treatment

  1. Hutan

    Spironolactone as a treatment for CFS in patients with positive Epstein Barr virus serology, 2020, Campo and Taylor

    https://onlinelibrary.wiley.com/doi/full/10.1111/imj.11_14849 (It's free access but I think it's just a poster) Jorge do Campo 1 and Vivienne Taylor 2 1 Noosa Hospital, Queensland, Australia 2 Ibuki Medical Centre, Noosa, Queensland, Australia Abstract Background: Epstein Barr Virus (EBV) is a...
  2. Sly Saint

    Idiopathic myalgic pain (fibromyalgia): supportive management and prevention with Pycnogenol®, 2021, Belcaro et al

    Abstract Background: The aim of this registry study was the prospective evaluation of the efficacy of Pycnogenol® in idiopathic fibromyalgia (FM), over 4 weeks in comparison with the standard management (SM). Methods: A SM and a Pycnogenol®+SM group were formed. Pycnogenol® supplementation...
  3. Lidia Thompson

    Antivirals as ME/CFS or Long Covid treatments (e.g. valacyclovir, valgancyclovir, amantadine)

    Split from Mail Online: Why many of those struck by Long Covid may be suffering from glandular fever: Blood tests on some patients are coming back positive for ‘ Here is a link from ME-pedia on the use use of valaciclovir. The study that is mentioned on this page showed that, " Improvement...
  4. Nixxy

    Sodium dichloroacetate

    Hello. I’m not sure what the right category was, but I wanted to share my experience with Prof Comhaire’s sodium dichloroacetate treatment. I’ve been sick since I was 16. I had an (really bad) EBV infection. A year or 5-7 after that, a hospital specializing in CFS/Fibro checked me out and...
  5. John Mac

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    Full title: Reduced endothelial function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - results from open-label cyclophosphamide intervention study Provisionally accepted https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/abstract
  6. Sid

    Lancet Psychiatry: Regulatory requirements for psychological interventions (Purgato, 2021)

    Pretty ironic seeing one of Lancet’s subjournals publishing an editorial calling out the unregulated nature of psychological interventions. https://doi.org/10.1016/S2215-0366(20)30414-4
  7. U

    Ken Ware - Neurophysics therapy

    Does anyone here know Ken Ware? Apparently he’s pretty well known for his rehabilitation work with severe spinal cord injury patients. 5 me/cfs patients (moderate/severe with pots) from the Netherlands have gone to Australia to be treated by this guy and four out five have made an amazing...
  8. A

    Babesia, babesiosis (tick-borne disease)

    New tick found in north east Scotland From Twitter - new trick in Scotland, never found in sheep.previously babesia venatorum https://www.northern-scot.co.uk/news/global-scientific-first-as-parasite-found-in-north-east-sheep-186588/ @duncan @chrisb
  9. Ryan31337

    Randomized Trial of Ivabradine in Patients With Hyperadrenergic [POTS], 2021, Taub et al

    Paywall, https://www.jacc.org/doi/full/10.1016/j.jacc.2020.12.029 Now free access (Oct 2025)
  10. John Mac

    A systematic review of nutraceutical interventions for mitochondrial dysfunctions in ME/CFS, 2021, Marshall-Gradisnik et al

    https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-021-02742-4
  11. John Mac

    Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS, 2021, Joseph et al

    https://journal.chestnet.org/article/S0012-3692(21)00256-7/fulltext EDIT: also available here: https://www.sciencedirect.com/science/article/abs/pii/S0012369221002567
  12. leokitten

    Selective translocator protein (TSPO) agonists

    Given that there is anecdotal evidence of lorazepam (Ativan) causing rapid temporary improvement of ME symptoms, even in very severe cases, I’ve wondered why ME researchers aren’t looking more closely at researching selective translocator protein (TSPO) agonists. TSPO is also known as the...
  13. Hutan

    Methylphenidate (Ritalin)

    Does Methylphenidate Reduce the Symptoms of Chronic Fatigue Syndrome?, 2006, Blockmans et al There's this 2006 Belgium study.
  14. Andy

    Low-Dose Dextromethorphan for the Treatment of Fibromyalgia Pain: [..] Longitudinal ... Pilot Trial, 2021, Mueller, Ness, Younger

    Full title: Low-Dose Dextromethorphan for the Treatment of Fibromyalgia Pain: Results from a Longitudinal, Single-Blind, Placebo-Controlled Pilot Trial Open access, https://www.dovepress.com/low-dose-dextromethorphan-for-the-treatment-of-fibromyalgia-pain-resul-peer-reviewed-fulltext-article-JPR
  15. Andy

    Open‐label study with the monoamine stabilizer (‐)‐OSU6162 in myalgic encephalomyelitis/chronic fatigue syndrome, Haghighi et al, 2021

    Open access, https://onlinelibrary.wiley.com/doi/full/10.1002/brb3.2040
  16. John Mac

    Review article: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Where Will the Drugs Come From? 2021, Toogood et al

    https://www.sciencedirect.com/science/article/pii/S1043661821000487
  17. Andy

    Journal of Clinical Medicine: Special Issue "Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: Diagnosis and Treatment", 2021

    While I anticipate we will have separate threads for all papers published in this issue, I thought I would highlight the accuracy, or otherwise, of the detail associated with the 'special issue'. Most bolding mine. From https://www.mdpi.com/journal/jcm/special_issues/Chronic_Fatigue A special...
  18. Kitty

    Occupational therapy and ME/CFS

    In my experience of NHS treatment, OTs are the only healthcare professionals who understand how to deal with fatigue. They also know that people's natural response to post-viral illness is not to become fearful of activity, but quite the opposite – they always try to do too much too soon. I've...
  19. Dolphin

    Clinical practice guidelines by the IDSA ... 2020 guidelines for the prevention, diagnosis, and treatment of Lyme disease, 2020, Lantos et al

    https://n.neurology.org/content/neurology/early/2020/11/30/WNL.0000000000011151.full.pdf
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