It's been noticed a few times on Twitter, though still under construction. A Reddit user has created a website to keep track of fraudulent treatments being marketed for ME and Long Covid. It spans the whole, from the usual quackery, like LP and Gupta, to official quackery, like CBT/GET.
Reddit...
Abstract
Background
High sodium intake is recommended for the treatment of postural tachycardia syndrome (POTS) to counteract the hypovolemia and elevated plasma norepinephrine that contribute to excessive orthostatic tachycardia, but evidence of its efficacy is not available.
Objectives
This...
Ashok Gupta is citing this study as 'proof' that his programme is a cure for ME/CFS.
Given that he is now actively targeting Covid LongHaulers, I thought it best to bring this to the attention of S4ME's resident experts. According to the comments on this youtube video, there are allegedly "3...
I've just come across a patent from Fluge and Mella which looks like it was updated/published in March 2021 entitled 'Method for the treatment of chronic fatigue syndrome using an inhibitory or cytotoxic agent against plasma cells'.
The description of the patent is a long read...
Indre Bileviciute-Ljungar, Swedish ME/CFS clinician-researcher and BPS proponent, is now recruiting patients to a post-covid-19 ie long covid study. It's an internet based multimodal rehabilitation program aiming to "prevent a negative course of the illness".
On potential risks:
The entities...
"Today’s guest post is written by Dr Richard Pione, a clinical psychologist, CBT therapist and former Psychological Wellbeing Practitioner. Richard has worked within several different clinical health psychology settings, with the most recent being a short-term post within a Long COVID MDT...
Cognitive Behavioral Therapy Improves Physical Function and Fatigue in Mild and Moderate Chronic Fatigue Syndrome: A Consecutive Randomized Controlled Trial of Standard and Short Interventions
Merethe Eide Gotaas, Tore C. Stiles, Johan Håkon Bjørngaard Petter C. Borchgrevink and Egil A. Fors...
https://www.researchgate.net/profile/Hector-Carvallo-2/publication/350344144_IVERMECTIN_IN_LONG-COVID_PATIENTS_A_RETROSPECTIVE_STUDY/links/605b107ea6fdccbfea00b4ef/IVERMECTIN-IN-LONG-COVID-PATIENTS-A-RETROSPECTIVE-STUDY.pdf
ORIGINAL ARTICLE February 2021
DOI: 10.13140/RG.2.2.14189.51683...
What you need to know and what you can do in clinical practice.
Long Covid is a devastating consequence of Covid-19 (SARS -CoV2) infection. It's estimated that between 10-30% of individuals infected will go on to have symptoms lasting > 12 weeks. Symptoms of fatigue, chest pain, shortness of...
Preprint
Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Randomized, Double-Blind, Placebo-Controlled Trial
"
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, multisystem, and...
https://onlinelibrary.wiley.com/doi/full/10.1111/imj.11_14849
(It's free access but I think it's just a poster)
Jorge do Campo 1 and Vivienne Taylor 2
1 Noosa Hospital, Queensland, Australia
2 Ibuki Medical Centre, Noosa, Queensland, Australia
Abstract
Background: Epstein Barr Virus (EBV) is a...
Abstract
Background: The aim of this registry study was the prospective evaluation of the efficacy of Pycnogenol® in idiopathic fibromyalgia (FM), over 4 weeks in comparison with the standard management (SM).
Methods: A SM and a Pycnogenol®+SM group were formed. Pycnogenol® supplementation...
Split from
Mail Online: Why many of those struck by Long Covid may be suffering from glandular fever: Blood tests on some patients are coming back positive for ‘
Here is a link from ME-pedia on the use use of valaciclovir.
The study that is mentioned on this page showed that, " Improvement...
Hello.
I’m not sure what the right category was, but I wanted to share my experience with Prof Comhaire’s sodium dichloroacetate treatment.
I’ve been sick since I was 16. I had an (really bad) EBV infection. A year or 5-7 after that, a hospital specializing in CFS/Fibro checked me out and...
Full title:
Reduced endothelial function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - results from open-label cyclophosphamide intervention study
Provisionally accepted
https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/abstract
Pretty ironic seeing one of Lancet’s subjournals publishing an editorial calling out the unregulated nature of psychological interventions.
https://doi.org/10.1016/S2215-0366(20)30414-4
New tick found in north east Scotland
From Twitter - new trick in Scotland, never found in sheep.previously
babesia venatorum
https://www.northern-scot.co.uk/news/global-scientific-first-as-parasite-found-in-north-east-sheep-186588/
@duncan @chrisb
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