of medicine at Mount Sinai and cannot find any mention of him or research or treatment relating to ME/CFS.

In fact their info on the subject is pretty bad:
"
What Causes It?
The cause of CFS is unknown, but a virus or an immune system reaction may be responsible. Preliminary research suggests herpes infection, for example, may trigger CFS. Risk factors include extreme stress or anxiety, flu-like illness that does not completely go away, poor eating habits, and psychological conditions, such as obsessive compulsive disorder, neuroticism, and perfectionism. Depression can make the condition worse and make it last longer."

"
Lifestyle
Get regular exercise. Your doctor may suggest that you see a physical therapist to create an appropriate exercise program. At least one study shows that people with CFS who exercise have fewer symptoms than those who do not exercise."

http://www.mountsinai.org/health-library/condition/chronic-fatigue-syndrome

I have dug about a bit more and he has his own Youtube channel and regularly trains new medical students about ME/CFS. https://www.youtube.com/user/denlander794
And he now appears to have his own ME and CFS clinic......see FB:
https://www.facebook.com/DrEnlander/
clinic website:http://www.enlander.com/

Can anyone shed any light on the study, and apart from becoming semi-retired what happened?

eta: have just looked on his clinic website and there its says
"Dr Enlander is on the faculty of Mount Sinai Medical School and is an attending physician at Mount Sinai Medical Center New York." so I'm even more confused

eta: Jen Brea saw Dr Enlander, think he appears briefly in Unrest.

 

@Sly Saint , Dr. Derek Enlander is a member of PR forum and has replied to questions there. Nielk, is one of his patients, or at least she was. Maybe you could get a comment from any of them.

 

Yes, it would be interesting to know more about the cooperation between dr. Enlander and Mount Sinai and the hospital's research in ME and care for ME-patients. If I remember correctly, Enlander was going to open a ward at Mount Sinai due to a donation from a patient.

Also, a few years ago there were some expectations regarding a scientist at Mount Sinai, Erik Schadt, who was entering the ME-field. But then it went silent..

 

If I recall correctly Dr Enlander/his research team were given in the region of $1,000,000 by a patient. I very much hope some studies will be published.

 

I can't, I've been put on moderation on PR for a while now for 'advertising' S4ME.

 

Curiouser and curiouser.........I emailed Dr Enlander and got a reply:

"I am on the faculty at Mount Sinai medical Center. One of my patients gave me research donation of $1 million. I gave the medical center the donation to form a ME CFS center."
"We showed that overexercise can produce ill effect in ME CFS patients".

#MEAction are on the case re the Mt Sinai info on CFS (Dr Enlander has no knowledge about it).

 

Who does #MEAction refer to here? I know one person in NYC who uses that tag, essentially it represents that one person.

 

Few more answers.
Dr Enlander says the results of the trial have not been published yet.
Terri Wilder (#MEAction, who recently participated at the CFSAC meeting [see other thread) has raised the issue with Mt Sinai and will raise it again (she actually works there!).
She is currently working with the New York State Department of Health to build an ME webpage for them.

https://www.meaction.net/

 

I was one of those who were excited at that time as Eric Schadt was conducting a study about a possible genetic cause of ME. Nielk, member on PR as well as another member, wrote about their participating in the study. It would be interesting to get that study commented as well.

OMG. Do I dare to write this without going the same route.

 

The story from the 2013 symposium was covered by the MEA:

"At a medical conference today sponsored by the New York ME and CFS Center at Mt. Sinai and held at the New York Academy of Medicine, researchers showed that a form of treatment called
Graded Exercise Therapy (GET) which has been lauded by the UK’s National Institute of Clinical Excellence (NICE) and recommended by the U.S. Centers for Disease Control and Prevention (CDC) may not help ME/CFS, but actually can make it worse. Unfortunately, the CDC has long been touting that certain exercise regimens can help manage the disease, even offering guidance on their website."

http://www.meassociation.org.uk/201...ew-research-finds-us-report-20-november-2013/

Shame they still haven't published the results of the research.

I have a few more answers.

The ME/CFS Center at Mount Sinai School of Medicine (Mt. Sinai MEC), New York was opened in 2011 but no longer exists.

 

Is there any more information on that? I suppose most of us are keen to see a publication.

 

In that article, it is said

Does anybody which study is meant. It's from 2013, I think it's not the actual study @Sly Saint means.

 

The end link on this post takes you to the Second Opinion site and the video that I originally watched on Youtube.
It has some good information and also a transcript of the show.

"Chronic Fatigue Syndrome (CFS) is a debilitating chronic disease that has a significant impact on a person’s quality of life. Because the cause is unknown, effective treatment is still out of reach for many patients. Danielle Warner’s description of battling CFS every day is a heartbreaking one, as she longs for her once active and vibrant life. Her husband and caregiver, Tyrone, joins Danielle as they share the story of their life, and their uncertain future."

Just came across further references to the show (currently being reshown on Idaho Public Television:
http://idahoptv.org/schedules/listi...4-12-2018&thisTime=11:30:00&thisChannel=WORLD )

https://www.secondopinion-tv.org/episode/chronic-fatigue-syndrome

eta: just found its also being reshown on KQED 3.30 am:
https://www.kqed.org/tv/schedules/daily/world.jsp?format=long&ymd=2018-04-12