https://www.eventbrite.co.uk/e/me-uk-research-ethics-public-health-journalist-dr-david-tuller-guests-tickets-75779964915
eta: good date for it! can't wait for the fireworks.:emoji_boom:
The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always interesting to look at how they present themselves.
Someone sent me this old report recently, and while it's not that interesting or relevant to us, I...
adam finn
award
blog
bristol university
cbt
crawley
david marks
fiona fox
get
harassment
journalists
me/cfs
news thread
pariante
science media centre
smc
smile
united kingdom
I wanted to make a thread separate from the letter's calling for retraction of SMILE so I don't bog them down with thinking aloud.
Hopefully some members can look at what I’m saying and say – no you’re wrong or this is normal in clinical trials or you’ve misread something. Or if something is...
BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say about this. Apparently, the authors have convinced the journal that the outcome swapping had nothing to do with the fact that the revised primary outcome had...
Just came across this charity which is for people with neurological illnesses.
So that's good that they recognise ME as a neurological condition.
However, under the charities (AYME is still there) section in Online resources it cites the Cochrane Exercise review and below that Crawleys SMILE...
EA/2018/ 0142
John Peters v the ICO and University of Bristol.
The First Tier Tribunal finds for the Appellant. And orders the release of the SMILE trial data. Unanimous decision. Date: 11 March 2019 Promulgated: 12 March 2019
Decision here...
Yet another letter about the Lightning Process study
This morning I sent the following letter to Fiona Godlee, editor-in-chief of The BMJ and editorial director of BMJ. I cc-d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP.
Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial
http://www.virology.ws/2018/07/16/trial-by-error-the-contentless-editors-note-about-the-lightning-process-trial/
16 July 2018
By David Tuller, DrPH
Last week, I noticed that Nick Brown, the editor-in-chief of...
BMJ Still "Looking Into Lightning Process Paper"
Tuller has received via CC an e-mail from dr. Brown, editor of Archives of Disease in Childhood, stating that they had previously acknowledged receipt of his complaints, are looking into them and will respond fully when ready.
Tuller has...
Just saw this appear as I was about to go to bed, so haven't read it yet, but expect it will be great and of interest to everyone here.
http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/
I'd just noticed that this was available via Google cache, but not on the Bristol website, so thought I'd back up a copy here. Once I'd got through dong that, I realised I could just link t the waybackmachine copy...
New blog post today by David Tuller.
- This post is about a serious issue–ethical approval for research studies involving children. It is also about how powerful institutions, like leading medical journals, respond to concerns. But the story is really too long and complicated. I recommend it...
The ME Association:
Advertising Standards Authority ruling on ME Association complaint re Kathy Kent and the Lightning Process
When the SMILE trial results were published, the ME Association stated that we would continue to refer cases where Lightning Process practitioners are making unproven...
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