smile

  1. MSEsperanza

    Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk

    By David Tuller, DrPH http://www.virology.ws/2019/10/21/trial-by-error-bristols-report-due-soon-slides-from-my-oxford-talk/ LP Study talk
  2. Sly Saint

    M.E., UK Research Ethics-Public Health Journalist Dr. David Tuller & Guests Nov 5 2019

    https://www.eventbrite.co.uk/e/me-uk-research-ethics-public-health-journalist-dr-david-tuller-guests-tickets-75779964915 eta: good date for it! can't wait for the fireworks.:emoji_boom:
  3. Esther12

    United Kingdom: Science Media Centre (including Fiona Fox)

    The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always interesting to look at how they present themselves. Someone sent me this old report recently, and while it's not that interesting or relevant to us, I...
  4. D

    SMILE patient cohorts

    I wanted to make a thread separate from the letter's calling for retraction of SMILE so I don't bog them down with thinking aloud. Hopefully some members can look at what I’m saying and say – no you’re wrong or this is normal in clinical trials or you’ve misread something. Or if something is...
  5. Kalliope

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say about this. Apparently, the authors have convinced the journal that the outcome swapping had nothing to do with the fact that the revised primary outcome had...
  6. Sly Saint

    The Brain Charity - website content on ME/CFS

    Just came across this charity which is for people with neurological illnesses. So that's good that they recognise ME as a neurological condition. However, under the charities (AYME is still there) section in Online resources it cites the Cochrane Exercise review and below that Crawleys SMILE...
  7. Andy

    Trial By Error: The Lightning Process Is “Effective”? Really?

    http://www.virology.ws/2019/05/20/trial-by-error-the-lightning-process-is-effective-really/
  8. J

    SMILE trial data to be released

    EA/2018/ 0142 John Peters v the ICO and University of Bristol. The First Tier Tribunal finds for the Appellant. And orders the release of the SMILE trial data. Unanimous decision. Date: 11 March 2019 Promulgated: 12 March 2019 Decision here...
  9. Kalliope

    David Tuller: Trial By Error: Yet Another Letter About the Lightning Process Study

    Yet another letter about the Lightning Process study This morning I sent the following letter to Fiona Godlee, editor-in-chief of The BMJ and editorial director of BMJ. I cc-d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP.
  10. E

    David Tuller: Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial

    Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial http://www.virology.ws/2018/07/16/trial-by-error-the-contentless-editors-note-about-the-lightning-process-trial/ 16 July 2018 By David Tuller, DrPH Last week, I noticed that Nick Brown, the editor-in-chief of...
  11. Indigophoton

    David Tuller: Trial By Error: My Letter to Parliament’s Science and Technology Committee

    http://www.virology.ws/2018/07/11/trial-by-error-my-letter-to-the-science-and-technology-committee/
  12. Melanie

    Archive of Diseases in Childhood: Editor's Note on Lightning Process Trial (June 2018)

  13. Indigophoton

    David Tuller: Trial by Error: My exchange with Professor Bishop

    http://www.virology.ws/2018/06/25/trial-by-error-my-exchange-with-professor-bishop/
  14. Kalliope

    David Tuller: Trial By Error: BMJ Still "Looking Into" Lightning Process Paper

    BMJ Still "Looking Into Lightning Process Paper" Tuller has received via CC an e-mail from dr. Brown, editor of Archives of Disease in Childhood, stating that they had previously acknowledged receipt of his complaints, are looking into them and will respond fully when ready. Tuller has...
  15. Esther12

    David Tuller: Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims - 17th January 2018

    Just saw this appear as I was about to go to bed, so haven't read it yet, but expect it will be great and of interest to everyone here. http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/
  16. Esther12

    [Not important] 2010 SMILE correspondance between Crawley and REC now seems to be off-line at Bistol Uni

    I'd just noticed that this was available via Google cache, but not on the Bristol website, so thought I'd back up a copy here. Once I'd got through dong that, I realised I could just link t the waybackmachine copy...
  17. Kalliope

    Trial By Error: The School Absence Study, Revisited (Crawley/SMILE)

    New blog post today by David Tuller. - This post is about a serious issue–ethical approval for research studies involving children. It is also about how powerful institutions, like leading medical journals, respond to concerns. But the story is really too long and complicated. I recommend it...
  18. Andy

    Blog: David Tuller, "Trial By Error: My Questions for the Science Media Centre"

    http://www.virology.ws/2017/12/18/trial-by-error-my-questions-for-the-science-media-centre/
  19. Cheshire

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    http://www.virology.ws/2017/12/13/trial-by-error-the-crawley-chronicles-resumed/
  20. Kalliope

    New ruling on Lightning Process from British Advertising Standards Authority

    The ME Association: Advertising Standards Authority ruling on ME Association complaint re Kathy Kent and the Lightning Process When the SMILE trial results were published, the ME Association stated that we would continue to refer cases where Lightning Process practitioners are making unproven...
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