treatment

  1. V

    Effects of a mindfulness-based and acceptance-based group programme followed by physical activity for patients with fibromyalgia, 2021, Haugmark et al

    Abstract Introduction: Non-pharmacological approaches are recommended as first-line treatment for patients with fibromyalgia. This randomised controlled trial investigated the effects of a multicomponent rehabilitation programme for patients with recently diagnosed fibromyalgia in primary and...
  2. Andy

    In progress: Therapies for Long COVID in non-hospitalised individuals: the TLC Study

    "Approximately 1 in 10 people with COVID-19 continue to experience symptoms and impaired quality of life beyond 12 weeks, which is known as ‘Long COVID’. Common Long COVID symptoms include, extreme tiredness, shortness of breath, chest pain or tightness, ‘brain fog’, insomnia, heart...
  3. D

    First Clinical Study of the Safety and Blood Levels of a Human Monoclonal Antibody (2217LS) Against Lyme Disease Bacteria in Healthy People

    First Clinical Study of the Safety and Blood Levels of a Human Monoclonal Antibody (2217LS) Against Lyme Disease Bacteria in Healthy People, 2021, MassBiologics, Phase I Study Type : Interventional (Clinical Trial) Estimated Enrollment : 48 participants Allocation: Randomized Intervention...
  4. Sly Saint

    Systematic Review of Mind-Body Interventions to Treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Ardestani et al

    Abstract Background and Objectives: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic condition distinguished by disabling fatigue associated with post-exertional malaise, as well as changes to sleep, autonomic functioning, and cognition. Mind-body interventions (MBIs)...
  5. J

    Topiramate (Topomax)/Phenytoin (Dilantin)

    Has anyone had any experience with either of these 2 epilepsy drugs? There are some persistent anecdotal reports that these are helpful for MECFS symptoms. This old survey showed that patients perceived that topiramate was one of the most effective drugs that people had taken...
  6. rvallee

    [POTS]: State of the science and clinical care from a 2019 [NIH] Expert Consensus Meeting, 2021

    (Very unsure where to put this, not quite guidelines, related to ME, but not research either) (Also unsure why it took 2 years to publish this but it's new) Part 1 of 2 (according to this tweet). https://www.sciencedirect.com/science/article/pii/S1566070221000588 Abstract Postural...
  7. Andy

    World Physiotherapy: Briefing paper 9: Long COVID, physical activity and exercise

    "Introduction Safe and effective rehabilitation is a fundamental part of recovery from illness and can improve function in people living with disability. Currently insufficient evidence exists to guide best practice for safe and effective rehabilitation in people living with Long COVID...
  8. ME/CFS Skeptic

    Effect of Galantamine Hydrobromide in Chronic Fatigue Syndrome A Randomized Controlled Trial, 2004, Blacker et al.

    (Note that this is an old study from 2004) Abstract Context: There is no established pharmacological treatment for the core symptoms of chronic fatigue syndrome (CFS). Galantamine hydrobromide, an acetyl cholesterone inhibitor, has pharmacological properties that might benefit patients with...
  9. Andy

    Post-COVID-19 Syndrome and the Potential Benefits of Exercise, 2021, Jimeno-Almazán et al

    Abstract The coronavirus disease (COVID-19), caused by severe acute respiratory syndrome-coronavirus-2 (SARS-CoV-2) infection, is leading to unknown and unusual health conditions that are challenging to manage. Post-COVID-19 syndrome is one of those challenges, having become increasingly common...
  10. Andy

    A proprietary herbal drug Young Yum Pill ameliorates chronic fatigue syndrome in mice, 2021, Yin et al

    Abstract Background: Chronic fatigue syndrome (CFS) is a complex disease with few effective and safe therapies. Young Yum Pill (YYP), a proprietary herbal drug, has been used to relieve CFS-like symptoms. The pharmacological basis of this application of YYP is unknown. Purpose: This study...
  11. Sly Saint

    AHRQ Diagnosis and Treatment of ME/CFS: addendum, 2016, Smith et al

    "This publication is provided for historical reference only and the information may be out of date." Introduction The AHRQ evidence report on the Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome was published in December, 2014 and provided a literature review for...
  12. Dolphin

    Dietary and herbal supplements for fatigue: A quality assessment of online consumer health information, 2021, Ng et al

    Free full text: https://www.sciencedirect.com/science/article/pii/S2213422021000366 Integrative Medicine Research Available online 26 May 2021, 100749 In Press, Journal Pre-proof Dietary and herbal supplements for fatigue: A quality assessment of online consumer health information Jeremy Y Ng...
  13. Andy

    Chronic fatigue syndrome: modern aspects of diagnosis and treatment, 2021, Vorobyeva and Danilov

    Abstract in English The article presents a modern ecological approach to the pathogenesis and treatment of chronic fatigue syndrome (CFS). CFS is views in terms of gene-environment concept. The basic data in patients with CFS, triggers of diseases that implement the mechanisms responsible for...
  14. Sly Saint

    Virios Therapeutics - biotech company with anti-viral therapies for post-infection syndromes

    https://www.pharmiweb.com/press-release/2021-05-07/virios-therapeutics-to-present-at-the-benzinga-global-small-cap-conference
  15. rvallee

    FraudListing.com: a project to keep track of quack treatments for ME

    It's been noticed a few times on Twitter, though still under construction. A Reddit user has created a website to keep track of fraudulent treatments being marketed for ME and Long Covid. It spans the whole, from the usual quackery, like LP and Gupta, to official quackery, like CBT/GET. Reddit...
  16. Ryan31337

    Effect of High Dietary Sodium Intake in Patients With Postural Tachycardia Syndrome, 2021, Garland et al

    Abstract Background High sodium intake is recommended for the treatment of postural tachycardia syndrome (POTS) to counteract the hypovolemia and elevated plasma norepinephrine that contribute to excessive orthostatic tachycardia, but evidence of its efficacy is not available. Objectives This...
  17. Art Vandelay

    Mindfulness-Based Program Plus Amygdala and Insula Retraining for the Treatment of Women with Fibromyalgia: A Pilot RCT, 2021, Sanabria-Mazo et al

    Ashok Gupta is citing this study as 'proof' that his programme is a cure for ME/CFS. Given that he is now actively targeting Covid LongHaulers, I thought it best to bring this to the attention of S4ME's resident experts. According to the comments on this youtube video, there are allegedly "3...
  18. J

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    I've just come across a patent from Fluge and Mella which looks like it was updated/published in March 2021 entitled 'Method for the treatment of chronic fatigue syndrome using an inhibitory or cytotoxic agent against plasma cells'. The description of the patent is a long read...
  19. mango

    Sweden: Recruiting: Post-covid-19 Rehab (2021) Bileviciute-Ljungar

    Indre Bileviciute-Ljungar, Swedish ME/CFS clinician-researcher and BPS proponent, is now recruiting patients to a post-covid-19 ie long covid study. It's an internet based multimodal rehabilitation program aiming to "prevent a negative course of the illness". On potential risks: The entities...
  20. Sly Saint

    Blog: Working Alongside People with Long Covid: a Psychologist’s Learning

    "Today’s guest post is written by Dr Richard Pione, a clinical psychologist, CBT therapist and former Psychological Wellbeing Practitioner. Richard has worked within several different clinical health psychology settings, with the most recent being a short-term post within a Long COVID MDT...
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