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SMILE trial data to be released

Discussion in 'PsychoSocial ME/CFS News' started by JohnTheJack, Mar 12, 2019.

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  1. JohnTheJack

    JohnTheJack Moderator Staff Member

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    EA/2018/ 0142
    John Peters v the ICO and University of Bristol.
    The First Tier Tribunal finds for the Appellant. And orders the release of the SMILE trial data. Unanimous decision. Date: 11 March 2019 Promulgated: 12 March 2019

    Decision here:
    https://www.dropbox.com/s/1vms66ic4vh1tpp/014 100319 Final Decision EA.2018.0142.pdf?dl=0
     
    JohnTheJack, Mar 12, 2019
    #1
    Marit @memhj, Jan, DigitalDrifter and 94 others like this.
  2. Cheshire

    Cheshire Moderator Staff Member

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    Congratulations!
    upload_2019-3-12_13-37-5.jpeg
    Thanks a lot for your tenacity.
     
    Cheshire, Mar 12, 2019
    #2
    Marit @memhj, Jan, arewenearlythereyet and 38 others like this.
  3. JohnTheJack

    JohnTheJack Moderator Staff Member

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    Thanks, Cheshire.
     
    JohnTheJack, Mar 12, 2019
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  4. Sean

    Sean Senior Member (Voting Rights)

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    :):):):):):):):):):):):):):):):):):):):):):):)
     
    Sean, Mar 12, 2019
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  5. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    Great result, John. And great that it was a unanimous decision.

    Thanks for all your hard work.
     
    Robert 1973, Mar 12, 2019
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  6. Skycloud

    Skycloud Senior Member (Voting Rights)

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    I've just read the decision (only skimmed through the discussion) - well done! :balloons::balloons: The idea that a 'motivated intruder' could publicly identify children who participated in the trial from the data wasn't accepted by the judge. I think that's helpful for other FOI requests for data that might be made so that's great. Thanks for your persistence @JohnTheJack .
     
    Skycloud, Mar 12, 2019
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  7. Barry

    Barry Senior Member (Voting Rights)

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    Brilliant @JohnTheJack :) :). Not least for it helping to set a more sane precedent for future FOIs. Superb.
     
    Barry, Mar 12, 2019
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  8. Amw66

    Amw66 Senior Member (Voting Rights)

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    amazing news ! a heartfelt thanks from all parents
     
    Amw66, Mar 12, 2019
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    sea, ladycatlover, pteropus and 15 others like this.
  9. Sean

    Sean Senior Member (Voting Rights)

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    Is this level of appeal the final on facts, and they can only appeal on points of law from here?
     
    Sean, Mar 12, 2019
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  10. large donner

    large donner Senior Member (Voting Rights)

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    How long before Clare Gerada is tweeting out some spin on this claiming British justice has lost its way.
     
    large donner, Mar 12, 2019
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  11. Trish

    Trish Moderator Staff Member

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    Thank you for your excellent work on this, @JohnTheJack.
     
    Trish, Mar 12, 2019
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  12. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Thank you @JohnTheJack. It’s hard work to persevere so diligently. I am enormously grateful to you for doing this.
     
    Binkie4, Mar 12, 2019
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  13. Daisymay

    Daisymay Senior Member (Voting Rights)

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    Excellent, thanks so very much JtJ for all your efforts, I'm sure it takes a lot out of you x
     
    Daisymay, Mar 12, 2019
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  14. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Belting result :thumbup:
     
    NelliePledge, Mar 12, 2019
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  15. inox

    inox Senior Member (Voting Rights)

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    Yay! Well done and amazing job, thank you! :thumbup:
     
    inox, Mar 12, 2019
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  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    this news was my icing on the cake of today:D

    splendid work @JohnTheJack
     
    Sly Saint, Mar 12, 2019
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  17. rvallee

    rvallee Senior Member (Voting Rights)

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    I have no idea how that's supposed to work. Then what? Plenty of participants to some of those trials have spoken out. That's the end of it. They speak out, we appreciate the contribution to the conversation and add it to the pile of evidence. That's what happens when participants in those trials are identified. They're anecdotes, not much more can be done, the trial data is much more useful.

    It's a really bad idea to make strawman arguments like that. It works within the circlejerk, but it makes them look very unprofessional to independent observers. They may as well have been arguing that alien invasion was a likely consequence of releasing the data for all that that argument was grounded in reality.
     
    rvallee, Mar 12, 2019
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  18. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Well done JTJ.
     
    Jonathan Edwards, Mar 12, 2019
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  19. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    At least they can’t claim E Crawley has retired & the data isn’t available
     
    NelliePledge, Mar 12, 2019
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  20. obeat

    obeat Senior Member (Voting Rights)

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    @JohnTheJack . Well done. Now you need to prepare for MAGENTA?!!!!
     
    obeat, Mar 12, 2019
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