paediatric

Full title: “it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME) https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-020-02461-7 ETA link to article

Paywall, https://journals.sagepub.com/doi/10.1177/1359104520978461 Sci hub, https://sci-hub.se/10.1177/1359104520978461

Paywall, https://www.sciencedirect.com/science/article/abs/pii/S0165178120332054 Sci hub, https://sci-hub.se/10.1016/j.psychres.2020.113544

https://adc.bmj.com/content/105/Suppl_1/A189.2

Free full text: https://link.springer.com/chapter/10.1007/978-3-030-46184-3_2 Looks like it could be quite annoying

https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/Resources_for_Clinicians_and_Healthcare_Professionals/CBT_for_CFS_Therapist_Manual.pdf link found here...

Paywall, https://journals.sagepub.com/doi/10.1177/1742395320949613 Sci hub, https://sci-hub.tw/10.1177/1742395320949613

London School of Paediatrics - HEE NHS UK (I skipped the case examples) youtube generated transcript: pt1

via Dr. Marc-Alexander Fluks Source: University of Bristol Date: November 28, 2019 URL: https://research-information.bris.ac.uk/en/theses/a-qualitative-exploration-of-treatment-preference-in-paediatric-randomised-controlled-trials(e6ff1d3b-e315-45e2-a4da-18ae0b414a1d).html...

https://link.springer.com/referenceworkentry/10.1007/978-981-10-0753-8_33-1 Mental Health and Illness of Children and Adolescents pp 1-8 | Cite as

https://www.sciencedirect.com/science/article/pii/S1319562X20300887 (is this the study that Karl Morten refers to?)

https://bmjpaedsopen.bmj.com/content/4/1/e000617 full paper pdf: https://bmjpaedsopen.bmj.com/content/bmjpo/4/1/e000617.full.pdf "However, patients who recover appear to have less pain than those who do not recover." :cookie:

The team of Leonard Jason have performed a prevalence study in Chicago on children and adolescents with ME/CFS. Because this was a community-based study with clinician confirmed diagnosis, this is probably one of the best studies on the prevalence of pediatric ME/CFS thus far...

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L. Haywood, Alison Shaw...

Talk (no booking required, public) no abstract yet Date: 28 January 2020, 12:15 (Tuesday, 2nd week, Hilary 2020) Venue: University Department of Psychiatry Headington OX3 7JX Organising department: Department of Psychiatry https://talks.ox.ac.uk/talks/id/5a0edd5a-46e6-4f9a-8cca-f139852175f5/

Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/apa.15054

Editorial in Acta Pædiatricia: Myalgic Encephalomyelitis (ME) in the Young. Time to Repent - Ola Didrik Saugstad A reorientation of the understanding and attitude to ME patients occurs worldwide. ME patients, especially the worse cases, suffer enormously. Among them, the paediatric patients are...

P15 Does the NHS offer equitable access to specialist paediatric clinics? A study of inequalities in outpatient referrals to eight paediatric subspecialties FK Neale1, EJ Armstrong1, J Cohen2, TY Segal2, DS Hargreaves3 https://bmjpaedsopen.bmj.com/content/3/Suppl_1/A9.3

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:

Webinar/Online Tuesday, September 10, 2019 at 12:30pm ET - 1:30pm ET Info Speaker(s) Robert Pendergrast, MD, FAAP Professor Department of Pediatrics Medical College of Georgia Augusta, Georgia Credits Offered This event offers 1.0 CE credit to attendees. Accredited by Georgia Nurses...