treatment

  1. rvallee

    FraudListing.com: a project to keep track of quack treatments for ME

    It's been noticed a few times on Twitter, though still under construction. A Reddit user has created a website to keep track of fraudulent treatments being marketed for ME and Long Covid. It spans the whole, from the usual quackery, like LP and Gupta, to official quackery, like CBT/GET. Reddit...
  2. Ryan31337

    Effect of High Dietary Sodium Intake in Patients With Postural Tachycardia Syndrome, 2021, Garland et al

    Abstract Background High sodium intake is recommended for the treatment of postural tachycardia syndrome (POTS) to counteract the hypovolemia and elevated plasma norepinephrine that contribute to excessive orthostatic tachycardia, but evidence of its efficacy is not available. Objectives This...
  3. Art Vandelay

    Mindfulness-Based Program Plus Amygdala and Insula Retraining for the Treatment of Women with Fibromyalgia: A Pilot RCT, 2021, Sanabria-Mazo et al

    Ashok Gupta is citing this study as 'proof' that his programme is a cure for ME/CFS. Given that he is now actively targeting Covid LongHaulers, I thought it best to bring this to the attention of S4ME's resident experts. According to the comments on this youtube video, there are allegedly "3...
  4. J

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    I've just come across a patent from Fluge and Mella which looks like it was updated/published in March 2021 entitled 'Method for the treatment of chronic fatigue syndrome using an inhibitory or cytotoxic agent against plasma cells'. The description of the patent is a long read...
  5. mango

    Sweden: Recruiting: Post-covid-19 Rehab (2021) Bileviciute-Ljungar

    Indre Bileviciute-Ljungar, Swedish ME/CFS clinician-researcher and BPS proponent, is now recruiting patients to a post-covid-19 ie long covid study. It's an internet based multimodal rehabilitation program aiming to "prevent a negative course of the illness". On potential risks: The entities...
  6. Sly Saint

    Blog: Working Alongside People with Long Covid: a Psychologist’s Learning

    "Today’s guest post is written by Dr Richard Pione, a clinical psychologist, CBT therapist and former Psychological Wellbeing Practitioner. Richard has worked within several different clinical health psychology settings, with the most recent being a short-term post within a Long COVID MDT...
  7. T

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Cognitive Behavioral Therapy Improves Physical Function and Fatigue in Mild and Moderate Chronic Fatigue Syndrome: A Consecutive Randomized Controlled Trial of Standard and Short Interventions Merethe Eide Gotaas, Tore C. Stiles, Johan Håkon Bjørngaard Petter C. Borchgrevink and Egil A. Fors...
  8. Dolphin

    Ivermectin in Long-Covid Patients: A retrospective study, 2021, Del Franco et al

    https://www.researchgate.net/profile/Hector-Carvallo-2/publication/350344144_IVERMECTIN_IN_LONG-COVID_PATIENTS_A_RETROSPECTIVE_STUDY/links/605b107ea6fdccbfea00b4ef/IVERMECTIN-IN-LONG-COVID-PATIENTS-A-RETROSPECTIVE-STUDY.pdf ORIGINAL ARTICLE February 2021 DOI: 10.13140/RG.2.2.14189.51683...
  9. Dolphin

    Feasibility of Vitamin C in the treatment of post viral fatigue with focus on Long Covid, 2021, Vollbracht

    https://www.mdpi.com/2072-6643/13/4/1154
  10. Andy

    Online workshop: Treating Long Covid, 24th and 25th April

    What you need to know and what you can do in clinical practice. Long Covid is a devastating consequence of Covid-19 (SARS -CoV2) infection. It's estimated that between 10-30% of individuals infected will go on to have symptoms lasting > 12 weeks. Symptoms of fatigue, chest pain, shortness of...
  11. Sly Saint

    Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in ME/CFS: A Randomized, Double-Blind,Placebo-Controlled Trial,2021,Castro-Marrero

    Preprint Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Randomized, Double-Blind, Placebo-Controlled Trial " Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, multisystem, and...
  12. Hutan

    Spironolactone as a treatment for CFS in patients with positive Epstein Barr virus serology, 2020, Campo and Taylor

    https://onlinelibrary.wiley.com/doi/full/10.1111/imj.11_14849 (It's free access but I think it's just a poster) Jorge do Campo 1 and Vivienne Taylor 2 1 Noosa Hospital, Queensland, Australia 2 Ibuki Medical Centre, Noosa, Queensland, Australia Abstract Background: Epstein Barr Virus (EBV) is a...
  13. Sly Saint

    Idiopathic myalgic pain (fibromyalgia): supportive management and prevention with Pycnogenol®, 2021, Belcaro et al

    Abstract Background: The aim of this registry study was the prospective evaluation of the efficacy of Pycnogenol® in idiopathic fibromyalgia (FM), over 4 weeks in comparison with the standard management (SM). Methods: A SM and a Pycnogenol®+SM group were formed. Pycnogenol® supplementation...
  14. Lidia Thompson

    Antivirals as ME/CFS or Long Covid treatments (e.g. valacyclovir, valgancyclovir, amantadine)

    Split from Mail Online: Why many of those struck by Long Covid may be suffering from glandular fever: Blood tests on some patients are coming back positive for ‘ Here is a link from ME-pedia on the use use of valaciclovir. The study that is mentioned on this page showed that, " Improvement...
  15. Nixxy

    Sodium dichloroacetate

    Hello. I’m not sure what the right category was, but I wanted to share my experience with Prof Comhaire’s sodium dichloroacetate treatment. I’ve been sick since I was 16. I had an (really bad) EBV infection. A year or 5-7 after that, a hospital specializing in CFS/Fibro checked me out and...
  16. John Mac

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    Full title: Reduced endothelial function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - results from open-label cyclophosphamide intervention study Provisionally accepted https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/abstract
  17. Sid

    Lancet Psychiatry: Regulatory requirements for psychological interventions (Purgato, 2021)

    Pretty ironic seeing one of Lancet’s subjournals publishing an editorial calling out the unregulated nature of psychological interventions. https://doi.org/10.1016/S2215-0366(20)30414-4
  18. A

    Babesia, babesiosis (tick-borne disease)

    New tick found in north east Scotland From Twitter - new trick in Scotland, never found in sheep.previously babesia venatorum https://www.northern-scot.co.uk/news/global-scientific-first-as-parasite-found-in-north-east-sheep-186588/ @duncan @chrisb
  19. Ryan31337

    Randomized Trial of Ivabradine in Patients With Hyperadrenergic [POTS], 2021, Taub et al

    Paywall, https://www.jacc.org/doi/full/10.1016/j.jacc.2020.12.029
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