NIH's MapMECFS newsletter stated that the clinical data and biospecimens from CDC's Multi-Site Clinical Assessment of Myalgic...
Hi all, its appears a German Dr, Dr Habets who is an Oncologist, is undertaking a trial (or just randomly treating its very hard to tell) with...
Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating disease which involves multiple body systems...
Moved from this thread It was suggested yesterday that this Member of the House of Lords local to me is joining Forward ME? She has been...
PEM has become a mandatory symptom in many CFS guidelines, so I would expect that there is plenty of data of monitored patients during the...
I'm sure we must already have discussed this, but I've not found the thread/discussion so thought that I'd risk to problem of a re-post (sorry...
I pursued this after the failure of PLOSONE to make the researchers hand over the data in compliance with the journal policy. The researchers...
I first applied back in 2016. I went through review and then a complaint to the ICO and then all through last year I was in the process of an...
KCL also claimed that it doesn't hold the data in terms of the FOIA. The ICO upheld the KCL decision, so I appealed to the FTT. In the course of...
EA/2018/ 0142 John Peters v the ICO and University of Bristol. The First Tier Tribunal finds for the Appellant. And orders the release of the...
My aim on this thread is to share the results of my digging into this question over the last couple of days. I have found several papers with...
@dave30th Just watched BBC Newsnight piece on the Lancet apparently knowing about flawed data in one of their publications leading to death in...
In response to the Expression of Concern, the Statement of the Authors says:...
I've created this thread as a repository for user-generated graphs and gifs related to the PACE trial.
Not the most thrilling of articles but perhaps someone could send this to QMUL, I'm sure they could benefit from it?? ;) Data management is one...
"GDPR: how charities should prepare for data protection changes New regulations affecting fundraising, campaigning and volunteer management come...
I have received the decision from the ICO who accept that QMUL do not hold the anonymized data. The decision is here:...
When teaching research methods to first-year college students, I used to tell them that scientists try to prove themselves wrong. But last year, I...
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