Mod note: A number of posts have been moved from a useful study on this subject:
Compression Garment Reduces Orthostatic Tachycardia and Symptoms in Patients With [POTS], 2021, Bourne et al
This is very interesting. I use compression wear, and swear it helps keep me functioning longer...
paper here:
https://psycnet.apa.org/record/2021-45656-003
Potentially harmful therapies: A meta-scientific review of evidential value.
Abstract
Lilienfeld (2007, Psychological treatments that cause harm. Perspectives on Psychological Science, 2, 53) identified a list of potentially harmful...
Compression Garment Reduces Orthostatic Tachycardia and Symptoms in Patients With Postural Orthostatic Tachycardia Syndrome
Kate M. Bourne et al
"Abstract
Background
Postural orthostatic tachycardia syndrome (POTS) is a chronic form of orthostatic intolerance associated with a significant...
frontiers in Systems Neuroscience
Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Pereira, Bateman et al
Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex...
Split from
International: IACFS/ME - International Association for CFS/ME (next event: Virtual Conference August 19-21 2021)
Is this a new thing? Didn’t we hear about this before from some Norwegians making spinach smoothies?
Highlights
• CBT is a promising treatment for patients with FND.
• Remote delivery of CBT can potentially increase access to care for patients with FND.
• Remote CBT can be integrated into clinical practice using a stepwise approach.
• Remote CBT can be integrated into practice using...
Full title: Neutralization of Autoantibodies Targeting G-Protein Coupled Receptors Improves Capillary Impairment and Fatigue Symptoms after COVID-19 Infection
Abstract
Clinical features of Corona Virus Disease 2019 (COVID-19) are caused by the severe acute respiratory syndrome coronavirus-2...
https://www.nytimes.com/2021/08/12/health/GHB-hypersomnia-sleep-FDA.html?referringSource=articleShare
For idiopathic hypersomnia. Article mentions fibromyalgia. Not sure why there were 27,000 serious adverse events if there are only 15,000 prescriptions.
Split from NICE ME/CFS guideline - draft published for consultation - 10th November 2020
MEpedia states this on the page about the York Centre for Reviews and Dissemination - looks like Wessely had his sticky fingers all over this, which really shouldn’t surprise us at all...
“Professor...
Full Title:
Multi-Disciplinary Collaborative Consensus Guidance Statement on the Assessment and Treatment of Fatigue in Post-Acute Sequelae of SARS-CoV-2 infection (PASC) Patients
Authors
American Academy of Physical Medicine and Rehabilitation Multi-
Disciplinary PASC Collaborative
1...
Effect of Dietary Coenzyme Q10 Plus NADH Supplementation on Fatigue Perception and Health-Related Quality of Life in Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Prospective, Randomized, Double-Blind, Placebo-Controlled Trial
Castro-Marrero et al
Abstract
Myalgic...
https://www.prnewswire.com/news-releases/bluerock-therapeutics-receives-fda-fast-track-designation-for-da01-in-the-treatment-of-advanced-parkinsons-disease-301336295.html
Probably something like this will be needed to cure MECFS.
Abstract
Biopsychosocial intervention has been suggested as a complementary treatment strategy for patients with chronic conditions. We compared the effect of a mind–body intervention (MBI), relative to treatment-as-usual (TAU) on WHO-5 Well-being Index during an intensive period of 12 weeks...
"As I have recently written, four major clinical trials of CBT for so-called MUS have documented the opposite of what the investigators hoped to prove. In fact, the evidence from this research suggests that CBT is not an effective treatment for these conditions. That hasn’t stopped these...
https://www.medrxiv.org/content/10.1101/2021.07.14.21259081v1
Background Coronavirus disease 2019 (COVID-19) is a serious respiratory disease that results from infection with a newly discovered coronavirus (SARS-COV-2). Unfortunately, COVID-19 is not only a short-term infection but that...
This is a press release from a small Swiss pharmaceutical company. I'm sharing it because the newly appointed chief scientific officer said:
"Our lead product candidate, Quilience®, is an exciting technology that we discovered has partial orexin-2 binding activity, and therefore, offers...
The effect of IL-2 stimulation and treatment of TRPM3 on channel co-localisation with PIP2 and NK cell function in myalgic encephalomyelitis/chronic fatigue syndrome patients
Natalie Eaton-Fitch,
Hélène Cabanas,
Stanley du Preez,
Donald Staines &
Sonya Marshall-Gradisnik
Abstract...
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease with unknown etiology, no validated specific and sensitive biomarker, and no standard approved effective treatment. ME/CFS has a profound impact on the quality of life of both patients and caregivers and entails high costs...
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